Contradiction of TSH level: Hi I just wonder how... - Thyroid UK

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Contradiction of TSH level

Cup-cake7 profile image
31 Replies

Hi

I just wonder how the contradictions continue?

Gp says TSH 4.5 ‘normal no action’ even though you present regular hypo symptoms

So poorly people are overlooked

Yet, if fortunate enough to see Endo they pacifically say TSH to be under 2!?

Is it true the TSH range is the average of Lab workers🤔 poorly ones also!

Is there any body to highlight this to, that may listen , I find it really unacceptable

Change.com even?

Thanks in advance

💕

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Cup-cake7 profile image
Cup-cake7
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31 Replies
Cup-cake7 profile image
Cup-cake7

…worse, these folk probably sent down antidepressent route which can lead to a Dementia route !! It’s 2022

DippyDame profile image
DippyDame

"There are none so blind as those who will not see"!!

thyroiduk.org/further-readi...

bmcendocrdisord.biomedcentr...

"Time for a reassessment of the treatment of hypothyroidism"

thyroidpatients.ca/2021/07/...

Cup-cake7 profile image
Cup-cake7 in reply toDippyDame

👍🏼👍🏼💕

humanbean profile image
humanbean

You might find this thread useful :

healthunlocked.com/thyroidu...

Cup-cake7 profile image
Cup-cake7 in reply tohumanbean

👏👏👏 marvellous Thankyou

…..’no perceived benefit ‘’. TSH 6 - 8!!??

🤦‍♀️ I existed a quarter life at TSH 4.4.

So. Nobody out there to hear & reform then 🤦‍♀️

Cup-cake7 profile image
Cup-cake7 in reply tohumanbean

Sorry to mitherI’m looking for the calculator. Please could direct Humanbean

helvella profile image
helvellaAdministrator in reply toCup-cake7

My vade mecum document has a section on calculators with links to several - including the ones frequently posted here.

Not sure which you want so have a look and choose! :-)

helvella - Vade Mecum for Thyroid

The term vade mecum means:

1. A referential book such as a handbook or manual.

2. A useful object, constantly carried on one’s person.

Please don't get put off by the number of pages!

Nor by the fact it is targeted at people interested in thyroid issues. Much of its contents could be of use to many involved in health issues. Things like abbreviations, lists, general reference information.

In particular, it is not intended that you sit and read the document. Just that you download it and know you can look things up.

If there is anything you'd like me to add, let me know.

Not everything is in this one document - my major medicines document is still separate!

From Dropbox:

dropbox.com/s/vp5ct1cwc03bl...

From Google Drive:

drive.google.com/file/d/1ZW...

Cup-cake7 profile image
Cup-cake7 in reply tohelvella

Thanks lots. Just to check range percentage my maths isn’t great

humanbean profile image
humanbean in reply toCup-cake7

Calculator : thyroid.dopiaza.org/

Cup-cake7 profile image
Cup-cake7 in reply tohumanbean

Thnku 🥰

McPammy profile image
McPammy

When first diagnosed with Hashimotos my TSH was 36 (0.35-5.5) I was put on Levothyroxine mono treatment for 10 years+. I never felt well. Looking back at my NHS records via Patient Access my TSH was never below 4.00 on Levothyroxine. No GP recognised I needed more help. In recent years I found out I needed T3 medication as I’m a very poor converter after going private. Since being on combined Levothyroxine plus Liothyronine treatment my TSH is hovering around 1.00. I feel fabulous most days and full of energy. I’ve also lost over 4st without trying. Metabolism is now working well. We need to aim for a TSH around 1.00 but the T4 and T3 levels must be optimal to achieve this I’ve found.

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Hi. So pleased for youDid you work on your supps

McPammy profile image
McPammy in reply toCup-cake7

I also learnt my B12 and ferritin was too low. This down to being a vegetarian for decades. I now have regular B12 injections 3 monthly. And I’m on repeat prescription for Ferris Fumerate 210mcg to bring up my ferritin levels. Both are now optimal. My vit D is naturally good normally around 100 even in winter without supplements and my folate is also good naturally without supplements.

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Interesting you mention vegetarian as Iv had this concern re a daughter also vegan. Her TSH just under 3 she says she feels fine but I’m not happy understandably

.Do you look back and think your hypo may have materialised through the lack of supps as a vegetarian🤔

McPammy profile image
McPammy in reply toCup-cake7

No I doubt it. It has been raised antibodies attacking.

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Same 👍🏼

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Was it at menopausal yrs Mcpammy?I feel this played its part for sure

McPammy profile image
McPammy in reply toCup-cake7

I started my menopause aged 42 at the same time my bloods showed thyroid abnormal. However, I wasn’t treated with medication until I was 49. For years I struggled. GP kept saying I was depressed. Never heard of severe joint pain caused by depression I’d reply. After 5 requests for a thyroid test he eventually agreed. TSH was 36! (0.35-5.50).

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

completely inadequate healthcare. Knew, & didn’t act on your results😳

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

I wasnt heard for 16 yrs reallyLonger if go back to undiagnosed peri meno when felt very. Blow - given seroxat six months & then dismissed to get on with things

Which you did

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Thnks. Can you remember roughly your t3 ranger so alike I’m following your route to the recovery!!! Plus, BIG plus, to shed 4 stones. CANT WAIT

McPammy profile image
McPammy in reply toCup-cake7

T3 was 3.7 (3.9-6.0)

Cup-cake7 profile image
Cup-cake7 in reply toMcPammy

Do you still have inflammation attacks can you tell

Annib1 profile image
Annib1 in reply toMcPammy

I wonder whether this link might be of interest?

england.nhs.uk/blog/access-...

It is about something called 'smart procurement' that the NHS has devised so that all haemophiliacs can access the right treatments .. It seems absolutely what we need to push for for those with thyroid problems.

Cup-cake7 profile image
Cup-cake7 in reply toAnnib1

Il read. Thank you!

I’m not much of an instigator this for sure just wondered how this can be as it outrageous

Partner20 profile image
Partner20

Endos specify that TSH should be under 2? Try telling that to those in my area! According to them anywhere between mid-range and 4.2 is ok. In fact one, who is a senior clinical lecturer, and thyroid (not diabetes) specialist, has a target of TSH at 4.2. As this is what she teaches her students, what hope is there?

Cup-cake7 profile image
Cup-cake7 in reply toPartner20

Soul destroying.

It’s like the 2 or 3 markers highers don’t mean a thing !! For me, no interest from them regarding g symptoms. Like a walking blood number 😳🤷‍♀️ It must be the shallow route of addressing a huge problem maybe, with ever growing numbers 🤷‍♀️

Cup-cake7 profile image
Cup-cake7

I can see now when I was at top of t4 range and TSH still 3.5 i should have kept increasing quietlyAs written on there, you need lower number than healthy folk which makes sense

But I don’t understand why you would up t4 continually if T3 isn’t being converted better🤔

Cup-cake7 profile image
Cup-cake7

….takes so much time to trial

Nollig profile image
Nollig

Change your GP post haste

Cup-cake7 profile image
Cup-cake7 in reply toNollig

👍🏼😊

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