Contradiction of TSH level: Hi I just wonder how... - Thyroid UK

Thyroid UK

137,812 members161,641 posts

Contradiction of TSH level

Jeppy profile image
31 Replies

Hi

I just wonder how the contradictions continue?

Gp says TSH 4.5 ‘normal no action’ even though you present regular hypo symptoms

So poorly people are overlooked

Yet, if fortunate enough to see Endo they pacifically say TSH to be under 2!?

Is it true the TSH range is the average of Lab workers🤔 poorly ones also!

Is there any body to highlight this to, that may listen , I find it really unacceptable

Change.com even?

Thanks in advance

💕

Written by
Jeppy profile image
Jeppy
To view profiles and participate in discussions please or .
Read more about...
31 Replies
Jeppy profile image
Jeppy

…worse, these folk probably sent down antidepressent route which can lead to a Dementia route !! It’s 2022

DippyDame profile image
DippyDame

"There are none so blind as those who will not see"!!

thyroiduk.org/further-readi...

bmcendocrdisord.biomedcentr...

"Time for a reassessment of the treatment of hypothyroidism"

thyroidpatients.ca/2021/07/...

Jeppy profile image
Jeppy in reply to DippyDame

👍🏼👍🏼💕

humanbean profile image
humanbean

You might find this thread useful :

healthunlocked.com/thyroidu...

Jeppy profile image
Jeppy in reply to humanbean

👏👏👏 marvellous Thankyou

…..’no perceived benefit ‘’. TSH 6 - 8!!??

🤦‍♀️ I existed a quarter life at TSH 4.4.

So. Nobody out there to hear & reform then 🤦‍♀️

Jeppy profile image
Jeppy in reply to humanbean

Sorry to mitherI’m looking for the calculator. Please could direct Humanbean

helvella profile image
helvellaAdministratorThyroid UK in reply to Jeppy

My vade mecum document has a section on calculators with links to several - including the ones frequently posted here.

Not sure which you want so have a look and choose! :-)

helvella - Vade Mecum for Thyroid

The term vade mecum means:

1. A referential book such as a handbook or manual.

2. A useful object, constantly carried on one’s person.

Please don't get put off by the number of pages!

Nor by the fact it is targeted at people interested in thyroid issues. Much of its contents could be of use to many involved in health issues. Things like abbreviations, lists, general reference information.

In particular, it is not intended that you sit and read the document. Just that you download it and know you can look things up.

If there is anything you'd like me to add, let me know.

Not everything is in this one document - my major medicines document is still separate!

From Dropbox:

dropbox.com/s/vp5ct1cwc03bl...

From Google Drive:

drive.google.com/file/d/1ZW...

Jeppy profile image
Jeppy in reply to helvella

Thanks lots. Just to check range percentage my maths isn’t great

humanbean profile image
humanbean in reply to Jeppy

Calculator : thyroid.dopiaza.org/

Jeppy profile image
Jeppy in reply to humanbean

Thnku 🥰

McPammy profile image
McPammy

When first diagnosed with Hashimotos my TSH was 36 (0.35-5.5) I was put on Levothyroxine mono treatment for 10 years+. I never felt well. Looking back at my NHS records via Patient Access my TSH was never below 4.00 on Levothyroxine. No GP recognised I needed more help. In recent years I found out I needed T3 medication as I’m a very poor converter after going private. Since being on combined Levothyroxine plus Liothyronine treatment my TSH is hovering around 1.00. I feel fabulous most days and full of energy. I’ve also lost over 4st without trying. Metabolism is now working well. We need to aim for a TSH around 1.00 but the T4 and T3 levels must be optimal to achieve this I’ve found.

Jeppy profile image
Jeppy in reply to McPammy

Hi. So pleased for youDid you work on your supps

McPammy profile image
McPammy in reply to Jeppy

I also learnt my B12 and ferritin was too low. This down to being a vegetarian for decades. I now have regular B12 injections 3 monthly. And I’m on repeat prescription for Ferris Fumerate 210mcg to bring up my ferritin levels. Both are now optimal. My vit D is naturally good normally around 100 even in winter without supplements and my folate is also good naturally without supplements.

Jeppy profile image
Jeppy in reply to McPammy

Interesting you mention vegetarian as Iv had this concern re a daughter also vegan. Her TSH just under 3 she says she feels fine but I’m not happy understandably

.Do you look back and think your hypo may have materialised through the lack of supps as a vegetarian🤔

McPammy profile image
McPammy in reply to Jeppy

No I doubt it. It has been raised antibodies attacking.

Jeppy profile image
Jeppy in reply to McPammy

Same 👍🏼

Jeppy profile image
Jeppy in reply to McPammy

Was it at menopausal yrs Mcpammy?I feel this played its part for sure

McPammy profile image
McPammy in reply to Jeppy

I started my menopause aged 42 at the same time my bloods showed thyroid abnormal. However, I wasn’t treated with medication until I was 49. For years I struggled. GP kept saying I was depressed. Never heard of severe joint pain caused by depression I’d reply. After 5 requests for a thyroid test he eventually agreed. TSH was 36! (0.35-5.50).

Jeppy profile image
Jeppy in reply to McPammy

completely inadequate healthcare. Knew, & didn’t act on your results😳

Jeppy profile image
Jeppy in reply to McPammy

I wasnt heard for 16 yrs reallyLonger if go back to undiagnosed peri meno when felt very. Blow - given seroxat six months & then dismissed to get on with things

Which you did

Jeppy profile image
Jeppy in reply to McPammy

Thnks. Can you remember roughly your t3 ranger so alike I’m following your route to the recovery!!! Plus, BIG plus, to shed 4 stones. CANT WAIT

McPammy profile image
McPammy in reply to Jeppy

T3 was 3.7 (3.9-6.0)

Jeppy profile image
Jeppy in reply to McPammy

Do you still have inflammation attacks can you tell

Annib1 profile image
Annib1 in reply to McPammy

I wonder whether this link might be of interest?

england.nhs.uk/blog/access-...

It is about something called 'smart procurement' that the NHS has devised so that all haemophiliacs can access the right treatments .. It seems absolutely what we need to push for for those with thyroid problems.

Jeppy profile image
Jeppy in reply to Annib1

Il read. Thank you!

I’m not much of an instigator this for sure just wondered how this can be as it outrageous

Partner20 profile image
Partner20

Endos specify that TSH should be under 2? Try telling that to those in my area! According to them anywhere between mid-range and 4.2 is ok. In fact one, who is a senior clinical lecturer, and thyroid (not diabetes) specialist, has a target of TSH at 4.2. As this is what she teaches her students, what hope is there?

Jeppy profile image
Jeppy in reply to Partner20

Soul destroying.

It’s like the 2 or 3 markers highers don’t mean a thing !! For me, no interest from them regarding g symptoms. Like a walking blood number 😳🤷‍♀️ It must be the shallow route of addressing a huge problem maybe, with ever growing numbers 🤷‍♀️

Jeppy profile image
Jeppy

I can see now when I was at top of t4 range and TSH still 3.5 i should have kept increasing quietlyAs written on there, you need lower number than healthy folk which makes sense

But I don’t understand why you would up t4 continually if T3 isn’t being converted better🤔

Jeppy profile image
Jeppy

….takes so much time to trial

Nollig profile image
Nollig

Change your GP post haste

Jeppy profile image
Jeppy in reply to Nollig

👍🏼😊

You may also like...

Tsh levels in infants

for advice on tsh levels ,as my 5 year old girl had two tests last year the first her tsh was 8.5...

Optimal TSH and T4 levels?

What are considered optimal TSH and T4 results in the UK for someone with Hashimoto's diagnosed...

Respiratory infection and tsh levels

and got the results in on Saturday my tsh has gone up to 8.1 ( range 0.2 - 4.0) they didn't test...

Tsh levels and trying to conceieve

concerned my tsh levels are slightly high but my gp is unwilling to help as they are in normal...

Serum tsh level doubled

(Ropinorole). The test done in July just tested my TSH level which was 2.06miu/L ( 0.35 - 4.78) at...