Mucin and Levothyroxine?: I have mucin around my... - Thyroid UK

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Mucin and Levothyroxine?

Pearlteapot profile image
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I have mucin around my knees. The mucin and generally swollen look of my legs has started since I started Levo. Before that I was just plump/fat but without that swollen water retention look or the mucin.

Is it connected with using Levo rather than NDT? Or is it connected with being under-dosed regardless of the form of thyroid therapy? - but if so why didn't it develop before i was diagnosed? I've been reading old posts here and some people suffering from mucin were on combination therapy, some were on NDT, some were on Levo. There doesn't seem to be any explanation or link.

I'm troubled by it, for vanity reasons but also because it accumulates around organs and joints, as I understand it.

If it is connected to Levo then I will be highly motivated to change to a combination therapy.

Does anyone have a theory or is it a great unknown?

I noticed this post by SlowDragon who thought hers was getting better. May I ask how are things now?

healthunlocked.com/thyroidu...

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Pearlteapot
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greygoose profile image
greygoose

It's a great unknown. And the person that finds a cure for it, I will personally campaign to get them a Noble Prize! Not that anyone would listen to me, but still! lol

I'm on T3 only. Have been for years. I'm taking around 75 mcg daily, but I still have problems with mucin. Duiretics can give a temporary 'cure', but it always comes back again.

So, one thing is sure, it has nothing to do with poor old, much-maligned Levo. The fact that you didn't have that problem before starting levo means nothing. It is quite commong for new symptoms to appear when starting any sort of thyroid hormone replacement, and for old ones to get worse. Mostly, they go away when your dose is optimal, but not mucin! That clings on for dear life. Sorry.

sobs1962 profile image
sobs1962

Can't say I have any idea what that is or any experience of it, however I do know that Levothyroxine is completely useless to some people as,their bodies don't convert and unless you keep on at your doctor about it, some of them will do nothing especially if your a woman of menopausal age,as some seem to think that we're all "hysterical " females and never link gut health with mental health, which is an important consideration, but just something else to think about.

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