Amazon de B1 (Thiammin injections)

[JaneChapple]

Hiya

I was going to buy B1 injections from Versandapo but after looking here and checking with them they say its a pharmacy only medicine soo not deliverable to us as individuals.

I looked on Amazon de and it seems it might be similar there

Pharmacy-specific medicine (PZN: 03919962), so not sure if I will gwt it if I order from them. Anyone ordered from them recently?

Thanks

JaneCxxx😎❤

[helvella Administrator Thyroid UK]

Please, do bear in mind that advice on where to buy prescription-only medicines is not allowed on forum.

However, as this subject hasn't (so far as I can remember) previously been discussed, I'll leave the post open for now. Just do not say where on forum.

[humanbean]

I'm curious. How do you know that you don't absorb vitamin B1 (thiamine) from food or capsules or tablets, and need injections?

Note that apart from thiamine (which is water soluble), there are other forms of vitamin B1 available. The only one I've personally tried is benfotiamine which is fat soluble but it didn't do anything more for me than ordinary thiamine.

For more different types (which I know nothing about) :

en.wikipedia.org/wiki/Vitam...

You might find this link of interest :

*** thyroidpharmacist.com/artic...

And this website has dozens of articles on thiamine :

hormonesmatter.com/?s=thiamine

I buy no-prescription-required 100mg pills of thiamine from Amazon. I have never taken 500mg or 600mg of thiamine per day, as mentioned by Izabella Wentz in the starred link above. I haven't yet investigated whether really high doses have potential side effects.

[JaneChapple in reply to humanbean]

Thanks for the info humanbeam. I think I may have a genetic problem trqnsporting thiamine/biotin as I have this gene

SLC19A3 gene mutations likely result in a protein with impaired ability to transport thiamine into cells, resulting in decreased absorption of the vitamin and leading to neurological dysfunction.

medlineplus.gov › ... › Genes

SLC19A3 gene: MedlinePlus Genetics

This is why I started looking into it. I have essential tremor and have reqd that thiamine injections may help with this.

Best wishes

Janexxx😎❤

[helvella Administrator Thyroid UK in reply to JaneChapple]

Afraid your link was just to the top landing page of Medline.

I suspect you actually meant to link to either or both of these:

Biotin-thiamine-responsive basal ganglia disease

medlineplus.gov/genetics/co...

SLC19A3 gene

medlineplus.gov/genetics/ge...

[humanbean in reply to JaneChapple]

I've never looked into essential tremor before.

I just found this website :

tremor.org.uk/medication-tr...

and realised that many of the treatments are horrific, so you have my sympathies.

I was shocked when I saw multiple references to alcohol as a "treatment". And benzodiazepines such as diazepam? Several of the treatments listed are addictive. And several of them seem to be assuming that the tremor is caused by anxiety.

Personally, my own anxiety, which I suffered from for years was fixed by better levels of thyroid hormones and getting my iron and ferritin as close to optimal as I could get it.

It's ironic that people might use alcohol to treat tremor if one possible cause of the shakes is low thiamine, as you say. Alcohol depletes thiamine.

[JaneChapple]

Thanks for the link. My consultant asked if it was relieved with alcohol, I dont drink enough ro know. All I was offered was drugs like pregabalin, propranolol and others, all of which I refused. I tried propranolol just the once, sent my heart racing, never again! Hence my interest in Thiamine injections especially if I have a transporter problem. Have no decent doctor or endo to support me so have to research like most of us!

I have practically no thyroid which is atrophic and one kidney. Found when they thought I had fibroids which I didnt?! The Radiographer told me I wouldnt need a thyroidectomy as it would disappear on its own, well thanks mate really helpful?! Perhaps I should turn to the bottle (not)?!!!

Janexxx😎❤

[Lola1977]

Hi Jane did you ever start thiamine injections? I’m starting them for neuro issues

[JaneChapple in reply to Lola1977]

Hi Lola1977

No I didnt. Im trying 500 thiamine tabets twice a day but not sure they are helping with my tremor. Only been on the a few days though.

I presume you sre buying your own.

Im still thinking about trying though, do let me know how you get on.

Good luck!

JaneCxxx😣😎❤

[Lola1977 in reply to JaneChapple]

I hope it works for you take care xx I’ll keep you posted not a lot of info out there on Thiamine injections

[JaneChapple in reply to Lola1977]

Hi Lola1977

Was just wondering how you were getring on with the B1 injections, I hope they are working for you, although its probavly early days?!

Best wishes

JsneCxxx😎😘❤

[Lola1977]

Stings!!

[Lola1977]

And no dramatic changes as far as I can tell

[JaneChapple]

Thats a shame how many have you had?😣😎❤