Restless Leg Syndrom x T3: Hello Everyone Just... - Thyroid UK

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Restless Leg Syndrom x T3

missrees profile image
13 Replies

Hello Everyone

Just wanted to share with you my experience with T3 and restless leg syndrome - should anyone else experience it.

I suffer from Restless Leg Syndrome - have done all of my adult life - and it's worse when I'm tired and or in a claustrophobic environment (ie. packed cinema - sitting in the middle; long air journeys - sitting in the middle seat, etc).

I have been taking T3 for about 18 months split 50% morning and 50% at 3pm and all is well with my Thyroid but noticed that my Restless Legs were happening most evenings quite badly and I found it difficult to relax and to sleep. Unrelated, I spoke with a friend about how difficult it is to maintain the 3pm dose when work/life is incredibly busy - she said that she takes all of hers in the morning, so I tried the same - and my Restless Legs situation has massively abated and my sleep is much better and I feel fine thyroid-wise/energy levels etc.

Anyone else got those issues?

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missrees
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13 Replies
greygoose profile image
greygoose

I take all my T3 in one go in the morning. I find it's best that way. But, my RLS is bad when my iron is low. Have you had iron/ferritin tested?

missrees profile image
missrees in reply togreygoose

I have low iron too Gregygoose. GP doesn't think so, but my latest results showed it was near the very bottom. How do you increase iron? My diet is good and I eat plenty of iron-rich food - but definitely need to supplement.

greygoose profile image
greygoose in reply tomissrees

Is that iron or ferritin that is low? As long as results are in-range, GPs think everything has to be OK. They don't understand much about nutrition.

As to your diet, doesn't matter how good it is if you stomach acid is low - which is often is when you're hypo - and can't digest and absorb nutrients correctly. That's why we often have to supplement.

missrees profile image
missrees in reply togreygoose

Ferritin is low - 37 (15.00-300.00) - February 202248 (15-300) - July 2021 - this i had been supplementing with Floradix at that time.

SlowDragon profile image
SlowDragonAdministrator in reply tomissrees

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

cks.nice.org.uk/topics/anae...In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

When were vitamin D, folate and B12 last tested

Important these are also at good levels

missrees profile image
missrees in reply toSlowDragon

Thanks for these links SlowDragon - very interesting stuff indeed. Why does it get so overlooked I wonder?

SlowDragon profile image
SlowDragonAdministrator in reply tomissrees

If you read posts regularly you will see that medics seem utterly oblivious to correcting basic nutrient deficiencies

Regularly retest vitamin D, folate, ferritin and B12 and maintain all four of these by supplementing to optimal levels can significantly improve numerous symptoms for everyone, but especially anyone on replacement thyroid hormones

humanbean profile image
humanbean

Ferritin is low - 37 (15.00-300.00) - February 202248 (15-300) - July 2021 - this i had been supplementing with Floradix at that time.

February 2022 --- 37 (15 - 300) Approx 8% of the way through the range

July 2021 --- 48 (15 - 300) Approx 12% of the way through the range

Ferritin is a measure of your iron stores. People also have "free" iron in their bloodstream. This is referred to in testing as just iron or serum iron.

Ferritin and serum iron don't reflect each other most of the time. So, someone with low ferritin can't say "oh my serum iron must be low too" - there is no way to know without actually testing serum iron.

Every combination of low, mid-range, or high can occur with ferritin and serum iron, and different combinations can tell you different things about your health. You might find this of interest :

irondisorders.org/wp-conten...

Some other links you might find helpful :

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

missrees profile image
missrees

thanks everyone - i'll book in an iron panel test first thing then.

SlowDragon profile image
SlowDragonAdministrator in reply tomissrees

To test iron levels you should, ideally

Stop any iron supplements a week before test

Test early morning fasting

Don’t eat a steak, or lots of red meat the night before test

bagpuss61 profile image
bagpuss61

otherwise, check magnesium and potassium levels...

Ellie-Louise profile image
Ellie-Louise

The only way I have ever been able to stop my restless legs…and last nights legs and arms were so bad, that the cat got up and left me to it (I have to wait as long as I can because I take my Levo before bed) is to take 2 magnesium capsules. That stops it in its tracks and I can finally get some sleep.

SarahJane1471 profile image
SarahJane1471

Magnesium Glycinate at teatime and Levo has stopped my lifelong RLS since July last year 🤷‍♀️

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