I’ve just received my medical records and have found out my anti body levels,from a letter,from the endocrinologist to my gp from when I was first diagnosed with hyperthyroidism.
I would be grateful for any advice given.
Anti TPO 971.8U/ml
TRAb 6.9U/L
As this was just stated in a letter to my GP there’s no reference range,he does comment that the Anti TPO was strongly positive though,not really too sure why a copy of the results isn’t in my records either.
Presumably the Trab 6.9 was positive for Graves’ disease Do you have the range for the results
Very High TPO antibodies usually suggests Hashimoto’s
It’s possible to have both Hashimoto’s and Graves’ disease at the same time
As you had RAI this zapped your thyroid out you’re on levothyroxine
Have you had coeliac blood test done
Once you have had coeliac blood test, assuming test is negative it’s still always worth trying strictly gluten free diet 3-6 months see if it helps
There was no range as it was just stated in a letter,I’ve tested negative for coeliac,these were my anti body results from when I was first diagnosed back in 2018.My most recent bloods were put on here on another post.
Your original antibodies tests probably show you had Graves’ disease and Hashimoto’s together
Graves antibodies- Trab are high
Looking at your recent Medichecks results
healthunlocked.com/thyroidu...
Have you had dose increase in levothyroxine to 100mcg daily while waiting to see endocrinologist
Despite negative coeliac blood test it’s always worth trying strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.
If no obvious improvement, reintroduce gluten see if symptoms get worse.
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
ncbi.nlm.nih.gov/pubmed/300...
The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
No I’ve had no increase in dose of levothyroxine,waiting to see what he says🙄I can assure you it will be a lengthy consultation!
How long until consultation
Suggest you consider trying strictly gluten free diet now
6th of April,I’ve been on a gluten free diet and in the beginning I saw a slight improvement but then I started feeling crap again😏🤷♀️
Keep going
Meanwhile working on improving vitamin levels too
Retest thyroid levels just before test
Monitor My Health Is cheapest at £26.10
Test early morning, ideally before 9am and last dose levothyroxine 24 hours before test
Hospital record are help separately . so if it was a endo who ordered the TRab and TPOab tests then the record of them will be in hospital records not GP records.
But even without seeing the ranges that TRab looks like a positive ... from memory i think the TRab range is usually about under 1 ish ..... so 6 is definitely a positive for Graves causing the hyperthyroidism.
The reason for the 'strongly positive TPOab' comment ? might be because even though it is not at all unusual for them to find a mildly positive level of TPOab 's in some Graves patients ... anything over about 500 ish is usually considered a 'strong positive' for indicating hashimoto's ... so perhaps at that time you actually had hashi's and graves , but the graves was 'winning' at that point in time ?
TPOab ranges are usually something like [0-34]or [0-50] ish.
Oh really I didn’t know that,I’ll need to look into obtaining a copy of my hospital records.I just wanted some advice before seeing him on the 6th of April as I was never told I had an auto immune condition,only that I was hyperthyroid.
Do you think it was wise to give me radio iodine treatment if I possibly had hashimotos too?
Autoimmune Hyperthyroidism (Graves) needs to be dealt with one way or another if it doesn't go into remission..... whether or not there was evidence of hashimotos doesn't change that, and i don't think it makes any difference to whether RAI was the best option to use at the time.
The options of thyroidectomy , RAI ,or long term antithyroid drugs would still be the same regardless of having hashi's .
Note, i don't say you definitely did have hashimoto's at the same time... i don't know for sure how your TPOab levels relate to having graves... i have read that a % of graves patient do have some TPOab ...... (and a % of hashimoto's patients do have some TRab .... and a lot of people never find out what other antibodies they 've got unless an endo tests all of them ~ There are at least 4 ~ TPOab . TGab , TRab (stimualting ones) TRab (blocking ones)
For a better understanding of antibodies and autoimmunity see this article "the spectrum of thyroid autoimmunity"
thyroidpatients.ca/2020/04/...
and look at some of the other articles about graves and autoimmunity under 'resources' from this brilliant canadian thyroid patients site written by Tania S Smith.
Thank you🙏
Anti body levels
Anti-thyroglobulin antibodies
Hashimoto - how to bring persistently high Anti-TPO level down?
High levels of Anti-Tpo
Significance of Anti-TPO as an Early Predictive Marker in Thyroid Disease
