Advice please: HELP PLEASE ADVISE I have no... - Thyroid UK

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Advice please

sunsation1 profile image
15 Replies

HELP PLEASE ADVISE

I have no thyroid

Latest Monitor my Health results please advise my dose was dropped in January from 150mgs to 125mcgs of Levothyroxine in dropping my dose my Ft3 has gone down to 4.9 when 4 weeks ago it was 5.5 also Ft4 levels in Jan were only 22.7 now they are 26.1 whats happening to me. I did test before 9.00am no meds before or coffee only water.

22/02/2022

Please note, TSH is the most important parameter when considering e=cacy of thyroid hormone

replacement. A decision to change treatment is based upon both laboratory test and clinical

considerations and should be made only in consultation with your healthcare provider.

TRIODOTHYRONINE

22/02/2022

4.9 pmol/L

FT3 levels normal (normal range 3.1 - 6.8 pmol/L)

THYROXINE

22/02/2022

26.1 pmol/L

FT4 levels high (normal range 12 - 22 pmol/L)

THYROID STIMULATING HORMONE

22/02/2022

1.22 mu/L

TSH levels normal (normal range 0.27 - 4.2 mU/L)

Overall comment

23/01/2022

Please note, TSH is the most important parameter when considering e=cacy of thyroid hormone

replacement. A decision to change treatment is based upon both laboratory test and clinical

considerations and should be made only in consultation with your healthcare provider.

TRIODOTHYRONINE

23/01/2022

5.5 pmol/L

FT3 levels normal (normal range 3.1 - 6.8 pmol/L)Menu26.

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sunsation1
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15 Replies
SlowDragon profile image
SlowDragonAdministrator

Essential to test vitamin D, folate, ferritin and B12

When were these last tested

What vitamin supplements are you currently taking

Looking at previous posts

3 months ago TSH was far too high and dose increased by 25mcg to 150mcg

Serum TSH level 7.1 mIU/L [0.3 - 5.5]

Above high reference limit

Serum free T4 level 18.2 pmol/L [10.0 - 22.0]

Report Date: 22 Nov 2021

Gp has upped dose by 25mgs from today

GP shouldn’t be messing around with dose every month

Comparing Ft4 and Ft3 in Jan and Feb

Ft4 now is very slightly high…..but Ft3 is dropping

This could be due to low vitamin levels

Low vitamins leads to poor conversion of Ft4 to Ft3

Reducing dose levothyroxine tends to lower vitamin levels

sunsation1 profile image
sunsation1 in reply to SlowDragon

I am having b12 vit d and ferratin and folate tested Monday next week im not taking any supplements at mo as want true reading on tests on Monday

sunsation1 profile image
sunsation1 in reply to SlowDragon

Please can you advise on following results

Vitamin D normal 129.8nmol/L

Serum folate 4.4 ng/L 2-1 26-8

Serum ferratin 52ng/L 12-150

B12 531ng/L 197-771

SeasideSusie profile image
SeasideSusieRemembering in reply to sunsation1

Vitamin D normal 129.8nmol/L

This is a good result. Are you supplementing?

Serum folate 4.4 ng/L 2-1 26-8

This is low. Folate is recommended to be at least half wayt hrough range which would be 14.5 plus with that range. Eating folate rich foods and supplementing with good quality B Complex will help.

Serum ferratin 52ng/L 12-150

This is on the low side, ferritin is recommended to be half way through range so around 81 with that range. You can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in your diet

bda.uk.com/resource/iron-ri...

everydayhealth.com/pictures...

Don't consider taking an iron supplement unless you do an iron panel, if you already have a decent level of serum iron and a good saturation percentage then taking iron tablets can push your iron level even higher, too much iron is as bad as too little.

B12 531ng/L 197-771 (ng/L is the same as pg/ml)

This isn't too bad although according to an extract from the book, "Could it be B12?" by Sally M. Pacholok:

"We believe that the 'normal' serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml because deficiencies begin to appear in the cerebrospinal fluid below 550".

"For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml."

The B Complex will help raise your B12 level as well as folate.

I have used Thorne Basic B for a long time and always been happy. However, it's quite expensive so I have bought some of this one to try when I've finished the last of my Thorne. The amounts of the vitamins are very similar, it's liposomal which is said to absorb better, there are no unnecessary added ingredients and better priced:

amazon.co.uk/Liposomal-Vita...

If you look at different brands then look for the words "bioavailable" or "bioactive" and ensure they contain methylcobalamin (not cyanocobalamin) and methylfolate (not folic acid). Avoid any that contain Vit C as this stops the body from using the B12. Vit C and B12 need to be taken 2 hours apart.

Also, for regular daily use it's recommended to take no more than 10mg B6 so check that as well.

When taking a B Complex we should leave this off for 3-7 days before any blood test because it contains biotin and this gives false results when biotin is used in the testing procedure (which most labs do).

sunsation1 profile image
sunsation1 in reply to SeasideSusie

Thank you im vegan so will consider a low dose iron supplement and methyl folate

SeasideSusie profile image
SeasideSusieRemembering in reply to sunsation1

sunsation1

im vegan so will consider a low dose iron supplement and methyl folate

You would be better doing an iron panel test before taking an iron supplement for the reasons I mentioned above. If you don't do that then I suggest you just increase your iron rich foods for now to see if that helps but I would seriously consider doing an iron panel, Medichecks to a home iron test which includes serum iron, transferrin saturation, TIBC and ferritin.

Don't supplement just methylfolate, you need all the B vitamins to keep them balanced so use a B Complex.

sunsation1 profile image
sunsation1 in reply to SeasideSusie

Wont that make my b12 way higher then it already is

SeasideSusie profile image
SeasideSusieRemembering in reply to sunsation1

There is plenty of room for your B12 to improve, have another look at what I wrote in my previous reply. If you go for a good quality B Complex like Thorne Basic B then there will be about 400mcg methylcobalamin B12 and about 20% of a B12 supplement is absorbed. That shouldn't take your B12 level too high, even if it did then any excess would be excreted. It's important to keep all the B vitamins balanced.

sunsation1 profile image
sunsation1 in reply to SeasideSusie

Thank you so much

pennyannie profile image
pennyannie

Hello again ;

I too haven't a thyroid and through trial and error I now know i feel at my best with optimal levels of ferritin at around 100 : folate at around 20 : serum B12 at around 500++ - and vitamin D at around 100 :

sunsation1 profile image
sunsation1 in reply to pennyannie

What can I take to get ultimate levels

pennyannie profile image
pennyannie in reply to sunsation1

I can't do cut and paste - so suggest you look at replies from SeasideSusie and SlowDragon on vitamin and minerals supplement and suggestions, and no diubt SD will come along anyway as you replied to her so she will have been notified of your results>

I have just jumped in - as I remember replying to you ages ago:

From memory your vegetarian aren't you ?

sunsation1 profile image
sunsation1 in reply to pennyannie

Yes I am

SlowDragon profile image
SlowDragonAdministrator in reply to sunsation1

Come back with new post once you get full iron panel test done

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron (but unlikely if vegan)

Medichecks iron panel test

medichecks.com/products/iro...

Before considering adding T3 you need vitamin D, folate, ferritin and B12 optimal

So you currently have 2 out of 4 at good levels

Vitamin D at least around 100nmol

B12 at least over 500

So improving folate by taking daily vitamin B complex

And improving ferritin to at least around way through range

sunsation1 profile image
sunsation1 in reply to SlowDragon

Thank you I will do plus I guess I need my t4 to drop to normal range on levothyroxine too as dose only dropped on the 19th jan

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