I need to find a new private endo as my current one is finding it difficult to give appointments at the moment as I think he is unwell. I can't get astraight answer from secretary.
I am currently taking T3 and T4 at the moment, but he is finding it hard to get them up to a satisfactory level without me palpatations, my TSH is vey low. I am also taking iron supplements. It is important for me to keep my thyroid levels checked as last year I had an attempt at sucide that very nearly worked a month later my t4 although treated by gp was found to be 10ish and I was told it only needed to be checked annually. Also my current consultant says my long term uti is maybe caused by low thyroid levels, I have been taking antibiotics for 10 years for them. He has also put my on low dose of hrt to help with that.
Altough not cured I was feeling I was on the right track and was hopeful for the first time in years. So I am dissappointed that this has happened.
Although I know you can't name names on ths forum, it would be really helpful if people could point me inthe right direction and tell me about their experiences, putting the name of consultant in PM. I live in Sussex but am happy to travel as this is realy important to me.
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judybee
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How much levothyroxine and how much T3 are you currently taking
Do you split T3 into 2-3 smaller doses through the day
Do you always get same brand levothyroxine at each prescription….which brand
Have you tried splitting levothyroxine dose into 2 smaller doses through the day
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or T3
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.
In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
On T3 or NDT - day before test split daily dose into 3 smaller doses, spread through the day at approx 8 hour intervals, taking last dose 8-12 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Hi Judybee. I see an excellent endo in Sussex. He prescribes T4/T3 combo. Very patient, lovely manner. Doesn’t mind knowledgable patients. Listens and seems to know what he is talking about. I’ll PM you his details.
You have some good advice on thyroid stuff, but I would like to share my experiences of repeat UTI’s. Long before I was diagnosed as hypo, I was taking antibiotics on and off for 20 years. It got to the stage where my GP used to just give me a repeat prescription and I could self dose as necessary.
Eventually attitude towards antibiotics changed and I needed something else, as my current GP wanted me to have a full blown urine infection every time I got a prescription for antibiotics. Bearing in mind how uncomfortable this is and long-term the damage that would’ve done, I decided to go on the hunt and I found D-Mannose.
There are numerous testimonials on YouTube from women who use this, either as a powder, pill or a capsule.
The first batch of d-mannose I got was infeasibly large horse pills which were difficult to swallow, but then I found some capsules that were much better - you can also buy it as a powder but I’ve never tried that. For me it was life changing, but I think also getting adequately medicated has helped tremendously. I haven’t had antibiotics for about four years now😊👍
I was within range the entire time I was going through dose increases of Levothyroxine to get to my therapeutic dose, which was for me 150 µg. NHS guidelines re dosing for Levothyroxine is (and they are just a guide) a suggested 1.6 µg per kilogram of body weight - I’m nearly 15 stone. 🤭 yes need to work in that 😉
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