Forthcoming doc appointment : Hi everyone, happy... - Thyroid UK

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Forthcoming doc appointment

Jillyb15 profile image
5 Replies

Hi everyone, happy new year!

Haven’t posted for ages as I’ve been okish!

On 100 mcg Levo currently

So last two/three years have had my blood tests for hypo carried out. First year - nice young sounding male doctor says, you’re over medicated (due to TSH numbers) but I doubt you’d be happy if I asked you to reduce your medication? Too right! And things carried onto 2020 when I had my next set of tests. Female doctor this time and she insisted on reducing my Levo, went with is but problems were exacerbated by prescribing TEVA 75 mcg which I don’t get on with and I wrote all over my notes NO TEVA. Eventually got retested and was put back on 100 mcg.

So come December 2021 and more blood tests!

TSH 0.04 (0.35-4.94)

FT4 15.1 (7.5-21.1)

FT3 3.6 (3.8-6.0)

All stand back in amazement FT3 was tested by NHS!

Also Cholesterol was tested

Serum Cholesterol 6.7 mmol/L (3.6-5.0)

HDLC 1.67 mmol/L (>1.2)

I don’t feel too bad in myself, would like a little more energy, and to sleep better. Have managed to lose weight over the past 10 months and remove my “pre diabetic” status - which has pleased me. However my results seem to say under medicated I think? But how to persuade the Doc?

Any advice gratefully received xx

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Jillyb15
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greygoose profile image
greygoose

Not just your thyroid results! Your cholesterol level is saying that that FT3 is much, much too low. That is how they used to diagnose thyroid problems, by testing the cholesterol. But, doctors have now forgotten that link.

What is strange is that your TSH is so low with such low Frees - oh, and btw, your FT3 was tested just because your TSH was so low. They test it to prove you're hyper, not hypo.

What time of day was the blood draw? Do you take any biotin?

SlowDragon profile image
SlowDragonAdministrator

Was this test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Results show extremely low Ft3…..

For good conversion of Ft4 to Ft3 we need OPTIMAL vitamin levels

ESSENTIAL to test vitamin D, folate, ferritin and B12 at least annually

As we get older vitamin levels tend to drop as well

What vitamin supplements are you currently taking

When were vitamin levels last tested

SlowDragon profile image
SlowDragonAdministrator

Do you always get same brand levothyroxine at each prescription

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Jillyb15 profile image
Jillyb15

greygoose SlowDragon

Tests carried out at 08:10 with last medication 24 hours earlier and nothing to eat.

Not 100% sure my Levo is always the same brand.

Not taken vitamins for ages and only testing I’ve ever had was through Blue Horizon some time back.

My TSH has been low before, but they didn’t check FT3.

Thanks info

SlowDragon profile image
SlowDragonAdministrator in reply toJillyb15

Recommend getting full thyroid and vitamin testing done as next step

Come back with new post once you get results

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