After a long wait for a referral, I had a perfunctory phone consultation with my NHS endo. I don't know where he was, but the sound quality was terrible, sounded like he was in a wind tunnel. I couldn't get much of a word in, he made it clear the appointment was for him to talk and me to listen. Upshot is he is sending me for tests on my pituitary gland. He wasn't much more forthcoming than that. I said the Neuro I had seen had suggested an MRI, so did he mean that sort of test, and was told no. Just thought I would share!
Had my NHS endo appointment, he is thinking Pit... - Thyroid UK
Had my NHS endo appointment, he is thinking Pituitary
Looking at previous post
healthunlocked.com/thyroidu...
GP/endo should be increasing levothyroxine dose to 75mcg per day
Retest thyroid in 6-8 weeks after each dose increase
Private endo recommended that increase, and wrote to my GP accordingly. NHS endo disagreed it is a thyroid issue (said the low FT4 in both tests was not a concern), and thinks it is more likely to be my pituitary that needs testing.
As vegetarian you will need vitamin B complex and a separate daily B12
Remember to stop taking vitamin B complex a week before all blood tests. Can take separate folate during that week
What’s GP/endo done about very low iron levels
Have you been prescribed iron supplements
No, I can't get a GP appointment for months at the moment. So I am taking supplements for B12, B complex and iron.
I bought a load of Levo back from Turkey to last me a few months. I'm hoping my GP will start prescribing it for me at some point so that I don't have to worry about running out, but the Turkish meds cost me around 80p a pack, so they certainly won't break the bank.
Hopefully the Endo you spoke to is conversant with pituitary/adrenal issues as many of them aren't? Were you able to ask to be copies into the GP's letter? If not I would call the department & ask that you are sent a copy of the letter to find out what tests he plans doing.