Hi, I’m not sure what these episodes are but would appreciate if anyone can help though I’m thinking they’re linked to thyroid.
Before I was diagnosed with graves when on holiday I had an episode after eating prawns, which I might add eat all the time, I started to sweat profusely, had tingling, didn’t want to speak, irritable, could not stand on my own, feeling sick with diarrhoea, and legs and body felt like jelly., faster heart rate. This was abroad. I had two of these in this country after eating pasta, no prawns , and with alcohol. This last time I had relapsed with hyperthyroidism after coming off Carbimazole to see if ok but had not long been back on 10mgs Carbimazole. Can anyone help please, still feeling awful.thanks.
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Sunny70
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I have looked at your page but there's no history of your journey to be diagnosed. I would suggest you copy/paste the last paragraph above into your page as it gives members an idea of your condition without you having to repeat before getting responses.
It does seem that you've had a reaction/sensitivity to prawns.or pasta.
At present make sure you are well-hydrated and drink plenty of water.
I hope you feel better soon.
p.s. I am not medically qualified but had to diagnose myself after GP phoned to say I had no problems. He didn't notice a high TSH of 100
Sorry, I’ll have a look on where to put it though not very good at these things!Oh dear That’s terrible for a GP missing that, doesn’t give anyone much confidence in them, hope you are well now.
I am fortunate I am well and that's because I'm on thyroid hormone replacement that suits my body and removes my horrible symptoms.
It is also thanks to Thyroiduk.org.uk who is the organisation behind this Healthunlocked. It was set up by a woman who couldn't recover and the shed in her garden became Thyroiduk.org.uk.
When people react to pasta it’s usually the gluten.
Even when tests show negative for celiac, gluten can be the cause of issues. Test for celiac should be done whilst on a gluten diet. Then even if negative for celiac trialing gluten free may show improvements. It’s an all or nothing scenario. Any trace of gluten can cause reaction.
Many Graves suffers improve when gluten removed from diet and have a gluten intolerance. Many also report it reduces the levels of antibodies.
As for prawns they notorious for causing poisoning and can harbour toxins. The tingling is a particular sign of it, especially if it was you face / lips or fingers & toes.
If you had been eating more seafood and vastly different diet than usual being on holiday there is a potential of iodine overload. This would worsen Graves although it would be of a result of excessive consumption of iodine rich sources.
Thank PurpleNails, I did wonder when I had tingling and it was in my lips and was I’ll the whole of my holiday. I will ask for a test for gluten/coeliac but will probably have a fight to get it done by GP! I’m trying to keep iodine levels lower in case it’s affecting me. Many thanks.
If positive you have a strong argument for GP to repeat unless GP accepts private result. (Depends on GP).
If result is negative still consider trialing strictly gluten free diet to see if there is an intolerance (which a test would not detect). If after a few months or so no improvement try to reintroduce.
Just to let you know that I did a home testing kit for Celiac earlier this year which was negative. Since seeing my Private Endocrinologist in August, he asked for my GP to test for celiac and a full iron profile. My celiac result came back with an over the range result, and I am currently waiting for an endoscopy to confirm it.
That’s interesting, I’m waiting on blood results as relapsed of meds and don’t think I’m on right dose so when I speak with endo I’ll certainly ask re getting tested along with others like B12 etc. Thanks for your help.
I also had a full iron profile blood test requested by my private Endocrinologist too and I have very low iron and have been put on iron 3 times a day. I am on liquid iron as I was worried about absorption issues with celiac and also I have pernicious anemia too. Apparently my iron levels have been dropping since 2013 but no one bothered to let me know
My iron is low and I’m on Ferrous Fumerate but not sure if it’s helping. I’m going to ask for B12 to be tested though although no one has ever mentioned it except for others in here so why not? You’d hope if it affects you they’d do every test possible!
I won't find out if my iron levels have gone up until my blood test next month when I have been taking my iron for 3 months. Unfortunately the Doctors are not interested in offering other tests and looking at the bigger picture of our autoimmune conditions. It's a sorry state of affairs when we know more than they do
Yep it’s not good, they’re supposed to be a caring profession and how things have changed! I worked for GP’s for 19 years and things are certainly not the same now unfortunately. Good luck with everything.
I hope things work out for you but many of us who have one autoimmune disease can develop others. I hope not too many on this forum. It's bad enough having one, without developing others.
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