Having reached a stage where I need help with T3 I am horrified that nothing has changed in the 25 years I have been 'fighting' for my own health with thyroid issues. I did at one time by going to Belgium get prescribed NDT Armour and ERFA but it did not agree with me at all. However, now my thyroid has completely gone with the autoimmune attack it has endured for so many years - I now once again are unable to get old of T3 via the NHS - it is a disgrace. I am not responding to T4 only any longer - I am making contact with Sajid Javid's office and would ask that anyone who has any 'stories' to tell - if permission granted by the moderators you post them on here or to me personally - I am also making an appointment with my local MP - and will take these 'stories' with me - so would need your permission to circulate them to those in 'higher places' - I will also be contacting the British Thyroid Society or whatever they are called - as I hear from my endo who said she cannot prescribe this medication that the companies who were profiteering have just been fined £100,000,000 - so will this bring the price down? I have just been in touch with Belgium and the pharmacy I used to use charge 10 Euros only for T3 30 tablets. It is outrageous that we are being 'used' like this by the authorities who should be protecting us and by endo's not fighting for us.
My other half has just looked up the data re the fine - and Advanz were fined back in 2017 - not just recently - they went from £20 for 30 tablets to £248 for 30 tablets in 2017 - so someone is pulling the wool over our eyes - the consultant is saying it is the GP and the GP is saying its the consultant - I am so cross that I intend hammering away at everyone I can until this gets sorted out it is outrageous. The endo is willing to help me if I buy them but can't prescribe - how ridiculous a situation is that.
There is a petition on the parliament website that should be signed if we are serious about getting something to change.
Anyone any more ideas please let me know - I am on a mission now.