Feeling so ill

[sunsation1]

T4 elevated last bloods show everything else in range am fatigued tired body aches and can barely do the basic tasks. Not been able to work for 3 months have been in hospital where 14mm spot found on my left adrenal gland so been referred to endo to have a look at my results am terrified

[SlowDragon Administrator]

Following on from opening post

healthunlocked.com/thyroidu...

So you have no thyroid (complete thyroidectomy)

GP reduced levothyroxine by massive 50mcg after thyroid results that showed TSH at 0.29 and Ft3 well within range

And now your very unwell ….hardly surprising.

Were these vitamin results from before dose was reduced

Ferritin folate and B12 all slightly low

No vitamin D

Likely much lower since dose reduction

What vitamin supplements are you currently taking

Suggest you get retested thyroid and vitamins…..come back with new post once you get results

[sunsation1 in reply to SlowDragon]

Ok will do but won't retest bloods for 6 weeks now

[sunsation1]

No I went into thyrotoxicosis

[SlowDragon Administrator in reply to sunsation1]

So autoimmune Graves’ disease

You might want to consider trialing strictly gluten free diet …if not already gluten free

Before considering trial on gluten free diet get coeliac blood test done FIRST just to rule it out

lloydspharmacy.com/products...

If you test positive for coeliac, will need to remain on gluten rich diet until endoscopy (officially 6 weeks wait)

If result is negative can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.

If no obvious improvement, reintroduce gluten see if symptoms get worse.

Gluten and Graves’ disease

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

[sunsation1 in reply to SlowDragon]

Was tested for coeliac etc had gastroscopy may 2021

[SlowDragon Administrator in reply to sunsation1]

only 5% thyroid patients are coeliac

majority of thyroid patients are gluten intolerant not coeliac …….The only way to know if that includes you is to try it

But only try one thing at a time

So wait at least 3 months after any major dose change levothyroxine etc

Or adding/stopping any new vitamins

[sunsation1]

Will wait and see

[SlowDragon Administrator in reply to sunsation1]

Have you had vitamin D test results yet

If not get tested

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

[sunsation1 in reply to SlowDragon]

Vit D was 170