From my last post.......I went to see my lovely French Doctor and she went through my results with me. My liver and only kidney are excellent. Fats are excellent. But, Sugar levels are slightly high and told me I should try and cut my sugar out, which I have been doing since Saturday. Everything cooked from scratch and no sugar - well until last night I had some chocolate! Fail.
She has put my Levo up to 75mcg as my thyroid is over 5:4. I have started to take this at night as I have other meds to te during the day for fibromyalgia etc. I started this last Thursday and I feel so poorly. I now get up 3/4 times a night to go to wee and Wake up with a bad stomach ache which I still have in the morning with a horrible headaches. I feel sick all the time and I am always dizzy. I just want to cry I've never felt so ill.
I don't want to go back to see her as she only works 1 day a week and she is the only doctor who speaks English as I now live in France plus it's €23 every time I see her.....which is working out expensive.
Please can you advise me?
Thank you in advance
Ness xxx
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nessakt
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I sympathise with you, it's so upsetting when you feel so ill. Have you only started to feel so unwell since you changed to taking your Levo at night? If that's the case, then I would change back to taking it in the morning. I take a bottle of water to bed and then take mine as soon as I wake up in the morning. That way, by the time I've woken properly, got washed and dressed and made the bed, it's been an hour and I can start taking the rest of my medication. I find that vitamins and other supplements often make me feel yukky so I try to take them with my main meal in the evening and then if I'm feeling yuk, I don't notice as I sleep through it. Hope this helps. Clemmie
I agree with everything Clemmie has said, when I took it (I'm in remission from Graves so I no longer take it) I tried taking my Levo at night and didn't feel so well so I went back to morning - I did it the same way as Clemmie, took it when the alarm went off then by the time I was up and ready for breakfast enough time had gone by.
Have you thought about going totally gluten free? That might help your gut feel better.
Nothing to do with thyroid really but I discovered recently I was T2 diabetic - hopefully a temporary blip caused by steroids I was taking fir three months but I must have been pretty close to the limit to have been pushed over.
Anyway, I discovered the LCHF - low carb high fat way of life - bought myself a blood glucose meter and I test my blood before and after every meal and record everything I eat. By doing that I've discovered that done of the most unlikely - and 'healthy' - foods spike my blood glucose. I have now cut out bread, most potatoes apart from three or four tiny boiled baby new potatoes, jacket potatoes were the worst! I don't really eat any grains at the moment, I'll probably experiment once I've had my next HbA1c done next month but I don't want to do it before then.
I've also lost 10kg because the excess sugar from carbs isn't being stored as fat. I am getting my carbs from other sources and having looked at my Fitbit I'm actually eating more carbs than I thought I was but they are just 'better' ( for me) carbs. I have also really upped my exercise.
I have to say gut feels an awful lot better since I went GF, I was taking omeprazole at one point and since going GF, cutting out fizzy drinks and sadly chocolate - but it wasn't just the odd square or two for me - I was fuelling myself with it back then - my body feels better too.
Hope you feel better soon.
PS I also take a good probiotic - one of the ones you need to keep in the fridge - used to be every day but these days it's when I remember. I was better at taking them regularly when I took the 'not so good ' ones that say in their bottle on the dining room table.
Sorry to read that you are not feeling well. What are the drugs you take in the day for your Fibro ? Could they be making you feel poorly ? Do you have copies of your Thyroid test results ? - it could be you have very low FT3 - which may explain your Fibro. Also have you had your thyroid anti-bodies tested ?
In an earlier post of yours I read that someone who lives in France suggested you went to the local Blood Testing Clinic - maybe you have been and have some results you could share.
You need good levels of Folate - B12 - Ferritin for the T4 to convert into the Active thyroid hormone T3 - perhaps your levels are low.
I have Crohns as well as Hashimotos - and for the past few months I have been taking 2000/3000mg VitC before sleep. This calms any fermentation in the gut - and who knows may help you too
If you click onto my name and read my 'edited 'profile you will see that I was once diagnosed with Fibro back in 2000 - Hashi's in 2005 - what a coincidence
I take Naproxan and Co-droxamol from Fibro and have Tramadol handy if i need them which I hate taking and morphine patches.
I'm on prozac as well - not being able to have children and my grandad died, I hit rock bottom.
My blood test were for my sugars, fats blood count, liver and kidney functions and thyroid and that came back 5.43 (if I remember) She went through everything with me. I was coming off my prozac but when back on it as I became dizzy even if I move.
I am totally at a loose end now........I went for blood tests for years and the English GP said I was ok, Its in my head!!! I'm just fat and I need to lose weight. - even though my hair was falling out, I have no eyebrows etc, I put on weight, etc I went to WW and started Slimming world and put on weight!!.
I went to see a Locum and it was him who put me on these and was not happy with the care I got over the years with GP's saying I was making it up! I felt ok-ish when I was on 50mcg and was taking them in the morning. I have lost 19kgs since Ive been taking these from September 2015.
Not boring at all We sometimes need more information to form a picture of WIGO - what is going on ! Just having the TSH tested is far from the whole story. I would suggest you have the TSH - FT4 - FT3 - Anti-TPO - Anti-Tg - the FULL Thyroid profile. Also B12 - Ferritin - Folate - VitD - Iron. Am sure you will be able to have them done at your local Dracula's Den. I live in Crete and pop to the next village where they have a walk-in clinic for blood tests. So look out for one in your area of France.....as mentioned on your earlier thread.
There are more receptors in the brain for T3 than any other part of the body - closely followed by the gut. So when you T3 is low - as I am suspecting - then things begin to go wrong. Like weight gain - low mood and lots of other issues too.
In the past T3 was used to treat low mood but as people realised they could lose weight more readily the treatment was abused and people suffered a few problems with their heart beat. Sadly it is the negative aspect that remains in the memory.
So you really need the FULL profile to understand the workings of your thyroid. Also the T4 will not convert well if your Ferritin - folate - B12 - VitD are low in the range. Also anti-depressants can skew your thyroid results - maybe your TSH is even higher.
Congrats on losing so much weight - that is EPIC
Keep asking questions and eventually everything will fall into place. Have a read of my Profile and you can read about my bumpy ride to wellness.....
A TSH of 5.43 is much too high. When on thyroid hormone replacement our TSH (which is a pituitary hormone, by the way, not a thyroid hormone) should be below one. So, you do need that increase. And, to be honest, there's not much point in getting the Frees done until the TSH comes down - especially if you have to pay for them! 75 mcg is still only a low dose, I would think you're going to need more than that eventually.
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