Help with fatigue and trembling muscles - Thyroid UK

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Help with fatigue and trembling muscles

Holiday12345 profile image
20 Replies

Looking for some help. Had first AZ Vax 10 days ago was well before it but first night got pains in legs and woke up with fatigue trembling muscles all over and ten days later still as bad. If I try to do anything except lie down I’m all wobbly and trembling muscles and extreme exhaustion very weak. Having read some posts here about thyroid and exertion causing similar symptoms I’m wondering if V could have affected thyroid ( I have hashimoto thyroid also). I will speak again to doc next week to try get bloods checked but just trying to think of things that could be causing this hellish problem so when doc says they don’t know 🤦‍♀️…. I can suggest things to check

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Holiday12345 profile image
Holiday12345
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20 Replies
SlowDragon profile image
SlowDragonAdministrator

How much levothyroxine are you currently taking

Looking at previous posts you had dose increase to 75mcg daily 4 months ago

Presumably you have had levels retested since?

Please add most recent results and ranges

Important to regularly retest vitamin D, folate, ferritin and B12

Do you always get same brand levothyroxine at each prescription

Which brand

Approx how much do you weigh in kilo

Guidelines on dose levothyroxine by weight is 1.6mcg per kilo.

Anthea55 profile image
Anthea55

Hi Holiday12345

This seems to me to be side effects of the vaccine. This link gives info about the AZ vaccine and side effects.

gov.uk/government/publicati...

Is your doctor treating this as vaccine side effects? Yours seem to be going on for too long.

There is a poll on here to keep vaccine posts together. You may find other people's experiences there. It's at.

healthunlocked.com/thyroidu...

Would it be useful to call NHS 111?

helvella profile image
helvellaAdministrator in reply toAnthea55

Not just useful, but very sensible.

Holiday12345

Do NOT just delay and hope you will get better.

Call as soon as you can. Like now - whenever it is you read this.

Anthea55 profile image
Anthea55

Further comment - I just googled for '111 NHS covid vaccine'. The vaccine guide leaflet says

'Symptoms following vaccination normally last less than a week. If your symptoms seem to get worse or if you are concerned, call NHS 111.'

I'd do that.

penny profile image
penny

I concur with Helvella; seek treatment immediately (and report to the Yellow Card System). Good luck.

rosco1 profile image
rosco1

Hi Holiday12345, how are you know. I don't mean to scare you but my mum was as well as could be at her age, and 2 weeks after she got her 2nd Vaccine she suffered a Massive Stroke. I'm convinced the Vaccine caused the Stroke, she had no symptoms off feeling ill the day she suffered the stroke. A shock to me that I will never get over. As with the previous reply I would report your symptoms to the Yellow Card System, you'll find the details off it on the leaflet about the Vaccine. Let us know how you get on, hope you feel better soon.

Holiday12345 profile image
Holiday12345 in reply torosco1

I’m being seen by doc this evening, many thanks for your reply. I hope your mum is well on the road to recovery. I had two mini strokes last Christmas completely out the blue and I know the difficulties afterwards.

rosco1 profile image
rosco1 in reply toHoliday12345

Hi Holiday12345That's great to hear that your getting seen by a Doctor, can't be too careful these days.

Sadly my mum passed away a week after she suffered the Stroke, it was too big for her to survive. I feel like I lost part of my body, I miss her so much more so because we lived with each other.

I hope you get some answers and feel better soon. Take Care & Stay Safe

Holiday12345 profile image
Holiday12345 in reply torosco1

Oh I’m so sorry, that’s a dreadful loss for you. Please take care and thank you for replying

Marymary7 profile image
Marymary7 in reply torosco1

So very sorry to hear this. I know how hard it is to lose your Mum suddenly as I did. Please follow advice and get treatment for your side effects and if that was the first jab don't have the second. Big hugs.

Holiday12345 profile image
Holiday12345

Thank you for all your replies I wouldn’t have realised to call 111. Which I did this morning and being seen by out of hours doctor this evening.

helvella profile image
helvellaAdministrator in reply toHoliday12345

So glad that you rang - and thanks for letting us know.

Hope all ends up well.

Peroxideblader profile image
Peroxideblader

I was very ill for 12 weeks after my first az had severe head pain nausea double vision slurred speech I was told by 111 to go to A and E 11 days into the symptoms they were ride and dismissed me for time wasting denied the vaccine caused severe side effects...i had no help at all and only after 12 weeks did I feel better not totally even now and that was 6 months ago...not having the 2nd after this...hope they take you seriously and get help

Holiday12345 profile image
Holiday12345 in reply toPeroxideblader

That sounds dreadful. You’re right not to get second one after that. They’re taking my symptoms seriously but I think because of my previous mini strokes rather than possibly being vax related. I’ve been sent to the Acute assessment unit to be checked out which is thankfully not busy like A&E next door. But I fear they won’t have an answer for the symptoms. I hope you improve soon.

Peroxideblader profile image
Peroxideblader in reply toHoliday12345

I'm so glad you're been listened to. I've had a rough sudden 3 weeks which have all been the same symptoms as cvst the blood clot disorder caused by az I saw a locum doctor through 111 as I was disoriented weak nausea slurred words and after 2 weeks by partner made me see a doctor...dismissed a blood clot almost laughed and said gastric reflux !! Seriously rubbish uninterested and useless...ive changed doctors and will wait to make an appointment

Anthea55 profile image
Anthea55 in reply toPeroxideblader

Glad you've changed doctors. Can you report the rude / useless one to his practice manager, explaining why you have changed to another doctor? He needs to be told off.

greenfingers profile image
greenfingers

You should report it on the Yellow Card system so when they finish the experimental trials in 2023/25 it will be noted.

helvella profile image
helvellaAdministrator in reply togreenfingers

Agreed;

If you have, or think you might have, a side effect of a medicine or vaccine that is related to Covid-19/Coronavirus, please consider putting in a Yellow Card report. Whilst I frequently suggest Yellow Card reports, there is a specific page which appears appropriate when it is related:

Coronavirus Yellow Card reporting site

Report suspected side effects to medicines, vaccines or medical device and diagnostic adverse incidents used in coronavirus treatment to the Medicines and Healthcare products Regulatory Agency to ensure safe and effective use

coronavirus-yellowcard.mhra...

bognorr profile image
bognorr

I 'm 80 and 9 days after second jab I had a big painful swollen knot of veins at my right knee, my friend, lady of 82 had bad reaction to second jab and had to have antibiotics, and my handyman of 48 had a nighttime seizure after his, lasting 4 to 5 hours, so there are a variety of reactions.Google if you are housebound and see doc or ring up helpline if you can.

Many adverse incidents seem to occur, which, with GPs in difficult to access lock-down, go unreported.

Holiday12345 profile image
Holiday12345

I got sent to the Acute Assessment Unit where they did lots of tests (to get 3 day heart trace next week) and doc actually said it’s a direct result of the vax. They said it should start to ease off now (but I’m not entirely certain they know for sure 🤦‍♀️). I just hope I’m not left with these symptoms long term. Thank you for your replies I wouldn’t have thought to phone 111

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