T3 in Uk: Hello everyone.. Gloria from uk here. I... - Thyroid UK

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T3 in Uk

Incontinenta44 profile image
6 Replies

Hello everyone.. Gloria from uk here. I would like to try t3 but my doctor says no? I even tricked them into testing my t3. They said it was normal? Here in the uk it is impossible to get past the red tape.

No one in the medical profession will help me?? Unless I go private.

I was diagnosed twenty five years ago and suffer from tiredness aching limbs etc .. cannot lose weight no matter what I do?

I go to the gym and follow a program

And swim for 45 minutes.. I walk a couple of times a week about 7-9 miles ( Devon is very hilly!!)

I have other health issues probably related but don’t want to come across as a hypochondriac 😂

Any advice would be greatly appreciated. I hope I haven’t gone on too much😱😱

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Incontinenta44
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6 Replies
Lalatoot profile image
Lalatoot

Gloria in the UK an NHS endocrinologist has to prescribe t3 in the first instance. It cant be started by a GP.Best way to start is to put your latest blood results and their ranges on here. Also any vitamin tests

Plus your current dose of levo.

Folks will try to help

fuchsia-pink profile image
fuchsia-pink

Welcome to the forum.

It's certainly possible to get lio on the NHS - I do for one - but I admit it's not straightforward. As Lalatoot says, it can only be prescribed by an endo initially - and not many will. You will need to prove you are a "poor converter" - so it would be helpful to see your latest blood results, together with the lab ranges, which vary from lab to lab, to help further x

SlowDragon profile image
SlowDragonAdministrator

First step is to get FULL thyroid and vitamin testing done

Please add these recent results

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Have you had thyroid antibodies tested

Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Request GP test vitamin levels and thyroid antibodies if not been tested

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

Email Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3

NHS and Private

tukadmin@thyroiduk.org

The aim of levothyroxine is to increase dose upwards in 25mcg steps until TSH is ALWAYS under 2

When adequately treated, TSH will often be well below one. Most important results are ALWAYS Ft3 followed by Ft4.

When adequately treated Ft4 is usually in top third of range and Ft3 at least 60% through range (regardless of how low TSH is)

Extremely important to have optimal vitamin levels too as this helps reduce symptoms and improve how levothyroxine works

T3 can only be initially prescribed on nhs by endocrinologist

radd profile image
radd

Incontinenta44,

Welcome to our forum,

Even going private isn’t a guarantee of a T3 prescription. And if you manage one, the ongoing costs are enormous as you incur prescription costs and the ongoing consultation fees. If endo asks NHS GP to take over care, many are refusing, and any T3 prescribed on the NHS always risks suddenly being withdrawn by the local CCG.

If you are medicating Levothyroxine there are steps you can take to try improving conversion which help many members, before they consider adding T3. If you post any recent test results complete with ranges (numbers in brackets), members will comment on what they think is going on with your meds & hypothyroid condition.

JAmanda profile image
JAmanda

I get 25 T3 daily from NHS KINGSTON - lots of people get it on nhs but it has to be from an Endocrinologist. Pile on the agony to your doc that you can’t cope any more and desperately need to see an Endo - say it’s affecting your relationships and ability to work etc! Thyroid U.K. has a list of good Endo’s I think.

But also… shh… I buy T3 online and add a further 7.5 daily.

I don’t spend a fortune and do minimal Medichecks tests to ensure I’m not over ranges.

I wasn’t well till I got my T3 over six. I the past weeks I’ve been going out in the evenings - it’s a miracle!

TaraJR profile image
TaraJR

Incontinenta44 as you live in Devon, you may like to join DEVON UK Thyroid Support on Facebook. Over 100 people on the group now, sharing experiences, and looking at ways to support each other.

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