Got test results, but I don't understand them - Thyroid UK

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Got test results, but I don't understand them

Loonyloon profile image
8 Replies

Hi there, I recieved my test results but need some help understanding them? My gp is currently unavailable to talk to him about it all 🙄.

I've been experiencing many symptoms of hypothyroid, but was told that my TSH wasn't high enough.

Gp decided to test other avenues.

My symptoms are

Exhaustion

Mental fatigue

Dry flaky skin

Acne

Joint pain (knee joints are inflamed)

Ankles swell easily

Weight gain

Hair loss (brittle, breaks easy)

IBS symptoms

Have severe depression (already medicated 100mg sertraline)

I've attached photos of my results with ranges ( first time I've recieved ranges 😏, in previous print outs they wasn't provided)

Asked for FT3, but lab didn't test, even tho Gp authorised so I wasn't impressed.

Any help would be appreciated.

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SeasideSusie profile image
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Loonyloon

You're obviously hypothyroid because previous posts show 2 over range TSH results with low in range FT4. This is subclinical hypothyroidism.

Your GP can give you a trial of Levo, remind him of the NICE guidelines:

nice.org.uk/guidance/ng145/...

Treating subclinical hypothyroidism

....

1.5.4 Consider a 6-month trial of levothyroxine for adults under 65 with subclinical hypothyroidism who have:

* a TSH above the reference range but lower than 10 mlU/litre on 2 separate occasions 3 months apart, and

* symptoms of hypothyroidism.

If symptoms do not improve after starting levothyroxine, re-measure TSH and if the level remains raised, adjust the dose. If symptoms persist when serum TSH is within the reference range, consider stopping levothyroxine and follow the recommendations on monitoring untreated subclinical hypothyroidism and monitoring after stopping treatment.

In some countries you would be diagnosed with hypothyroidism when TSH goes over 3, the NHS sadistically generally makes us wait until it goes over 10. Use the guideline above to request a trial of Levo, you met the criteria previously despite you latest test being within range so there was no reason not to offer you a trial back then.

SlowDragon profile image
SlowDragonAdministrator

Results show high Red blood cell distribution width

This strongly suggests low iron or B vitamins

healthline.com/health/rdw-b...

High results

If your RDW is too high, it could be an indication of a nutrient deficiency, such as a deficiency of iron, folate, or vitamin B-12.

These results could also indicate macrocytic anemia, when your body doesn’t produce enough normal red blood cells, and the cells it does produce are larger than normal. This can be due to a deficiency of folate or vitamin B-12.

Additionally, you may have microcytic anemia, which is deficiency of normal red blood cells, and your red blood cells will be smaller than normal. Iron deficiency anemia is a common cause of microcytic anemia.

When hypothyroid we frequently have low vitamin levels due to low stomach acid leading to poor nutrient absorption and low vitamin levels as direct result

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

See GP and request B12, folate, ferritin and vitamin D are tested along with thyroid antibodies

Prolactin is high (just within range.) high prolactin common with autoimmune thyroid disease

Request ultrasound scan of thyroid too

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

Loonyloon profile image
Loonyloon

I'm hoping I can persuade him. Atm I just keep getting the same reply that its not hypo 🙄, which makes me feel like a hypochondriac xx

Loonyloon profile image
Loonyloon

Hi, just to update, managed to see Gp this morning. Was able to persuade him to put me on lethyroxine, only 25mg for a month, but its a start at least 🤷‍♀️ He said that he was reluctant as its a live time commitment, but as my t4 levels have been declining over the past three blood test he would. He wants to see me in a month's time. Also said he would refer me to a endocrinologist, tho what should I expect? Hoping I can finally be on the mend after years of misery.

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