Evidence to show my gp regarding autoimmune thy... - Thyroid UK

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Evidence to show my gp regarding autoimmune thyroid disease

Macey2009 profile image
6 Replies

Hi

Is anyone aware of any articles written to confirm the presence of tpo antibodies confirming autoimmune thyroid disease?

I am not diagnosed yet and have been told the antibodies just mean it's likely in future i would develop it.

When i google search i can only find articles about the antibodies meaning it's the cause of hypothyroidism.

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Macey2009
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SlowDragon profile image
SlowDragonAdministrator

Most GP’s won’t consider there’s a problem until TSH rises

Extremely important to regularly retest vitamin D, folate, ferritin and B12 at least annually

Last vitamin tests on your profile

March 2020

Ferratin 82 (13-150)

VIT d 92 (50-175)

VIT b12 464

Tsh 3.52

T4 18.3

T3 5.09

Tpo antibodies 85 <34

TG ANTIBODIES 90 <115

B12 on low side

No folate result

Suggest you request GP test B12 and folate

Plus coeliac blood test if not been tested yet

Macey2009 profile image
Macey2009 in reply toSlowDragon

Had coeliac test and it's negative. Oh ok. That's kind of annoying

I wonder why that is 🙄

SlowDragon profile image
SlowDragonAdministrator in reply toMacey2009

So you have high antibodies this is known by medics here in UK as autoimmune thyroid disease.

Technically it’s Hashimoto's (with goitre) or Ord’s thyroiditis (no goitre). Both variants are autoimmune and more commonly just called Hashimoto’s

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist only 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal

As your coeliac result is negative you can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits.

If no obvious improvement, reintroduce gluten see if symptoms get worse.

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

hypothyroidmom.com/how-to-l...

Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.

Macey2009 profile image
Macey2009 in reply toSlowDragon

THanks for all the info. I just wish the gp would acknowledge the antibodies as hashis.

SlowDragon profile image
SlowDragonAdministrator in reply toMacey2009

They never ever call it Hashimoto’s…only autoimmune thyroid disease and usually ignore the autoimmune aspect

And until TSH is over 5 or Ft4 below bottom of range won’t normally start any levothyroxine

See flow charts on here

gp-update.co.uk/Latest-Upda...

Regularly retesting vitamins and maintaining all four at OPTIMAL levels can help reduce symptoms and may get TSH higher so that you can start on replacement thyroid hormones

Low vitamin levels tend to lower TSH

Macey2009 profile image
Macey2009 in reply toSlowDragon

Yes it was autoimmune thyroid disease that was referenced. My next test is booked for 3rd of August.

I will post results then.

Test is 8.10am

Previous 2 tests have been 8.15

I know to have water only and to stop vitamins containing biotin 7 days prior 😊

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