Endo letter to GP....

[highcliffe]

ffs.... Well, as expected and yes I do wonder why I went to see the endo..... but anyhow the letter to my GP rounding up my visit ......Endo has not mentioned in her letter to the GP the fact that some people are not suited/feel unwell on Levo... (although mentioned three times in front of my friend and myself) but has mentioned, guess what, depression and now a new one...... chronic fatigue... (as a lot of my symptoms are similiar to those that have depression - but as I said they are also signs of not being well on Lev. - which was ignored) and has referred me back to the GP so that they consider her musings and clinical thinking and whether GP wishes to pursue with me an emotional component to my symptoms...............what now I ask?

She said she realised that I went looking for answers but she was sorry that she was unable to give any...

If I wasn't depressed before I am slowly getting there.... what now I ask......am currently signed off of work with SSP due to end at the end of the month....what happens to me now?

[highcliffe]

am soooo thinking about it

[Clutter in reply to highcliffe]

Highcliffe, your last results didn't indicate undermedication. Levothyroxine only made me ill but adding T3 calmed down the adverse effects of T4 only. It doesn't sound as though your endo will recommend it to your GP so you might have to consider self medicating T3. If you do, you need to reduce your T4 by 37.5mcg for every 12.5mcg T3 you add to avoid overmedication.

[highcliffe]

Hi Clutter....how are you? Yup, the visit went just as both my GP and I thought it would. The endo didn't think I would need T3 and I don't understand anything anymore! She did say that although the results showed everything as normal and as it should be it didn't mean to say that it was getting to the cell level and that without doing a cell biopsy we wouldn't know....

I will be seeing the supportive GP and having a conflab with her. Meanwhile the SSP runs out end of the month so will have to go onto ESA...so worried at where I will end up... saw my boss - who is very understanding but they need staff.....

[Fruitandnutcase]

Why don't you contact the endorsement and say you've seen her letter to you GP and you think she must have you mixed up with another patient then outline what she discussed with you and your friend. You might not get anywhere but at least you'd get the satisfaction of telling her what you think. Did you tell the GP that the letter wasn't exactly a true reflection of your endorsement visit?

[highcliffe in reply to Fruitandnutcase]

Morning.... am due to make an appointment with the GP. GP did suggest going private but in her reflection said that he probably wouldn't be able to help me either........

[linda65 in reply to highcliffe]

I saw the Endo in March this year who I saw in January last year and he has completely changed his tune. Last year he supported T3, this year he is totally against it. The price for NHS prescriptions has rocketed in the last 12 months. Mine now cost £306 per month and last year were £157 per month for same dose. Perhaps there is a connection!!!!!

[highcliffe in reply to linda65]

hello Linda ... well what can we say.... nothing...its what we expected... what happens if you are on prescriptive T3 and then they decide to withdraw the free script? Are we being forced to pay? I know that I couldn't so I am guessing its back to Levo. then

[linda65 in reply to highcliffe]

Surgery have not withdrawn my script for T3, but are now refusing an appointment. I think they hope I will change surgeries...but I won't x

[highcliffe in reply to linda65]

can a surgery do that? surely that can't be right...

[linda65 in reply to highcliffe]

I have been to see a private GP in London and then I am going to complain, but I don't want to loose my T3!!!

[evey]

I've had this happen to me, Highcliffe, even having a friend with me as a witness. Endos letter was full of untruths, I did dispute it but she basically said I was a liar. I'm seeing a new one in July, (he's head of department) so have decided to record the consultation on my phone. My friend done this, saying she had brain fog and would forget what was discussed five minutes after leaving, but I don't think I'll bother to mention it, in case he refuses.

[highcliffe in reply to evey]

Hi evey, did think about that lol it is so frustrating..... even got me thinking I must be depressed then......good luck with your new appointment..

[Churchie]

Highcliffe, definitely take matters into your own hands, although accept there may be a bit a trial and error before you get there. I was really bad on t4 but luckily ok on t3 and have been lucky enough to be prescribed it. I would have self medicated if I hadn't or tried NDT. You can't wait around for months for the doctors to get there, especially if that might mean losing your job in the meantime. If you do as clutter says and try adding a bit of t3 and can demonstrate signs of improvement the GP may prescibe you some in the end. I know others where this has worked. Good luck

[JellyJac]

Same thing happened to me healthunlocked.com/thyroidu...

I have decided not to trust my health to liars and ignoramus'

I now self medicate (NDT and T3) and feel like my old self...

[highcliffe]

just seems that more and more of us are heading that way - self medication.... are you being supported by your GP tho' with blood tests etc?

[JellyJac in reply to highcliffe]

Not at the moment, as he referred me to the endo, who said she would see me in 10 weeks. That was on 22 January, have heard nothing...

I am checking my heart rate, BP and temperature myself.