Hi again,
Do you know how a problem with the pituitary is diagnosed? I was wondering whether I have a problem in that area.
Test Results 21/06/2021 on 100mcg levo
TSH 0.28 range 0.35-4.5
T4 13.1range 11.5-22.7
T3 3.4 range 3.5-6.5
Test Results31/03/2021 on 125mcg levo
TSH 0.03 range 0.35-4.5
T4 not tested
T3 4.1 range 3.5-6.5 (20%)
Vitamins etc; All OK (Medichecks)
Thanks in advance for any comments
I see from previous posts you were diagnosed with hypothyroidism in 2006 and have been on thyroid replacement hormones since.
I’m not sure why you’re wondering about a pituitary problem—because your TSH is suppressed? That (in a person on thyroid hormone replacement) doesn’t mean there’s a pituitary problem.
It does look to me as though you’re undermedicated—TSH becomes much less important once medication is started and dosage should be raised according to levels of FT3 and FT4. Your FT3 is under range so it seems clear to me you need more thyroid hormone replacement.
Thanks Jazzw - That was partly why I asked, to gather more information and understanding,
I read "TSH hormone is suppressed either due to compromised thyroid function or conditions related to pituitary gland which actually manufactures TSH hormone."
I read "TSH hormone is suppressed either due to compromised thyroid function or conditions related to pituitary gland which actually manufactures TSH hormone."
I would assume this only applies to those who aren't medicated.
Oh, thanks plant_lady, I didn't think of that. That makes sense 👍
Shes asking to figure out why hers is suppressed. She might me taking medication but still always good to investigate reason behind thyroid suppression
I'm currently having my pituitary gland investigated by my endocrinologist, who has ordered a glucagon stimulation test.
I hope you get some answers pinkstrawberry.
Hiya
Just to rule out some of the obvious just in case there's a more simple explanation:
Are you absolutely sure your vitamin levels that you got tested are okay - did you post on here to check as just being in range on tests does not mean enough required or optimal for thyroid function. Did you do a more extensive iron panel for example as ferritin can be misleading if other vitamins awry.
Only a few vits have been tested, do you eat a balanced or good enough diet to be certain you wouldn't be deficient in all the other tonnes of vits and micro nutrients required. Or do you have a stomach issue that might affect absorption for example.
Do you eat enough calories in general - for example female would need at least 1750 calories per day and a lot more if you exercise a lot? Constant restricted calorie dieting will cause similar results to yours. Also don't test after strenuous exercise lol.
Anyway as mentioned just in case 
Apologies, after writing that I took a look at some of you previous posts. I'm really sorry if you're not comfortable with me discussing it but you mentioned you have an eating disorder in one of them. I obviously don't know the ins and outs of your situation but just in relation to eating disorders in general, unfortunately, your results would be as expected with an eating disorder which will cause nutritional difficulties etc. The body serves to protect itself when under stress, when there are not enough calories and/or vitamins available to work properly, it will slow itself down by ensuring there are low thyroid levels and supressed TSH. This is to protect you as it slows down the damage caused by these issues and also eeks out what you do have available for longer and to basically conserve energy.
I see you also posted your vitamin test results too - if the problem is still there, you also may not want to trust your ferritin levels either as under these conditions, bodies are more likely to remove iron form the blood and put it into storage (ferritin is iron storage) so you may want to get a more in depth iron panel and complete blood count to have a better check. There may be a number of other deficiencies not tested for too.
I just want to check - did you have an eating disorder when you were first diagnosed with thyroid problems? If so, do you know what your test results were then? If it was based on T4 levels, and your TSH was not high and like they are now, they possibly shouldn't have started medicating you. I did also note that you were not showing any thyroid antibodies also and thyroid abnormalities will present with eating disorders but can reverse if the eating disorder is resolved so it might not have to be permanent - although it can become permanent. Basically it might not be the case that your thyroid is not functioning incorrectly. It does depend on your specific situation though which I am not obviously privvy to the facts so again just generally speaking.
I don't think it's likely that you have a pituitary problem or undermedicated based on this information - it is possible that your body just doesn't want the thyroid hormones and is working hard to keep them low so that it's not forced to work faster which could cause you more issues in the long run. Please note that it would be dangerous for you to consider taking T3 meds under these circumstances.
Apologies if I've misunderstood the situation or if you no longer have these issues
Book99,
There is nothing to indicate a pituitary problem in your results.
Your GP appears to be dosing you by your TSH result which has resulted in you becoming under-medicated, evidenced by your low thyroid hormone levels. These need to be raised for well being and in this situation (which is very common) the TSH ignored as does not always accurately gauge whether exogenous thyroid hormone is adequate, sufficient or excessive.
TSH is a pituitary hormone and it may be the feedback loop isn’t working properly because somewhere along the way the response has become blunted. Maybe the hypothalamus is responding poorly or has become down regulated, as can happen to the pituitary. Maybe other conditions such as long term stress or depression have altered base lines.
There are plenty of reasons why TSH is low and in your situation elevated thyroid hormones is not one of them. You need a dose increase. If you can’t face any more fight with your doctor you could self-medicate like many members have been forced to do by uneducated GP’s.
Thank you SaggyUK and radd. I feel very reassured by your comments/information. I think I can over read and then think does this apply to me.... Your responses make so much more sense than my thinking 👍😀I did have the eating disorder when diagnosed - I have a history of switching between periods of binge eating disorder and bulimia.
I don't know my results at the point of being diagnosed but I had underactive classic symptoms - weight gain of over 1.5 stone, terrible aches and pains - which improved once medicated.
Thanks once again, I appreciate your information
😀
Hi Book99,
I have a Pituitary Tumour, and it was detected when bloodwork showed excessive Prolactin.
I was getting lots of headaches at the time (as well as many Hypo symptoms).
I have been on medication to shrink it, which is working, albeit a lengthy process.
The members on this forum are so informative and helpful (not to mention, kind)...so, you're in good hands, when you ask a question on this forum.
Take care
SM
I hope your headaches have improved, SM.
Hi, I’ve struggled with hypo for 12 yrs, I’m on 150 Levo and 12t3. I’m still a wreck but have given up. Endo found cyst on pituitary but argued with me that it had nothing to do with thyroid issues. Gp refuses to check for enlargement. Literally have no energy to try anymore. And don’t know what to do now. 😞
That sounds a horrible position to be in. I'm sorry you're getting no where with the medics.
Please don't give up....you're worth fighting for x
Can you maybe see a private Endo?
And, find a new GP?
Wishing you the strength to fight for 'you' x
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