Needing some Advice on getting better

[Stephanie8600]

I was dealing with my doctor today by email and he tells me how I was doing on the medication I’m like I’m thinking it’s more my thyroid meds I’m having all of the same symptoms as before and that now happening I changed my gluten too gluten free been eating the right foods and he tells me he will check my tsh levels again in July I’m like I think I’m going though a lot more then having my tsh levels read I’m over here miserable and you won’t refer me out to a specialist I found out there is more thing to check then just your thyroid levels I’m like common I’m tired of it arguing about my Health I need some advice what do I do please help me

[Hidden]

I'd go back and ask for an immediate increase in your dose with retesting in 6-8 weeks.

If he refuses can you find another Dr?

[Stephanie8600 in reply to Hidden]

I don’t think increasing it is the answer cause I even felt worse on 50mg that I was on its something that’s not right in my body that’s causing all theses werid symptoms

[Hidden in reply to Stephanie8600]

It's very common to find that increasing hormone replacement can be difficult when left undermedicated for a long time.

You can try smaller increments; 12.5mcg at a time or splitting the dose through the day.

[Stephanie8600 in reply to Hidden]

I’m thinking the cold spots is more of a vitamin deficiency with the pins and needles and burning that I’m experiencing I mean I’m on 25mg right now and that’s the lowest it goes

[Hidden in reply to Stephanie8600]

You can split a tablet in half.

25mcg will not be enough to regain OR sustain your health. If you're having difficulty tolerating the hormone replacement then for now you need to find a way to make it work.

So splitting your dose throughout the day may be 'easier' on your system or increasing in smaller steps might help. Or maybe both!

[Hidden in reply to Stephanie8600]

Vitamin deficiencies are really common with hypos. Have you had B12, Ferritin, Folate, and Vit D tested?

[Stephanie8600 in reply to Hidden]

Back in February my vitamin d levels where low but the rest was fine but things can change by then cause we are almost in July now

[Stephanie8600 in reply to Hidden]

And he only told me he will test my tsh levels again in July but that’s not what my problem is at all I’m having pins and needles cold spots dizziness burning skin it’s scary to me

[Hidden in reply to Stephanie8600]

Can you do a private test for TSH, T4, &T3?

[Stephanie8600 in reply to Hidden]

How does that work exactly a private test

[Hidden in reply to Stephanie8600]

I can see you're in the US. In the UK there are private companies where we send of a blood sample and pay for the results! It's very straightforward, but I'm not sure how this would work in the US.

[Stephanie8600 in reply to Hidden]

What are the test called that I way I can lock it up from my end

[Stephanie8600 in reply to Stephanie8600]

Look it up from my end

[Hidden in reply to Stephanie8600]

I use thriva. Many others use Blue Horizon, or Medichecks, or Monitor my health.

[Stephanie8600 in reply to Hidden]

I got by my insurance where I go in and they test my levels I just need a new doctor to do that cause I really think he’s not really worldly cause his a med student

[greygoose in reply to Stephanie8600]

The tests you need are:

TSH

FT4

FT3

TPO antibodies

Tg antibodies

vit D

vit B12

folate

ferritin

That will give you a pretty clear idea of your thyroid status.

[Stephanie8600 in reply to greygoose]

Ok will let the doctor know

[Stephanie8600]

What about the cold spots and burning all over my body and pins and needles what is that all about I mean does that have to do with a vitamin deficiency and itching

[Hidden in reply to Stephanie8600]

Itching skin can be a hypo symptom.

Pins and needles could be low B12 and/or low ferritin.

I'd suggest retesting your key vitamins and your thyroid (TSH, T4, &T3), and starting a new post.

Without results we're really just stabbing in the dark hoping to happen upon an answer.

Best of luck! 🍀

[Stephanie8600 in reply to Hidden]

Thank you so much you have been great I just wish this doctor would understand my needs more and yes I’m considering getting a new doctor if doesn’t do his job

[Hidden in reply to Stephanie8600]

I don't know how much credence your GP would give to Thyroid UK but I imagine there are thyroid charities in the US. You could research. I'm sure they have suggested tests you could ask your Dr to do.

Also consider taking a different brand of thyroxine. It may be the fillers in the tablets causing a reaction.

[Stephanie8600 in reply to Hidden]

I’ve done that already and I’m now on the name brand medication called synthyroid it’s the same as levothyroxine and it’s 25mg and I’m still having the same effects as the other meds I’m on so it can’t be the pills I could look into it and see what I can fine for a private test

[Stephanie8600 in reply to Hidden]

I’m probably going to change my doctor cause this one will not listen at all to me

[Hidden in reply to Stephanie8600]

Good idea. I think that's your best move.

[Stephanie8600 in reply to Hidden]

I think so as well I just have to find a new doctor I’m going to be making sure of it tomorrow I really wanted to get referred out but his making excuses not to refer me out it’s silly I’m like your not even checking me right but I thank you very much for talking to me

[Hidden in reply to Stephanie8600]

You're welcome!

[Batty1 in reply to Stephanie8600]

I have the burning skin sensation and off and on pins and needles (im thyoid-less) I was diagnosed with small fiber neuropathy of no cause but I feel its related to my thyroid hormones.

Do the test the grey goose posted and go from there.

[Stephanie8600 in reply to Batty1]

I’m just going to have to find out what’s really going on cause I recently had a baby back in July and it cause just be my body is out of whacked so I’m waiting on the specialist to call me and run additional test to see what is really going on