If you don’t mind helping me again, I would very much value your opinion. I have given as much information as I think you might need but please do ask if you have any questions. Also, if you don’t think this post is appropriate here because it is not directly related to Thyroid, I can remove it
I need to go back to my GP because on average I get sick at least 1 day every fortnight but I feel that I will be fobbed off yet again, so I want to go armed with knowledge but I’m finding it difficult to research online
After my Blue Horizon blood tests showed raised Ferritin and CRP levels, I went to the GP for further tests (she wasn’t too happy that I had been elsewhere). When the results were back, I was told by the receptionist that they were “Abnormal but no action to take.” (CRP 10 mg/L. - ESR 28 mm/h)
The GP did eventually give me an extra 25mcg of Levothyroxine
I know that my test results can vary. Previously, I have even been hospitalised twice and given intravenous antibiotics (3 for 8 days (Jan 2017) & 4 for 5 days (Oct 2019)) because my infection makers were high but I was discharged without a conclusive diagnosis.
In Aug 2019 it was found that I have hypogammaglobulinemia - IgM 0.2 g/L & IgA 0.4 g/L. Although, amyloidosis has been mentioned, no conclusive diagnosis/cause has been reached.
I also have had ‘deranged’ liver function results since at least 2013. The serum gamma GT level ranges from 120 u/L – 749 u/L. (Sept 2020 – 332 u/L)
I take Tegretol for Bipolar so it has always been expected but because of feeling poorly for so long, I am worrying about now. The GP almost expects it now so they never mention it. (by-the-way I never drink alcohol)
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Dunawori146
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Hi Dunawori146 I’ve taken the liberty of copying your last set of results across from 8 weeks ago. And it’s my understanding you were (just about able) to persuade your doctor to raise your Levo dosage by another 25mcg?
I think it’s possible you need another raise in Levo dosage but your doctor may be reluctant to do another test (they ought to, given you paid for the last one). Worth asking!
I wouldn’t worry too much about the ferritin in and of itself. It’s only slightly elevated, which happens when there’s inflammation and we know there’s something inflammatory going on because of your raised CRP.
I would imagine your doctor’s taking a “watch and wait” approach to your raised CRP as it can be due to something simple like a minor infection and not necessarily indicative of something serious. But if it stays high then ideally your doctor should investigate.
Have you been supplementing B vitamins and Vit D over the last few weeks?
Thank you very much for this information, I only ever find out things on this site, it's brilliant !I will go back to the doctor to discuss what you have suggested.
Recently I've been taking vitamin D and a multivitamin
I’ve been reading your @Dunawori146 profile since I replied and see you’ve got possible Crohns/ulcerative colitis(?) going on (poor you!), so flares of that are probably what’s spiking your CRP and ferritin levels.
But chronic undermedication for your thyroid condition isn’t going to make things any easier on your bowel—in fact, optimal medication is a must, so that everything moves through as it should. I think doctors seriously underestimate the importance of treating thyroid issues—when you consider that thyroid hormone is essential for every cell in your body, it makes sense just how much can go wrong if you don’t have enough of it!
Rather than taking a multivitamin (too little of what we need) you might find it more beneficial to be taking vitamin B complex for your low folate and low B12
a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.
This can help keep all B vitamins in balance and will help improve B12 levels too
Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)
Or Thorne Basic B is another option that contain folate, but is large capsule
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.
Gosh... this is such a lot to take in. I need to digest what you say.
I did buy the Vitamin D mouth spray after you recommended it. I do have a test so I will do a test now.
Thank you for all the information regarding vitamin B & B12 (and folate).
My GP didn't wish to engage in any discussion about them (to be fair I only had a quick phone consultation when I asked for a blood test but like I said she wasn't happy with me)
Yes, thank you, I'm realising that more and more. For too many years I have just put my trust and belief in the doctors. I have always believed that they had my best interest at heart, without question.
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