Uncontrollable itching..

[Kchelsea2020]

Is this still related to levothyroxine itself or could it be to do with it the meds going into the blood stream? Or is it the body rejecting the medication?

A year later, it continues...

[SeasideSusie Remembering]

Kchelsea2020

Have you tried different brands of Levo as mentioned in replies when you posted about this last year?

[Kchelsea2020]

Yeah I have.. it’s still here and Interferes with my sleep also

[SlowDragon Administrator]

What are your most recent thyroid results and vitamins

How much levothyroxine are you currently taking

Which brand of levothyroxine are you currently taking

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

[Kchelsea2020 in reply to SlowDragon]

Thanks for this, very interesting!.. before I do anything else I will get the report of my last blood test from a couple of weeks ago as it stated that my vitamin D level was so low I am now on a medication called Stexerol-D3 and low blood count, so I will be tested further in a couple of weeks.. so if it is to do with low vitamin D levels then it would make sense but I’m not entirely sure!? It seems to be around the same time of year as last year but this time I’ve been itching for months and it hasn’t stopped

[SlowDragon Administrator in reply to Kchelsea2020]

Low vitamins suggests you might be under medicated thyroid wise

How much levothyroxine are you currently taking

[SlowDragon Administrator in reply to Kchelsea2020]

How low was vitamin D How much vitamin D are you currently prescribed?

If you have Low vitamin D, then important to also test folate, ferritin and B12 at least annually

Vitamin D

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, on levothyroxine we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

Notice how much vitamin D many of these medics are taking

vitamind4all.org/letter.pdf

[NIKEGIRL]

Hi. By chance have u had a full liver function test done? Just a thought.

[silverfox7]

About your low vitamin D readings. If you need to supplement then it’s often for life but you may be able, once optimal, to find a daily maintenance dose.

[Wired123]

Low Vit D can cause itching and urticaria. You can Google other symptoms of Vit D deficiency. It could be that and/or the brand of Levo.

If you can’t sleep then you could be over medicated on Levo.

[Wired123]

The itching could also be a fungal infection so perhaps ask for dermatologist referral

[madge1979]

Fungal infection of the skin could well be the cause of your itching , it can be anywhere on the body , including face and scalp . If your Doctor agrees, it can be fixed with a cream to apply. Might be worth a call to GP to find out .

Good Luck

Mx🌹

[Polly91]

I too had itching for about 6 months & then it stopped when I started taking a quercetin complex. It’s called Fibroprotek and I’ve found it’s the only thing that gets rid of the itching. For me I think it’s a histamine issue & possibly general inflammation too. I have yet to stop the Fibroprotek to see if the itching come back but I haven’t wanted to risk it as it’s so frustrating to feel itchy all over.