Had my ultrasound last Monday with a consultant, she noted the damage to my thyroid and said that it has shrunk a lot and I’d need a nuclear test as well but she’d pass it all on to my gp and I’d get full results within a week, just called my gp to chase it up and been told gp said all is normal and no further action required?? Why does it feel like a such a battle all of the time!
Thyroid ultrasound : Had my ultrasound last... - Thyroid UK
So your GP can’t read ....
Thyroid gland has shrunk and shrivelled
Your previous post showed very low vitamin levels
You need to get FULL Thyroid and vitamin testing done....most likely privately
Remember to stop taking any supplements that contain biotin a week before ALL BLOOD TESTS
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually.
As they were very low at previous tests ....need to see if now improving
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
Medichecks Thyroid plus antibodies and vitamins
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Thriva also offer just vitamin testing
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
Did all of my bloods through medichecks last month, showed I was being over medicated with levo - gp dropped it to 75mcg, vit d and b both low - gp said they’re within range, adrenals - cortisol very high - gp said we don’t take any notice of those as they’re never accurate, he’ll retest tsh, t4 and vit b in 6-8 weeks but is not concerned! Just called and spoke to receptionist and asked to see gp and was told there’s nothing until next Wednesday and that will be a phone consultation sometime through the day 🤦♀️
Last post shows very low vitamin levels
No Ft4 or Ft3 results shown
Have you got these ?
Low Ft3 tends to lower vitamin levels
Low vitamin levels tend to lower TSH
You’re only over medicated if Ft3 is over range
Folate, B12 and vitamin D all too low
What vitamin supplements are you currently taking
Aiming for B12 at minimum of 70 and at least around 100 might be better
Folate at least half way through range
Vitamin D at least around 80nmol and around 100nmol maybe better
Have you had coeliac blood test done?
Are you on strictly gluten free diet?
Thyroid, antibodies wasn’t part of the test i ordered,
Was this test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
High Ft4 and low Ft3 confirms very poor conversion of Ft4 to ft3......extremely common when vitamins are too low
Ft3 is only 41% through range
Helpful calculator for working out percentage through range
Most people when adequately treated will have Ft3 at least 60% through range
Likely ft3 will have dropped significantly with such ludicrously large dose reduction in levothyroxine
Low Ft3 tends to lower vitamin levels even further
Thank you, I did give my gp all of the results when they came through and other than dropping my levo to 75mcg from 100/125 alternate days he wasn’t particularly concerned, he said he’d recheck the vit b and tsh and t4 in 8 weeks but doesn’t include t3 and can’t recheck vit d as I had it done by nhs last October.
What were Ft4 and Ft3 results on 125/100mcg dose
Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
how long since dose levothyroxine was reduced from 100/125mcg to 75mcg ?
Ludicrously large drop in dose ....if you were over medicated (extremely unlikely as vitamins are so terrible) you would only ever reduce by maximum of 25mcg .....and reducing by just 12.5mcg to 100mcg per day likely better
But in reality you likely needed dose increase in levothyroxine or addition of T3
Which brand of levothyroxine are you currently taking?
Bloods should be retested 8 weeks after any dose or brand change in levothyroxine
Bloods should ALWAYS be tested as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
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