Feeling out of it

[Vincent512]

Hey is there a endocrinologist on here or anybody that could really help me

My son still feeeling really out of it and anxiety and depression through the roof , even started crying last night saying he can’t go on feeling like this .

His last tsh level was 8.5 everything else normal, due another blood test in 2 weeks to see if still high, is it normal for him to feel like this. They said all other bloods were fine , no idea wot to do help 😭😭😭

[SeasideSusie Remembering]

Vincent512

This is a patient to patient forum to share their experiences, there are no doctors or medical practioners here to give advice.

TSH can be raised by non-thyroidal illness.

What other tests were done? Full blood count? Liver test, kidney function test, lipids, iron panel, etc?

[Vincent512 in reply to SeasideSusie]

Yep all good

[SeasideSusie Remembering in reply to Vincent512]

All good as just somewhere within the range, are there any that are borderline or low or high in range? They don't necessarily have to be out of range to be a problem, certainly nutrients have optimal levels and, for example, someone with a B12 level in the 200s with a range of 180-700 could be very unwell.

[tattybogle]

Make sure he understands that thyroid levels being 'off ' can make you feel depressed anxious , all over the place and just plain awful.Your brain uses thyroid hormones , just like the rest of you , and if they go wonky , so does how you feel.

I know that understanding that doesn't really fix anything , but it helps if you can understand "it's not YOU losing the plot , it's the result of a real effect on your brain of hormone levels shifting around "

And while it's not yet clear what has caused his TSH (Thyroid Stimulating Hormone)to be as high as 8 recently, you can bet that since it would probably be 'normally' sitting round 1 and staying pretty stable . the change from that to 8 then 6 and whatever it is at the test in 2 weeks will be at least partly responsible for how his head feels at the moment.

Tell him to hang in there until he gets the next test. And tell him to be forgiving of himself in the meantime . He's allowed to feel dreadful with TSH of 8, and i'm not surprised if he does.

It's not that the TSH itself makes you feel anything , but it's an important part of a very complex balancing system , and going up to 8 indicates that his levels of thyroid hormones have probably been going down then up .

But they were up when you did the private test , and TSH is a bit slow to react so maybe the 6 was still saying hormones are low even though they were higher that day.

Don't worry about trying to understand all that ... i'm just trying to say that unsettled hormones have an unsettling effect on how you feel psychologically as well as physically.

The fact that TSh is slow to react is part of the reason why diagnosing and treating thyroid problems is such a frustratingly tedious process , each time you change a dose you have to wait 6 weeks to get e true reading of TSH, but the fT4 /3 levels are right on the day.

And also the fact that Doctors don't explain a lot , and often minimise the effect of thyroid symptoms , this can leave you feeling like no one understands , or worse that they think you're just swinging the lead , and that too can make you feel dreadful and depressed.

I know how hard it is when your kids feel hopeless., so i really feel for you at the moment.

" 2 weeks is 'forever' to a young man, and '6 weeks' is a life sentence, but just get him through to the next blood test for now and see what it say's.

[Vincent512 in reply to tattybogle]

Thankyou so much for your answer ❤️❤️He said he feels like he’s losing the plot and going mental so heartbreaking.x my issue is they have now given him antidepressants because they are saying that he’s suffering with anxiety , he’s anxious because dosent know wots going on .x I can’t get to see a doctor so have now had to go private .🥲

At least I can tell him that how he is feeling is normal .x so thankyou ., x

[SlowDragon Administrator]

What are the actual results and ranges on Ft4, Ft3, vitamin D, folate, ferritin and B12

Has he had Covid?

Had bilirubin tested, tested for jaundice, tested for Glandular fever?

[Vincent512 in reply to SlowDragon]

This was done on a home test

Fine

[Vincent512]

And this

Dine

[SlowDragon Administrator in reply to Vincent512]

Any vitamin results ?

Testing for infections....

hypothyroidmom.com/hashimot...

[Vincent512 in reply to SlowDragon]

B12 was 2000 but I had put him on supplement for that , have now stopped them.x Not sure wot any other

Does the t3 and t4 etc look ok

[SlowDragon Administrator in reply to Vincent512]

Yes Ft4 and Ft3 look good

Have you had vitamin D, folate and ferritin tested

Is he vegetarian or vegan

What vitamin supplements is he taking

Anything happened before became unwell.....Covid is an obvious possibility

[Vincent512 in reply to SlowDragon]

Had covid test and the antibodies one and said he’s had no covid

[Vincent512 in reply to Vincent512]

Not sure on other vitamins .they just said they were all good apart from his tsh He’s not vegan

He was taking b12 , d I think that was it , he has stopped it all now though .x

[SlowDragon Administrator in reply to Vincent512]

Always get actual results and ranges

[SlowDragon Administrator in reply to SlowDragon]

NHS only tests and treats deficiencies