Depression and anxiety

[Jackiez]

Hi everyone. I haven't posted for a long time. I accepted the treatment from my GP because I just couldn't afford the alternative, and to be honest I still can't. Private blood tests have always shown poor conversion to T3. I've moved and my new gp accepted that I couldn't function on a lower dose of t4 but didn't offer any anything else. I know we're in an horrendous situation with Covid19, so didn't want to push it. The thing is I'm literally on my knees, or would be if they didn't hurt so much. In the last few weeks I've gone from being a full time live in carer to being signed off by the GP with anxiety and depression. I'm now in physical pain, my jaw, head and neck mostly, but also my limbs ache and I get painful episodes, almost like a shock going through my back and legs. I'm exhausted and sleep fitfully, but I'm in bed 12 hours, and then fall asleep again for 3-4 hours in the afternoon. I'd be grateful for any suggestions, as I'm not sure if this is just in my head.

[meme]

Could we have a look at your results please?

[SlowDragon Administrator]

How much levothyroxine are you currently taking

Do you always get same brand of levothyroxine at each prescription

What vitamin supplements are you currently taking

Are you on absolutely strictly gluten free diet

All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Please add most recent results and ranges

[tattybogle]

Hi Jackiez.

I've read your history.. it's not in your head.

It's plain to see in blood test results history.

And similar things are experienced by loads of other people on here(including me) with no other reason than hypothyroidism /treatment to blame.

I have similar results to yours. TSH low 0.05 ish. high/over range fT4 , my fT3 has been a bit better than yours.

My TSH was only 6.8 at diagnosis, unlike your unquestionable 100 diagnosis, but my TPOab were 2499 so i got diagnosed hypo.

I have battles with GP over TSH an fT4 levels, and was on 150 for yrs, now on 112.5mcg

last year was reduced to 100 but became constipated, and my knees started playing up again on lower dose, so after big argument have gone back to 112.5 or 125mcg if i want to. (he's told me i'll die , but wasn't specific about what from !) knees are now much better again

Are you still on 100 now ?

I can totally sympathise with getting worse when dose is lowered.. , even on previous occasions when it did clearly need to be lowered a bit, and lower dose resolved the overmediction symptoms quickly and pain eventually, but still... on 125 i was unable to do the same amount of work as before when i'd been on 150 for years.

(i'd had symptoms of overmedication and lots of unexplained pain like from kidney stones , but there were no kidney stones, after menopause when on 150 so reduced to 125)

I'm not totally sure whether the pains eventually going away were the result of the lower dose , or the fact that i ended up doing less physical work, and so hurt myself less often as i have got a dodgy sacroilleac joint .

I don't have any answers i'm afraid , but just wanted to let you know ..... if you're imagining it ... it's very curious that you are imagining the exact same things as loads of others on here.

If i'd been reading forums for years i might question if i was feeling things due to suggestion... but i hadn't, i'd accepted Gp's knew what they were on about re. thyroid at least and put my 'other problems' down to "autoimmune hypothyroid ,treated + ?cfs/me/ me being crap" for years and accepted them , only to discover that many many thyroid patients on levo had the exact same issues. And i don't think carpel tunnels and knees are much good at reading forums and being suggestible to placebo effect.... i think knees know what they are talking about.

Have you tried increasing levo dose a bit , or do you think it won't help.

i'm assuming t3 wasn't a magic fix when you had it ?

I had been going to try adding a little T3, to levo , but recent TSH came back unexpectedly high for me (1.94) so am waiting a little longer to see what if anything that changes , and whether it's still at that level in a few months.

Sorry for the waffle .. just wanted to make sure you didn't feel ignored and alone .. as well as fed up and in pain.

x

Tat