I have had sore burning swollen tonsils and ear and neck pain for 4 months and have had multiple test and all come back clear I’m so miserable I am taking 112 mcg of levo I still feel so bad
I read a post from 5 years ago where someone had the same symptoms
Such a mission with all this
Please add most recent thyroid and vitamin results
Are you on strictly gluten free diet
Thank you for the reply SlowDragonMy TSH was 5.14 and that was on 11/30/2020 and the T4 was 1.1
The vitamin d results was 15 I was told to take 2000 IU per day and that’s what I have been doing but not feeling better I also have constant mucus, and feel like I have a cold all the time the drs have given up on me now I have really bad back that burns and they advised that it maybe the hashis as well
The aim of levothyroxine is to increase the dose slowly upwards in 25mcg steps until TSH is ALWAYS under 2
Most people when adequately treated will have TSH under one
Most important results are always Ft3 followed by Ft3
Aiming for Ft3 at least 60% through range
Essential to regularly retest vitamin D, folate, ferritin and B12
These frequently are very low, especially when under medicated
Mucus suggests dairy intolerance. Extremely common with autoimmune thyroid disease
If trialing lactose free diet, you also will need lactose free levothyroxine
ncbi.nlm.nih.gov/pubmed/240...
Lactose intolerance was diagnosed in 75.9 % of the patients with HT
read.qxmd.com/read/24796930...
These findings show that lactose intolerance significantly increased the need for oral T4 in hypothyroid patients.
Post nasal drip and phlegm often suggests dairy intolerance
And as of Sunday I am gluten free
Sorry and also forgot to mention that I have a hot air in which is assume is coming from my stomache And out through my nose and throat it is like a steady hot air
They have put me on 112 mcg of levo I need higher than that and they are refusing to take my blood until March
So was dose levothyroxine increased after TSH test of 5.14
Bloods should be retested 6-8 weeks after each increase in levothyroxine
All four vitamins need to be at GOOD Levels too
Low vitamins are direct result of being under medicated
My TSH was 5.14 and that was on 11/30/2020 and the T4 was 1.1
The vitamin d results was 15 I was told to take 2000 IU per day
We really need to know reference ranges and units of measurement for any test results. Ranges vary from lab to lab and from country to country.
A TSH of over 5 is hypothyroid so you need a higher dose of Levo. Many of us need a TSH of 1 or below to feel well, and to achieve that you need higher levels of Free T4 and Free T3.
It is impossible to tell from your T4 level whether this is Total T4 or Free T4. The Total T4 test is not helpful, it is better to get Free T4 and Free T3 levels tested - they are much more informative.
Since you are in the US I'm assuming that your vitamin D level is measured in ng/mL. You can calculate your own ideal dose of vitamin D using this link :
grassrootshealth.net/projec...
If I assume that you weigh 140 lbs (obviously you can use the calculator with your actual weight) then this is the information it gives you :
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All suggested intake amounts are based on a weight of 140 lbs
Maintenance Dose
To achieve the desired serum level within approximately 3 months, a supplementation amount of
4,000 IU* (100 mcg) per day (this includes your current intake amount)
will be sufficient for 50% of people to achieve the desired serum level of 40 ng/ml
or
5,000 IU* (125 mcg) per day (this includes your current intake amount)
will be sufficient for 90% of people to achieve the desired serum level of 40 ng/ml.
Loading Dose
To quickly achieve the desired serum level within days†, a dose of
25,000 IU (625 mcg) per day can be taken for 6 days, followed by the above maintenance dose.
*Values rounded to the nearest 1,000 IU and are capped at a maximum of 10,000 IU/day.
†This calculation is based on published data by van Groningen et al., Eur J Endocrinol., 2010
Hundreds of peer-reviewed scientific studies have documented the well-established safety of single 'loading' doses of vitamin D to get levels up quickly (1-26). Loading doses ranging from 100,000 IU to 600,000 IU have been shown to rapidly increase vitamin D levels, but fail to sustain levels longer than 2-3 months. Larger doses induce more rapid breakdown of vitamin D (1-2). Therefore, the customized loading dose has been divided into doses of 25,000 IU over a number of days to achieve the initial increase in vitamin D levels. The maintenance dose is your custom daily dose recommended to achieve and sustain the desired levels of vitamin D.
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So, clearly your vitamin D dose is too low to raise your level in a reasonable time. You don't want to spend a year with low vitamin D when you can fix it in three months (for example). In your shoes, given the above information, I would be taking 5000 iU vitamin D per day, if I could tolerate it - which I do, but not everyone does, for reasons which usually remain a mystery.
Some general info :
It is essential to take vitamin D3 supplements NOT vitamin D2. The best forms are capsules containing just oil and vitamin D3. Alternatively you can take mouth sprays.
Vitamin D supplementation raises levels of calcium absorbed from the diet. You want that calcium to go into bones and teeth, not end up lining your arteries. To achieve this the body needs good levels of magnesium and vitamin K2. There are probably thousands of references to supplementing both of these on the forum, so do a search for info on both of them. SeasideSusie is our nutrient guru, so try to find some of her posts on the subject.
Thanks for the info I really love this group you all are so helpful I don’t feel so hopeless anymore
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