Hashimoto thyroiditis Throat ear and neck pain ?

[Crystalynn]

Has anyone gotten a sore throat and ear and neck pain with Hashimoto’s thyroiditis

I have had this for 3 months

Have had CT scan ultrasound and have been to an ENT and they found nothing I am so miserable

[SlowDragon Administrator]

Welcome to the forum

How much levothyroxine are you currently taking

Do you always get same brand

What vitamin supplements are you currently taking

Please add most recent results and ranges

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Are you on strictly gluten free diet?

[Crystalynn in reply to SlowDragon]

I’m taking 112mcg sI was taking the brand synthroid but switched to the generic levo

I’m taking vitamin d

But I should probably be taking b12 someone told me

Thanks fir the advice this is such a learning process

[SlowDragon Administrator in reply to Crystalynn]

Do you have any thyroid and vitamin results and ranges to add

[Crystalynn in reply to Crystalynn]

Really just vitamin d3 2000IUAnd a daily multiple vitamin that’s pretty much it and my probiotic but that has nothing do with this

[hyporeb]

I get this sometimes. Last time it lasted around 3 weeks and then disappeared overnight. I have accepted that for me it must be part of having hashi’s and maybe it’s when my levels go a bit haywire.

[Crystalynn in reply to hyporeb]

Im starting to think the same thing I have had it off and on since October it’s so frustrating it’s a learning process sometimes feel like my family doesn’t understand I found this Facebook page called hypothyroid mom it is really informational and it lists 300 symptoms of this awful thing here’s is the link if you want to check it out

Thank you for the reply it’s nice to have people to talk to

The drs don’t care and don’t take it seriously that’s how I feel

hypothyroidmom.com/300-hypo...

[Alanna012]

All the time. Sometimes the glands and salivary glands swell up as well. It's horrible but it comes and goes. I tend to take ibuprofen and paracetamol. I honestly don't know if it just means there's an escalation in my hashis or what. At one point I suspected Sjorgren's but the anti-Ro, anti-La and Ana tests I did came back negative so 🤷🏿‍♀️

[Crystalynn in reply to Alanna012]

Dr thought it might have been sjodrens but test came back negative this is such a learning process I found this Facebook page called hypothyroid mom and it lists 300 hypothyroidism symptoms and I have a lot of them The new thing now is my mouth and nose burning here is the link of you want to share with others suffering from this

hypothyroidmom.com/300-hypo...

[Alanna012 in reply to Crystalynn]

Thanks! The list might be useful to show my doctors who seem to think hashis is oh so simple..

[Crystalynn in reply to Alanna012]

I know and I try to tell them the research that I have done in my own and they are like no no that doesn’t cause that I’m like whatever they don’t understand but we just have to educate ourselves When your throat hurts does it feel like your tonsil

[Bluespots in reply to Alanna012]

Nothing simple about Hashis. I did have jaw, ear and neck ache, I have to say Vit D and K2 seems to have calmed that one down. Best wishes.

[Crystalynn in reply to Bluespots]

Thanks fir the response I am taking the vitamin D I will try the k2 and see if it helps The pain that you had in the ear was it like burning and itching ?

[Bluespots in reply to Crystalynn]

The K2 is to make sure Vitamin D works properly. Pain in ears was earache type, neuralgia type pain with sore teeth. I have Hashimoto's so symptoms all over the place. Burning and itching sounds like allergy response......you need to take an antihistamine to calm it down. best wishes.

[Bluespots in reply to Bluespots]

Crysalynn, is there any skin rash with the burning and itching? That would be Hashis. Also enflamed nerves can cause that type of pain....possible throat infection. For my pain, i use a couple of antihistamine if I think it's a reaction or ibrobrufen lysine (used for migraines).

[Crystalynn in reply to Bluespots]

Yeah the ear pain is earache type like I have to itch my ear neck pain has subsided a little but I am taking k2 and the b12 Seems that my shoulder started hurting a bit but is all better weird things go on with this Hashimoto’s it is such a learning process I tell you and yeah I have what I cal a hashi rash all over I had it so bad on my breast they thought I had inflammatory breast cancer thank god that was not the case