Life long tablets or not : This is my result and... - Thyroid UK

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Life long tablets or not

Annaadam12 profile image
6 Replies

This is my result and I am told to take vitamin D3 and the thyroid tablets Life long need your guidance please.

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Annaadam12
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humanbean profile image
humanbean

What thyroid condition are you treating?

What treatment have you been prescribed and at what dose?

The results you've given above don't actually cover your thyroid function at all.

As for vitamin D3, your result is not optimal although it isn't as disastrous as some we see on the forum.

What vitamin D supplement are you taking, at what dose, and how many days a week?

For info on how to achieve optimal vitamin D this link is very useful.

grassrootshealth.net/projec...

SlowDragon profile image
SlowDragonAdministrator

Looking at previous post....are you currently taking 50mcg levothyroxine or 25mcg levothyroxine

Were these tests done after 8 weeks on unchanging dose?

Just testing TSH is completely inadequate

And on levothyroxine TSH is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Vitamin D NHS postal kit

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

SlowDragon profile image
SlowDragonAdministrator

Vitamin DGP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

Once you Improve level, likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

vitamind4all.org/letter.pdf

Elizabeth02 profile image
Elizabeth02

Hi, I have been taking both for the last 30 years and both have done the job extremely well, it took a little while to sort the correct dose of Levothyroxine for me, now taking 200mcg daily and keeping very well, keep strong, you will see the benefits quite quickly and be kind to yourself on your journey!!

silverfox7 profile image
silverfox7

I was told if you need to supplement it’s usually for life, bit of a throwaway comment as you still have to work out what dose you need and then check at intervals that it’s still working for you. We can all be different so can be trial and error. So you need to keep checking your results alongside how you are feeling and take it from there. Our body can be good at telling us something is wrong, often extra tired, so we need to listen and act accordingly by retesting.

Annaadam12 profile image
Annaadam12

Hi SliversfoxThank you for your advice. Just need your guidance 2 weeks ago l had another blood test and I did take thyroid tablet before the test and now I am told to take 100 mg instead of 50 and also to consider my self Diabetic and cut down on rice

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