Blood results

[albowkis]

I was diagnosed with Graves about a month ago. I was prescribed 40mg Carbimazole. Last week I suffered with hives and a dreadful itch. I was told to stop immediately

I haven’t been on any meds for a week now and am suffering with dreadful pain and weakness in my legs, especially my right leg.

Waiting to pick up 200mg of PTU and beta blockers tomorrow

Thyroid bloods below

TSH less than 0.02 ml

Normal range 0.3 - 5

Serum free T3 21.7 pmol/l

Normal range 3.1 - 6.8

Thyroid antibodies 1000 IU/ml

Normal range >100ml

Bloods to be done in 2 weeks

[ling]

Which antibody was tested?

Was FT4 tested?

Btw, you may be interested in this -

An Unusual Presenting Symptom of Graves’ Disease: Myalgia

ncbi.nlm.nih.gov/pmc/articl...

Best wishes.

[albowkis in reply to ling]

No FT4 , thanks for the link

[ling in reply to albowkis]

Any reason why FT4 was not tested since FT4 and TSH are standard thyroid panel tests?

Is the Graves antibody name not on the test result?

[pennyannie]

Hello again Anna ;

We need to know which antibodies have been tested - TPO/ TSI/ TRab / TgAb / :

For Graves the unique antibodies are general written as a TSI -a thyroid stimlating and or a TR ab - a thyroid receptor blocking antibody :

Do you have a T4 blood test result as well ?

[albowkis in reply to pennyannie]

No I don’t, these are the only results I have

[albowkis in reply to pennyannie]

Looks like it was TPO antibodies

Text

[SeasideSusie Remembering in reply to albowkis]

albowkis

Looks like it was TPO antibodies

If only TPO antibodies were tested then it's possible that you have been misdiagnosed.

Raised TPO antibodies tend to suggest Hashimoto's which can start with a transient hyper period.

Before starting Carbimazole or any anti-thyroid medication then Graves needs to be confirmed with positive TSI or TRAb antibodies.

[pennyannie in reply to albowkis]

Thank you :

Yes as already replied these antibodies are not conclusive of Graves Disease and I think you need to question this diagnosis if this is all the medical evidence you have.

Can you talk it through first with your doctor - as it's another month before you see the endocrinologist ?

[albowkis in reply to pennyannie]

All the females on my side of the family have Graves , the diagnosis was from the hospital. I have a high resting heart rate abs heart murmur. This was found whilst in for appendicitis

[pennyannie in reply to albowkis]

Thank you I understand but do think the appropriate blood test anaysis is essential to confirm a diagnosis :

Have you been given a beta blocker should the heart issues become unsettling for you ?

[albowkis in reply to pennyannie]

Beta Blockers have been given as my resting heart rate is between 106-118bpm

[pennyannie in reply to albowkis]

Hopefully you will start to feel more comfortable when the beta blocker and PTU anti thyroid medication start to kick in.

[albowkis in reply to pennyannie]

Thank you x

[SnowQueenOne]

Hi

Like you I've only recently within the last 3 months been diagnosed with Graves' and Thyrotoxicosis.

Still trying to get my head around everything!

Apparently feeling weak is one of the symptoms.

I was also put on 40mg of Carbimazole initially and when I went back to see the consultant a few weeks later, my blood test results were all over the place with some of them indicating it was pushing me towards hypothyroidism. That then got reduced to 5mg and got prescribed beta-blockers thought haven't felt the need to take them yet. I get symptoms for both hyper and hypo and have been either sleeping a lot or occasionally, very little sleep as if I'm completely "wired". I think everyone is different but for me I think the Carbimazole makes me feel worse. I feel poorly the majority of the time and I think it is stating to make me put weight on which, although losing weight is one of the symptoms of Graves' for me my weight was stable.

Back to see the consultant this week so will what the latest results are and see if there are any alternatives to the meds I'm currently on.

I do need to read up on it a bit more and see what I can do to help myself as I get the impression this is something I'm in for the long haul! All I can suggest is take care and hopefully you'll get sorted sooner rather than later : )

[albowkis in reply to SnowQueenOne]

Hope you get sorted SnowQueen. I have an appointment to see the endocrinologist at the end of the month

[NIKEGIRL]

Hi. I’ve had Graves a year now. I have had muscle weakness and pain in the hamstring and glutes although this was minor compared to other symptoms. Knowing what antibodies got tested will be helpful. I’m on PTU. I like this drug better than the carbimazole but everybody’s body is different.