Does anyone else have this type of attack, where, you start to feel extremely unwell, start sweating profusely and start to feel dizzy, as if you’re going to blackout?
I’ve been having this type of, attack, for quite awhile and I’ve no idea if it’s something to do with my thyroid or adenomyosis.
Amanda x
How much levothyroxine are you currently taking Do you always get same brand
When were thyroid levels last tested
What vitamin supplements are you currently taking
Night sweats can be low B12
As you have Hashimoto’s are you on strictly gluten free diet
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels or test privately
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Thriva also offer just vitamin testing
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
Also vitamin D available as separate test via MMH
Or alternative Vitamin D NHS postal kit
Please add most recent results
Or come back with new post once you get results
ajb1969
Presumably you have discussed these symptoms with your GP?
Hi
Yes I have discussed the symptoms with my GP, they seem to think it might be my thyroid, however they’re unsure. They just keep lowering my levothyroxine
Did they not do any further investigation? For example, symptoms of vertigo can include heavy sweating and, of course, dizziness; hypoglycemia; dehydration.
What were your thyroid results at the time, what dose of Levo were you taking, what dose did GP reduce to, have you retested since reducing dose? If they keep reducing dose are they testing before each dose change? Can you post all these results with their reference ranges.
No they haven’t done any other testing and I do keep saying that When I googled my symptoms they’re very similar to hypoglycaemia.
Yes, each time My TSH levels were high, And I was advised to reduce my levothyroxine each time, so I’ve gone from 200 mg down to 125 mg at present. I had a blood test a couple of days ago so waiting for results.
ajb1969
Are your doctors actually any good?
Yes, each time My TSH levels were high, And I was advised to reduce my levothyroxine each time,
When your TSH rises you are undermedicated and you need an increase in Levo not a reduction.
Have you any results you can post from when these reductions were made?
Hi
This is the third doctors surgery and I’m relatively new, so I’m still getting used to the various doctors that I speak to.
I do mean low, I get very confused with it all, that’s my terrible brain fog. My memory is absolutely atrocious. It’s never improved.
My TSH results from the ending in May 2020
TSH - <0.05 min/L (0.9 - 2.5)
Free T4 - 22.5 pool/L
Total T3 - 1.9 nmol/L
Vitamin D - 84.0 nmol/L
And my last TSH result in August/September was the same.
When I spoke to the endocrinologist about these results, via telephone, he stated he was satisfied with these results and he wasn’t overly worried, that my T4 was slightly high.
He did want me to lower my levothyroxine at that time but I wouldn’t because I felt unwell.
However, the last results were exactly the same and my GP advised me to lower the Levo again.
ajb1969
Can you please add the reference ranges for those other results so we can interpret them.
Do you have a result for Free T3 (FT3). Total T3 is not a useful test, it measures the total amount of T3, that which is bound to proteins and that which is unbound (free). It's the Free T3 that's available to the cells so that is the most useful test.
Besides Vit D, did you have any other nutrients tested, i.e. Ferritin, B12 and Folate?
My last TSH was the same result 0.05, and no they never test free t3. Even though I keep asking.
I’ve just had my iron levels tested a couple of days ago, so waiting for the results. My previous iron levels are usually normal.
I take daily supplements for b vitamins but haven’t had a test for years. Since 2015 and all okay.
Ajb1969
Is it a B Complex you take? Did you leave this off for 7 days before testing? This is necessary because it contains Biotin (B7) and when Biotin is used in the testing procedure (as most labs do) then it tends to give false results.
It's a good idea to test nutrients once a year to ensure that levels are/remain optimal.
Testing T3 is important because it tells us whether you are converting T4 into T3 well enough. The Total T3 test doesn't tell us this. If FT3 is low with a high FT4 then conversion is poor. It's low T3 that causes symptoms.
Yes it’s a b complex I take.
And no I didn’t leave it for 7 days before testing. I didn’t take anything for 24 hours. I wasn’t aware of that.
Drs only check my iron and vitamin D because I ask.
So you think my ft4 is very high?
The endocrinologist said it was only slightly high and he wasn’t worried.
And it’s always high.
I’ll definitely send off for another blood kit. Think this one might be out of date now.
And I’ll come back with the results for my ft3.
Thanks again, everyone for your help. It’s awful that I have to keep asking, my poor brain will not retain the information for me. 😅
Xxx
Ajb1969
So you think my ft4 is very high?
I don't know. I asked you for reference ranges for your tests but you haven't given them so I have no idea how your FT4 result compares to the range.
I’ll definitely send off for another blood kit. Think this one might be out of date now.
And I’ll come back with the results for my ft3.
Don't do FT3 on it's own, it needs to be done alongside TSH and FT4.
Whose kit have you got and when did you send for it?
Blue Horizon give you 12 months to use their tests, Medichecks used to be 6 months (new tests ordered now have 120 days to use them) and MonitorMyHealth is 3 months.
Oh that’s great news.
I received it in the summer time, I can’t remember what month.
It’s the Thyroid Check PLUS THREE kit bh108 from blue horizon
Thank you so much. I was nearly going to throw it away
From BH's terms and conditions:
ONE YEAR USAGE
You have up to one year from when you have purchased the kit to return it to the Laboratory in the supplied envelope (provided the kit expiry date has not passed). After a year has passed, if you still would like your test, please contact us and we’ll see what we can do for you. Please bear in mind, that additional charges may apply, should you require a replacement kit.
So check the expiry date on the microtainer tube to make sure that it's still in date. If it is then go ahead and use it, if it's expired contact Blue Horizon and they should send you a new kit free of charge.
If you log into your account with Blue Horizon it may show when you purchased the test if you no longer have the order confirmation email.
Thanks xxx
Yes, when I was very undermedicated. Also my sugar levels were dropping, hba1c was below range as result of low hormone levels.
Hi
When you say sugar levels, do you mean the same symptoms as hypoglycaemia?
What blood test do you need to check for hba1c?
The HbA1C test 
Do you mean for diabetes?
The HbA1c reflects your average blood glucose level over the last 10-12 weeks. It is done as a fasting test. I believe it is used in diagnosis of diabetes.
I don't have diabetes, but my doctors checked for it to see my average levels of glucose instead one day glucose test. Also, I have a glucometer to check for hypoglycemia at any given moment. I don't have such bad episodes anymore, but as I change my doses, my sugar levels can fluctuate until it all settles. There is also insulin resistance, which can accompany hypothyroidism. Most important test of all, for you right now, is FT3. Your FT4 is very high, but we don't know what your FT3 is.
Hi,
I’ve never heard or read anything about insulin resistance accompanying hypothyroidism before. That’s new to me. 😀
I’ll have to get myself a glucometer
Yes, I keep meaning to do a private blood test.
And test my ft3. I’ll definitely try again.
I did buy a private blood test kit, a few months ago but unfortunately I didn’t use it, as I’ve been so poorly.
Same symptoms are hypoglycemia, yes and SeasideSusie is right, it is called the HbA1C test, shows you the average glucose level from the past 90 days.
Hi
Thanks for reply.
Yes I’ve been to tested for diabetes a few times now and they say I’m okay.
I did ask the endocrinologist, for the free t3 but they obviously didn’t do it, it was the first time I ever saw him, after waiting seven years for a referral and then my last appointment has been via phone.
Dizziness
Dizziness from Levothyroxine 
Sweating 
Dizziness/headaches 
