From hypo to over medicated., failed ivf., now... - Thyroid UK

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From hypo to over medicated., failed ivf., now high t3 and a dose of 200mg a day PTU? Can I get pregnant and should I take the PTU?

BabydustTSH profile image
12 Replies

To sum it up I had failed ivf cycle I am 40 as my levels were getting higher and no one in th wivfclinic told me to wait... Tsh is 0.005 and staying that way and t4 and t3was rising.

Now my levels are as below ptoto t3 is 9.8and t4 is 23.

Doctor out me on PTU 200 mg a day. 50 mg twice daily.

Should I take it or should I wait for my body to calm down omits own?

I was hypo thyroid after pregnancy ( now have 11 months old baby girl) and then got over medicated on levothyroxine 25 mcg (stopped levo. on the 30 th November) and now t3 is high...

I want to try naturally to get pregnant and feel like I am wasting my time trying.... As levels are high so what s the point right?

True or not?

I have no symptoms. Had some heart palpitations but not anymore...

So worried my liver will fail...

Any advice or anyone been in the same boat?

I am due to ovulate some time in the next 10 to 14 days...

I am not giving up....

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BabydustTSH
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12 Replies
greygoose profile image
greygoose

Have you had your antibodies tested?

Prescribing anti-thyroid drugs for an over-dose of levo sounds a bit weird to me, because it won't help. But, I think we need more information. Like blood test results, with ranges, going back to when you first started taking levo. But, you really do need your antibodies tested to find out what's going on.

BabydustTSH profile image
BabydustTSH in reply to greygoose

Ok I will ask about that. All they tested for was vitamins which were all within range like iron etc bit d etc... I will need to see if I can find my other blood tests and if they tested for that as I am sure they did.

BabydustTSH profile image
BabydustTSH in reply to greygoose

Hi so I pulled some test results is there anywhere a y mention about my antibodies that you can see?I have started taking the PTU medication as I am worried I will gs make things worse but not taking anything if I am trying still to conceive naturally.... I am dabbing in dark and my endo app is not untill February the 9 th.... But I don't want to give my self bad liver and god knows what else if I am trying still to get pregnant....

See if these bloods tell you anything... Are you a gp? Or NHS healthcare professional if I may ask?

Kind regards

Lu

Thyroid results
greygoose profile image
greygoose in reply to BabydustTSH

Those results are very difficult to read, because too small, and if enlarged become blurred. But, I can't see anything that relates to antibodies, just TSH, FT4 and FT3.

No, I'm not a doctor, nor any kind of healthcare professional. This is a patient-to-patient forum, none of us are healthcare professionals.

SlowDragon profile image
SlowDragonAdministrator

Sounds like you have Hashimoto’s, autoimmune hypothyroidism

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms and PTU is not correct treatment

PTU or Carbimazole are to treat Graves’ disease (autoimmune hyperthyroid) diagnosed by high TSI or Trab antibodies

Ft4 and Ft3 are not high enough for Graves’ disease

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask doctor to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

BabydustTSH profile image
BabydustTSH in reply to SlowDragon

HiI had my vitamins tested and all were in the range.

SlowDragon profile image
SlowDragonAdministrator in reply to BabydustTSH

Please add actual results and ranges

You need thyroid antibodies tested

Image not readable

BabydustTSH profile image
BabydustTSH in reply to SlowDragon

It's all I have.... 😅 Can't make it better it makes it unreadable on here so I am gonna write it out....My TSH is always stuck at 0.005

Free t3 is slowly rising since I stopped the levothyroxine tablets on the 30 th November. Its not 9.6!

And t4 is 22.

I know they tested for antibodies but I don't have the result. Doctor decided based on the antobodies result that I am hypothyroidic. But now I seem to have switched to high thyroid... So they placed me on the PTU. I just need to compare what Dod other people did when same happened to them.

Ladiea is there anyone whom couldn't or could get pregnant with these levels?

Did you take the PTU or not?

My endocrine app is not untill 9 th February... It's discrace I have to wait that long....

SlowDragon profile image
SlowDragonAdministrator in reply to BabydustTSH

What are tg3 actual results and ranges for

Vitamin D

Folate

Ferritin

B12

Clearly must have antibodies tested

TPO and TG antibodies for Hashimoto’s

TSI or Trab antibodies for Graves’ disease

Results and ranges for

Ft4

Ft3

BabydustTSH profile image
BabydustTSH in reply to SlowDragon

Right here are the results for the antibodies... And vitamins and t4 and t3.... As I can upload only one photo I will upload one and then l will upload another one which has the antibodies.

BabydustTSH profile image
BabydustTSH in reply to SlowDragon

Here is the thyroid peroxidase antivod level.... 1083iu/ml....

So not sure if that means I am hashi or hype thyroid... ?

Or what I have... 😅

I am loosing weight though so I started taking the PTU only 2x 50 mg twice daily. (no levothyroxine tbs)

Any advice from any other ladies did you manage to conceive naturally with this and with the AMH of 1.6

SlowDragon profile image
SlowDragonAdministrator in reply to BabydustTSH

High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s - ie HYPOTHYROID

PTU is not correct treatment for anyone with Hashimoto’s

PTU or Carbimazole are for Graves’ disease- autoimmune HYPERTHYROID.

Graves’ disease MUST be confirmed by testing TSI Or Trab antibodies

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms. It’s not true hyperthyroidism.

Hashimoto’s is autoimmune hypothyroidism. Typically in early stages, as cells breakdown, they release excess thyroid hormones causing temporary high levels

Weight loss is common in early stages. After each attack thyroid becomes more damaged and increasingly hypothyroid

Low Ferritin needs improving.

When hypothyroid we need OPTIMAL vitamin levels

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

Strictly gluten free diet frequently helps reduce attacks and is often essential to help reduce symptoms

ALWAYS get coeliac blood test before trialing strictly gluten free diet

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