Hashimotos+ Covid Vaccine: Hi Folks :) , Now... - Thyroid UK

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Hashimotos+ Covid Vaccine

catsmummel profile image
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Hi Folks :) , Now they`re starting to dish out the Covid Vaccines, does anyone know if it`s safe to have it for those of us with Hashimoto`s disease?

many thanks in advance :)

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catsmummel
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26 Replies
Marz profile image
Marz

I would suggest doing your research thoroughly. The vaccine is a new method and as yet has not fulfilled all the testing criteria. Is it safe ? Is it effective ? Noone knows. The PCR test was used which has been proven to be unreliable. We need to know the CT level - Cycle Threshold as anything over 30 will generate some debris of unknown origin - one of several other Corona viruses ? The level used throughout Private labs has been too high generating 'cases' throughout the UK. It is a vaccine that creates an immune response which if you come into contact with a wild virus could create a cytokine storm.

Lots to consider ...

catsmummel profile image
catsmummel in reply to Marz

Hi there Marz, + thankyou :) , yes, i`m definitely trying to find out as much as i can. It`s a very worrying situation. Again, thankyou :)

Lora7again profile image
Lora7again

I think all of us with autoimmune diseases are concerned and need to be reassured that we won't get an adverse reaction to this vaccine. Hopefully if any of us have the vaccine they can share their experience with us on this site. I am number 7 on the list so older people will be getting it before I do and I am sure there will be some who have autoimmune diseases.

helvella profile image
helvellaAdministratorThyroid UK

I see the original question sensibly refers to Covid Vaccines. And I think that is important.

At present there is only one, the Pfizer/BioNTech product. The answer is at present unclear though the patient information is available here:

gov.uk/government/publicati...

I don't think there is any published evidence that there is a problem if you have Hashimoto's, but I haven't seen anything that clearly states there is no possibility of an issue.

I'll point out that this vaccine contains neither mercury nor aluminium - which are commonly quoted concerns.

Mickeydooley profile image
Mickeydooley in reply to helvella

I just found this which concerns me. One of the conditions which may lead to complications is Hashimotos according to Dr Mercola. What are your thoughts?

RedApple profile image
RedAppleAdministrator in reply to Mickeydooley

Mickeydooley, There is no evidence so far that people with thyroid disorders (autoimmune or otherwise) are at any particular risk from any Covid-19 vaccination. As these are such new vaccines, only time will tell though.

You can look at the comments on our poll to get some idea of how people with thyroid disorders who have already been vaccinated, are or are not being affected.

healthunlocked.com/thyroidu...

The Thyroid UK position statement may also be of interest

thyroiduk.org/about-thyroid...

hyporeb profile image
hyporeb

Catsmummel I have the very same question as you. They are so desperate to get everyone to have this vaccine (understandably), my worry is that they’ll just say it’s fine. I have zero trust in my GP surgery as it is - from my experience they have very limited knowledge of autoimmune thyroid conditions.

thyr01d profile image
thyr01d in reply to hyporeb

Same here Hyporeb, lost trust in GP after bad experiences, so glad we have this forum.

Topsy33 profile image
Topsy33

Yes, I am worried about this too. My Doctor said there are no dangers for autoimmune people but I asked where was the evidence for that assertion and he didn’t know.

I do not trust my surgery to make that decision on my behalf without proper evidence. I have had very unpleasant negative reactions to flu injections in the past and now refuse them. I was very unwell following Tetanus jab when younger and all my childhood inoculations resulted in repeated hospital visits to deal with side effects.

I get the impression that surgery don’t know and don’t care about about potential side effects......people who are worried are lumped together with anti-vaccers and treated accordingly.

I think we all need more info and more reassurance and clearly GP’s and surgery staff are not educated enough to provide that in a way that currently gives me any confidence.

Hillwoman profile image
Hillwoman in reply to Topsy33

I hate the accusation of "anti-vaxxer" that is thrown at anyone who expresses concern. Few of us become concerned about vaccination until we, or people close to us, suffer adverse effects. I've experienced very unpleasant acute responses to vaccines, as well as long term damage from a series of vaccinations in my teens. Most of the ones I had were contraindicated in people at risk of autoimmunity, which my GP knew but failed to warn me.

Since then, I've had only a tetanus booster - given for no reason other than the practice nurse claiming I was "overdue", and mysteriously having the shot ready in her hand when I walked through her door for something else! The booster put me in bed for a fortnight and exacerbated my health problems for rather longer.

BlueMoon65 profile image
BlueMoon65 in reply to Topsy33

Completely in agreement. I certainly feel my GP knows nothing about autoimmune problems. Like you, have had some very unpleasant reactions in the past, and decline the flu vaccine. We will hold on and wait for evidence, whilst refuting clearly and emphatically any accusations of being ‘anti-vaxxers’.

penny profile image
penny

I think that there are a lot of people who are concerned about the new vaccines as there is a paucity of detailed information about them. I have been doing a lot of reading about this and, like you, have concerns about interactions for those with autoimmune conditions. Dr Kendrick’s blogs are a good source of information IMHO. I have read a BMJ article which says that the 90% efficacy quoted is a relative benefit and that the absolute benefit is about 0.4% (or something in that region, I don’t have the link to the article any more). In other words, it depends on how you read the numbers. Again, Dr Kendrick has a good explanation of the difference between relative and absolute. Dr Mike Yeadon, and others, is trying to get a review of the approval for the Pfizer vaccine due to lack of data. I find that if one raises questions one is labelled ‘anti-vaxxer’ as a pejorative term when this is not the case at all; we just need more, unbiased information.

Angel_of_the_North profile image
Angel_of_the_North in reply to penny

Here: blogs.bmj.com/bmj/2020/11/2... and here bmj.com/content/371/bmj.m4037

penny profile image
penny in reply to Angel_of_the_North

Thank you, Angel_of_the_North.

Not all it seems, it seems.

The actual trial data shows that it was not tested on people with autoimmune diseases, but since many people don't know they have Hashis, just that they have an underactive thyroid, it is possible that some might have been included in the trials - but we can't know. The list of exclusions from the various stages of the trial is available here on the Study Details tab: clinicaltrials.gov/ct2/show... The NHS seem more worried about pregnancy and say that you should not have it if you are pregnant, or expect to become pregnant in teh next couple of months or are breast feeding - but most people of the relevant age group will be right at the bottom of the list for rollout (unless working in medicine or care)

Marz profile image
Marz in reply to Angel_of_the_North

healthandmoneynews.wordpres...

Bit more about infertility. It can affect men too.

Lora7again profile image
Lora7again

It has just been reported that a couple of people have had a anaphylactic reaction to the vaccine. So that rules me out having it because I have had a few in the past.

dailymail.co.uk/news/articl...

helvella profile image
helvellaAdministratorThyroid UK in reply to Lora7again

I posted a couple of hours ago:

healthunlocked.com/thyroidu...

The advice applies ONLY to the Pfizer/BioNTech vaccine. At present, the only one we have, but I think it important to be clear about the scope of the warning.

Lora7again profile image
Lora7again in reply to helvella

I didn't see that where did you put it?

helvella profile image
helvellaAdministratorThyroid UK in reply to Lora7again

Follow the link in my reply? :-)

Lora7again profile image
Lora7again in reply to helvella

It does not show up on my hub at all.

helvella profile image
helvellaAdministratorThyroid UK in reply to Lora7again

Do you not see a blue link in-between:

I posted a couple of hours ago:

AND

The advice applies ONLY to the Pfizer/BioNTech vaccine. At present, the only one we have, but I think it important to be clear about the scope of the warning.

?

Lora7again profile image
Lora7again in reply to helvella

Ok but I have no intention of having any of the vaccines until I know it won't affect me in an adverse way. I am not the only one who feels the same either and I have been discussing it with some other Graves' sufferers on another site.

Topsy33 profile image
Topsy33 in reply to Lora7again

Yes, me too Lora7again. I’ve had A S twice now and collapsing unconscious in the street and waking up in hospital with BP so low I was barely there is not something I would ever want to risk again!

Mostew profile image
Mostew

I’m so glad you brought this up . I’ve been feeling as though I’d be viewed as anti vaccine nutter ! I would be happy to wait and just take all the sensible measures I have been taking . Then when we have more evidence consider it .

We really need to be cautious about what we are be ‘fed’ by the powers that be xx

Lora7again profile image
Lora7again

Yes I was surprised to hear that. A few years ago I was injected by my GP with Pethidine which I am allergic to because I had a reaction to it when I was giving birth to my daughter in the 80s. The GP hadn't checked my notes at all. When she told me I did shout at her and she told me go home and rest. I didn't get as far as the car because I collapsed and my husband who was waiting for me had to carry back into the surgery. They called an ambulance and I was rushed to hospital with all the lights flashing when I came around I started to be sick and was sick all the way to hospital until I was seen by a doctor in A & E. Now I always ask before any doctor injects me with anything. The doctor concerned never apologised for her mistake and she retired shortly afterwards.

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