Sorry for yet another question to all you knowledgeable people.
As mentioned, Im gathering information for my lowsy appointment with CFS specialists and came across the below article about a mild TIA due to Hashimotos.
Can anyone explain whether my stroke could of been caused by Hashimotos? Im trying to understand what seems to referenced that this has been the case in attacking the pituarty gland.
After I had my son, I never regained my health, was really really ill. It wasnt until I met Dr S that he explained that Hashimotos can be triggered after birth (or during pregnancy) and that he thought my stroke was caused by Hashimotos. For years leading up to his birth, was struggling with Hypo symptoms and no diagnosis.
Thanks for posting the link Savery8753 and I think many will be horrified to think that there's a possibility after for pituitary tumors of strokes, even if very small numbers do get one.
I am not medically qualified but have read that if we have too low a dose of thyroid hormone replacements we can get 'other' more serious conditions. T3 is needed by our brain in particular and they never test either FT4 or FT3 to see what is circulating. The following is from TUK 'Myths of Hypothyroidism'
Hypothyroidism is associated with:
Unhealthy cholesterol levels . Hypothyroidism raises levels of total cholesterol, LDL (the so-called bad cholesterol), triglycerides, and other lipids (fat molecules) associated with heart disease. Treating the thyroid condition with thyroid replacement therapy can significantly reduce these levels.
Mild high blood pressure . Hypothyroidism may slow the heart rate to less than 60 beats per minute, reduce the heart's pumping capacity, and increase the stiffness of blood vessel walls. All of these effects may lead to high blood pressure. Indeed, patients with hypothyroidism have triple the risk of developing hypertension. All patients with chronic hypothyroidism, especially pregnant women, should have their blood pressure checked regularly.
Heart failure . Hypothyroidism can affect the heart muscle’s contraction and increase the risk of heart failure in people with heart disease.
The evidence for subclinical hypothyroidism and heart disease is mixed. Some studies suggest that subclinical hypothyroidism increases the risks for coronary artery disease and heart failure. The only randomized controlled trial dealing with subclinical hypothyroidism and heart disease evaluated only the thickness of atherosclerosis in the blood vessels and not whether patients actually had clinical heart disease. Many doctors believe that treatment of subclinical hypothyroidism will not help prevent or improve heart problems. More research is underway.
Effects of Hypothyroidism and Subclinical Hypothyroidism on the Mind
Depression. Depression is common in hypothyroidism and can be severe. Hypothyroidism should be considered as a possible cause of any chronic depression, particularly in older women.
Mental and Behavioral Impairment. Untreated hypothyroidism can, over time, cause mental and behavioral impairment and, eventually, even dementia. Whether treatment can completely reverse problems in memory and concentration is uncertain, although many doctors believe that only mental impairment in hypothyroidism that occurs at birth is permanent.
Thanks Shaws, I dont understand why nobody is listening to me! After my stroke, I was referred to Endo, who said my stroke could have been caused by my elivated TSH and put me on a low dose of Carbimozol for 6 weeks, then said my bloods looked fine no need for further treatment.
Well after that, I got even worse, I was the walking dead.
Sorry to keep referring to Mr S but he was absolutely disgusted to say the least. Started on Levo then in 6 weeks became very energetic, back to normal and ready to take on the world.
Can anyone recommend someone I can see as havnt found anyone since his death that can help without looking at the ruddy bloods!!!
I'm sorry, he said you had ELEVATED TSH and put you on an anti-thyroid drug? That would have elevated your TSH even further. Are you sure you got that right? Because if you did, he didn't!
I and my daughter saw Dr S and he knew what he was talking about and tried his best to 'persuade' the Endocrinology that we were (undiagnosed/undermedicated) in a parlous situation. Did you know he even organised a Conference to discuss the situation with all Endocrinologists,
All Endocrinologists refused one by one. Dr S was a virologist and that's how he became to be known by being sent patients who had 'mysterious disease' and he found they were undiagnosed due to blood tests and they in fact were hypo according to their clinical symptoms.
So, Dr S through humanitarian reasons and providing prescriptions to us,he was then hounded by those who you'd expect to know most but dont and he appeared before the GMC more than once and the strain was too much that he had a stroke and died and it wasn't his patients who complained about Dr S.
The organisations have put clinical symptoms on the back burner and have no knowledge of them. That's why we end up getting prescriptions for the 'symptom' rather than an increase or an alternative thyroid hormone. There now seems to be no alternative on the NHS as they've recently stopped T3. So who knows what is the next step for patients.
Dr S also saved the life of Lorraine Cleaver who has a case before the Scottish Parliament.
I have just read greygoose 's comment and she is right. If he prescribe Carbimozol he was treating you as hyperthyroid.
email louise.roberts@thyroiduk.org.uk who has a list of doctors who have been recommended to her.
Have you had a recent blood test i.e. TSH, T4, T3, Free T4,Free T3 and antibodies? If not and you can afford a private test Blue Horizon and Medichecks offer home pin-prick ones. You will then have a starting point and members will also advise upon them.
We have to take our health into our own hands if we don't want to develop other illnesses.
Yes, I was aware of Dr S's battle with the GMC, very sad.
I havnt been able to twork for 6 months am trying to save any penny spare to do some tests. In the meantime Im planning my pitch to the CFS specialist (same approach as I do in sales appointments, or did).
When I attended the 'group' consultation before this one to one appointment I was asked to leave the room and wait for the lady at the end. Whilst laying on the floor being taught how to lie and breath comfortably to help sleep and relax better, I made myself thoughts known. I coudnt help it, it just came out. So, it'll be interesting to see what he has to say.
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