Burning tongue

[Goldenpony88]

Hi,

Has anyone had issues with a sore/burning tongue? I have under active thyroid. thanks.

[SlowDragon Administrator]

How much levothyroxine are you currently taking How long on this dose

Do you always get same brand of levothyroxine

What vitamin supplements are you currently taking

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Do you have Hashimoto’s

Ask GP to test vitamin levels

Low B vitamins may cause burning tongue

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

[Goldenpony88 in reply to SlowDragon]

Thanks for the reply.I’m taking 100mg a day.Had my bloods checked, no anaemia or iron deficiency.

My blood tests are taken every 6 months, not asked to fast or anything.

[SlowDragon Administrator in reply to Goldenpony88]

Please add actual results and ranges for

B12

Folate

Ferritin

Vitamin D

Plus

TSH

Ft4

Ft3

Normal isn’t same as optimal

[SlowDragon Administrator in reply to Goldenpony88]

All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

If you took levothyroxine before test, this gives false high Ft4 result

[humanbean]

Burning tongue is often associated with low nutrient levels, particularly low B vitamins.

Low nutrients are definitely associated with hypothyroidism.

Many people with thyroid disease need to take a good quality B Complex. It helps a lot, but it is worth getting tested for folate (vitamin B9) and vitamin B12 before starting a B Complex product, so at least you have a baseline. Once you know your levels of folate and B12 you should write them into a new post and ask for feedback.

Some people with very low levels of folate and B12 need to be investigated for Pernicious Anaemia, but supplementing before testing can make it virtually impossible to get a diagnosis. So, don't supplement until you know whether or not you need further investigating.