tongue

[pabhoo]

anyone have problems with their tongue due to thyroid probs?

[Marz]

What sort of problems ? A swollen tongue with a pie-crust edge can be indicative of thyroid issues. Also Low B12 can be the cause of tongue problems.

[pabhoo in reply to Marz]

it feels like my whole mouth is being overtaken by my tongue it's sore too

[Marz in reply to pabhoo]

Do you have any test results with ranges you could share ? Thyroid and vitamins and minerals ...

[pabhoo in reply to Marz]

well all my doctor puts is results are normal... so no numbers or anything

[Marz in reply to pabhoo]

Yes but if you have been following this Forum you will know that you are entitled to have copies of results with ranges - results that are legally yours.

[pabhoo in reply to pabhoo]

been on thyroxine 50 mg 4 15 yrs

[Marz in reply to pabhoo]

healthunlocked.com/thyroidu...

You were asked for results last time - two months ago. Difficult to help without a starting point ... 50 mcg is a starter dose - when were you last tested ? No wonder you have a swollen tongue if you have been on such a small dose for so long ... Please read your post/replies above too ...

[pabhoo in reply to Marz]

August last yr

[pabhoo in reply to pabhoo]

can doctor refuse my my fullresults if I ask

[Marz in reply to pabhoo]

As I said above - your results are legally yours - so they cannot refuse. You do not have to see the GP - ring the Receptionist and politely mention you will be along in a few days to collect them. Job done ! You need the results from August last year - and then start a NEW post so more people see the results with ranges ...

[MaisieGray in reply to Marz]

You shouldn't need to give notice for just a copy of the latest results. Earlier this week, as always, I simply walked into the surgery and asked for a copy of my echocardiogram results, oh and can I have a copy of the last letter to the CCG too please; and they were both printed off without comment.

[Marz in reply to MaisieGray]

Just hoping OP obtains results as easily ! We seem to read many posts where its an obstacle course 😊 Living in Crete we keep all our own records !

[pabhoo in reply to Marz]

yes I been following but not all the time.... I will have t get t docs,and get these results

[pabhoo in reply to MaisieGray]

I hope it's as easy as that for me lol

[pabhoo in reply to Marz]

I'll get them n post them be quite a few,days as I do shift work 😁

[Greenwall in reply to pabhoo]

HI had tongue problems before starting levo. I'm on a low "starter" dose now, and no longer have a problem.

[Caroline888]

I have oral lichen planus which affects my tongue only. This can be extremely painful, making it difficult to eat. I think it is another autoimmune disease.

I have had this for over 10 years though I have been very fortunate in that I have only had two flare ups in all that time and it doesn’t normally cause me any pain. In fact since I’ve been on levothyroxine it seems to have improved considerably.

A small amount of Manuka honey held in the mouth for a time provided me with some relief. Also salt water gargles and garlic pearls were helpful in my case.

Hope you find the answer to your problem soon.

Best wishes

Caroline

[SlowDragon Administrator]

As others have said, 50mcg Levothyroxine is only the standard starter dose.

You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Once you get copies of previous results come back with new post, members can advise next step

Likely futher blood tests will be needed due test vitamins and antibodies

Recommended that thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

NICE guidelines saying how to initiate and increase Levothyroxine

Note that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine

cks.nice.org.uk/hypothyroid...

[pabhoo in reply to SlowDragon]

the only online thing I use is,systmonline which I use t order prescriptions etc... it has results on but not detailed

[pabhoo in reply to pabhoo]

rung doc just now. gotta go in with i d t get them so that b monday or Tuesday afternoon after work

[Marz in reply to pabhoo]

Start a new post with results AND ranges - so they are not missed in this thread and more people see them

[pabhoo in reply to Marz]

I will keep a lookout but it wont b till after Monday due t work in the a.m

[pabhoo in reply to pabhoo]

marz