Totally confused and worn out

[Dottie19]

I hope as on levothyroxine for three years and felt terrible with headaches etc . Paid privately to see endo and went on ERFA . Was better , headaches and puffiness went and generally improved .

I couldn’t get anymore ERFA through GP and have tried Metavive . 11

Just had a lightbulb moment maybe this is why I’m so fatigued , terrible headaches again and pain throughout body ?????

I know we cannot advertise on here but getting so confused and desperate what to do next

Thanks for any suggestions 🌸

[SlowDragon Administrator]

As per previous post

healthunlocked.com/thyroidu...

First step is to get FULL thyroid and vitamin testing

Important to know if you have high thyroid antibodies and essential to regularly retest vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

What vitamin supplements are you currently taking

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

If/when on Metavive make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Come back with new post once you get test results

[Dottie19 in reply to SlowDragon]

Thank you for your support 🌸