Carbimazole, think I was right not to take it. - Thyroid UK

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Carbimazole, think I was right not to take it.

Vee1967 profile image
4 Replies

Further to my previous post, I had more bloods done last week for TRab test. The results came back today and are showing as everything in range, so really don’t know why they wanted to prescribe me Carbimazole, hopefully doctor will contact me tomorrow to discuss.

While looking at all my other result I did notice my B12 was low normal at 206, so now looking at foods/supplements to help me increase that.

If anyone can recommend anything that would be appreciated.

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Vee1967 profile image
Vee1967
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SlowDragon profile image
SlowDragonAdministrator

Looking like Hashimoto’s - Autoimmune hypothyroidism

Frequently starts with transient hyperthyroid results and symptoms

We see quite a few Hashimoto’s patients where GP thinks that transient result is hyperthyroid Graves’ disease

Carbimazole is NOT correct treatment for Hashimoto’s

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels and thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Buddy195 profile image
Buddy195Administrator

Hi, Slow Dragon suggested the same to me and was correct. Endo has diagnosed Graves but my private blood antibodies clearly showed Hashis. I definitely had more hyper symptoms and understand that I physically presented as Graves. Having key vitamins in range and TSH under one helped my symptoms enormously.

Singoutloud profile image
Singoutloud

Looking at your previous results you were never anywhere near being hyperthyroid at all. Both then and now your Ft4 & Ft3 were low in range. To be honest it is really bloody scary that a specialist would actually consider prescribing Carbimazole on TSH alone and your GP didn't even have enough of a clue to protect you.

To me it looks as though it could be Central Hypothyroidism also called Secondary Hypothyroidism. It's when the pituitary gland isn't getting the message from the thyroid that it needs to produce more TSH

If you use the search function you can see other posts about Central Hypo with links to information you can give your doctor. You will probably need a referral to a specialist (preferably not the one your GP consulted before)

*edited to add*. A word of caution before supplementing B12 is to try to find out why it is low. If your diet includes plenty of meat, fish, dairy & eggs then you need to be looking at others reasons for your lack of absorption and B12 injections. Supplementing before further tests will skew the results for months and doctors then refuse to look any further for the cause. Pernicious Anaemia, certain medications, illnesses like Coeliacs disease & gut /bowel operations can cause b12 absorption issues. This is a really good site b12deficiency.info/contact-me

but you can also have a look at the Pernicious Anaemia Society forum here in Health Unlocked.

pennyannie profile image
pennyannie

Hey there again :

So, going by the above print out, as best as I can see, it seems the Graves antibody hasn't been tested as your results are not " thyrotoxic " and are in range and considered " normal :

Your TPO antibodies were, I believe, over range on your last post, so, if anything, this would suggest the start of Hashimoto's autoimmune thyroid disease.

This disease presents with " hyper " phases as the antibodies attack the thyroid gland sending it haywire : the " hyper " phase is transient and your levels come back down by themselves and you may feel a bit " worse for wear " as your own thyroid production may have been reduced, as with each " hyper " phase your thyroid gland becomes more disabled and ultimately you will require thyroid hormone replacement - Levothyroxine - to support the ailing glands erratic production.

Your T4 level is quite low in the range at around 11% and I think this is lower than reported in your first post, so this maybe something to consider with your doctor, as no doubt your T3 has also dropped and it is low T3 that causes symptoms of hypothyroidism just as high T3 levels cause symptoms of hyperthyroidism.

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