Anyone else...?: So, I’m pretty steady on my T... - Thyroid UK

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Anyone else...?

Murphysmum profile image
9 Replies

So, I’m pretty steady on my T3 only schedule now. I’ve been on a combo for nearly two years now and T3 only since the start of this year and on the whole I feel,so much better.

My activity levels are as they were before I got ill, I completed the couch to 5k in lockdown (frustrated I can’t keep it up now) and I’m walking 6/7k plus all the other daily activities every day now.

However... every so often I feel rubbish. My joints ache - my hips, neck and fingers especially - I feel headachey and my tinnitus runs riot. I just feel generally unwell.

No swollen glands, no temperature, nothing. I’ll feel like this for one day, maybe two and then I’ll be back to normal.

It’s happened so many times now. Each time I think I’m catching something, but each time it just goes again.

Does anyone else get this? I’m supplementing regularly so I don’t think it’s a lack of anything, though I do increase my Vit C when it happens, which is maybe once every three or four months.

Weird. Just thought I’d ask! 🤷🏼‍♀️

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Murphysmum profile image
Murphysmum
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9 Replies
Jazzw profile image
Jazzw

I’ve just looked at a previous post of yours and spotted thyroid antibodies. So I think we can say you have autoimmune thyroiditis or Hashimoto’s.

And at a guess, it’s that. When your body’s under attack from the autoimmune disease, it’s likely to make you feel under the weather.

Is it stress related in any way? Or something you’ve eaten?

I’m sad to say I can no longer eat oats, not even GF oats, and ice cream does quite a number on me. I miss being able to eat everything. Youth really is wasted on the young. :)

Murphysmum profile image
Murphysmum in reply toJazzw

Ice cream?? Nightmare 😂

I don’t think it’s anything I’ve eaten... apart from avoiding bran I don’t have any issues and I’ve spent serious time trying to work out if I have!

You could be right about the antibodies, I hadn’t really thought of that. Talk about missing the obvious!

I remember once being told I had summer flu (I was a teenager) and I had a cough, sore back and achey and was good to take it easy for a week or two. This feels the same but it happens way too often.

Jazzw profile image
Jazzw in reply toMurphysmum

You have my sympathy. x

I seem to go through similar spells although my thyroid antibodies resolutely stay low. I suspect I’m one of those people who has Hashi’s without antibodies ever being high (or that I have some other undiagnosed autoimmune thing going on).

Steni profile image
Steni

Yes to all the above - when it happens I tell myself and anyone else who questions or doesn’t understand what this is that ‘I’m having a flare up’ that sounds serious enough to be impressive and I take myself off to bed to rest for a day! The next day I’m as right as rain 🤷‍♀️

Murphysmum profile image
Murphysmum in reply toSteni

Well, yes!

It’s exactly what’s it’s like, isn’t it? It’s funny how you can go from absolutely fine one day to feeling like you have mild flu the next. It’s bizarre.

As jazz said, I can only assume it’s antibodies as everything else is stable.

Glad it not just me though! I’ll ride it out, again, and next time it happens allow myself to feel a bit rubbish without racking my brain all day as to what needs changed, tweaked, increased etc 😂

SlowDragon profile image
SlowDragonAdministrator

Common food triggers ...gluten obviously, lactose, nightshades - tomatoes, aubergines and peppers (and potatoes)

Which antibodies are raised? TPO or TG or both?

Murphysmum profile image
Murphysmum in reply toSlowDragon

Both as I recall but they’ve never been crazy high.

It’s not really something you can monitor very precisely though is it?

Can’t say I’ve ever noticed any difference good or bad with gluten. I have tried!

The others, potentially but I would say it happen more often if it were 🤷🏼‍♀️

Who knows! Better today, focussing on taking all the appropriate supplements again (it does tend to focus my mind if nothing else!)

I’ll start keeping a diary (again) and see if I can spot a trend...

SlowDragon profile image
SlowDragonAdministrator in reply toMurphysmum

Soya is the other I missed off the list, including soya lecithin

Murphysmum profile image
Murphysmum in reply toSlowDragon

Yick, don’t like soya 😂

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