Not been on here for a while, I'm just lost.. my app with the endo was cancelled AGAIN... 3rd time now... I was seeing him due to calcium being raised on last 2 blood tests.. As I was diagnosed in March 2004 with hyperparathiyroidism I thought I would have been seen as the doctor locum not my own... Noted I was having hyper symptoms it was he who arranged the emergency app.. I received the letter of cancellation, then received a letter about 2 or 3 days later saying it had been put to a phone consultation with another endo funnly enough it was with the endo who I saw about my hyperparathiyroidism in 2004. She did say my calcium was high I mentioned the app with her in 2004 she was adimant it could not have been her as she never worked at that hospital in 2004 she said she would look in to it, her response was by letter... You informed me you had high calcium levels in 2004 however I am uncertain if this has been followed up she went on to say.. When reviewing your results I noted you had intermittent raised calcium, but could not find further investigation. She went on to say that she will do further bloods and a 24 hour urine test.. And this will be followed up by an app in the endocrine clinic in 6 months time!!! She also says that T3 is a short acting drug and I therfore may require having T3 twice a day. I'm on 20micrograms at the moment, the letter is dated 10th June I've yet to hear anything from my doctors on the upping of the T3 so I phoned up to be told I need to ring back after 2 for follow up work and blood test results.. I did only to get a message they were closed!!! Rining again today to see what's going on.. Its a circus with my surgery at the moment 😩 I'm so sick and tired of it I've actually managed to write to the surgery and hospital requesting to look at my medical records for myself 😠😠
Hope everyone is OK... ❤️❤️
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birkie
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Yeah on T3 only... 20 micrograms... I see what u mean about splitting the dose.. When I received the tablets they were 20micrograms Do you think 20micrograms is enough to obtain a stable level of thyroxine? Ive taken 56 T3 tablets so far, my bloods were done over 2 wk ago T3 T4 TSH and calcium I'm still trying to obtain them printing is out as you cannot go to the surgery to pick them up.. My last bloods before going on T3 only(teva) were..
TSH.. 10.96..range... 0.30-4.50mU/L
T3...3.2..range..3.10-6.80pmol/L
T4...9.8..range..11.00-22.00pmol/L
Seems I'm waiting longer and longer to have my bloods done😠 also I looked up parathyroid (overactive) hyper.... And it said any rise in calcium should always be investigated... When I was diagnosed with hyperparathiyroidism in 2004 they did a wait and see approach and noted in my next blood test my levels had returned to normal no further action was required eventho my parathyroid gland had gone overactive... 🤔 Later on that year I went to Newcastle hospital and was diagnosed with fibro / ME... Both my gp and endo know my calcium levels have risen but don't seem to be following this up other that to keep taking bloods... I showed rise in calcium last year in July or Aug.. Taken to hospital with blood in my urine in great pain in my kidneys they said I'd passed a stone 🤔
Hi I'm so sorry for all this slowdragon but I'm at the end of my rope with it all... I actually take my T3 at 7 in the morning to be honest I've not split the tablet just took the full 20 micrograms I don't take the tablet on the day of blood draw so my last dose would be 7 the morning before the blood draw if that makes sense ♥️
So I should start to split my dose then... I'll start doing that.. As I say I'm not a wear of what the tests say as I've not be able to obtain the results yet.. When I do I will post on here
First yes endo knows I'm only on T3 and 20micrograms my prescriptions only come from gp... Just received my third bottle today it's teva 20micrograms 28 in bottle. I ve just rang my surgery again to be fobbed of this time their saying my endo put my blood results on ICE.... So my gp can't access them.... Loda of crap I'm sure they can. As the endo is not in
Untill tomorrow she's had a week off I can't have my results.. Its been like this for over about 2 weeks now.. Still no further ahead with my bloods after being on T3 only for nearly 56 days 😠
Current dose of T3 is sort of dose that should be taken alongside levothyroxine
Eg 75mcg levothyroxine plus 20mcg T3
On just T3 you are likely to need dose increase in T3
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
When on T3, make sure to take last half of daily dose 8-12 hours prior to test, even if this means adjusting time of last dose day before test
Is this how you do your tests?
List of private testing options
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
Yes I do all of that even tho the nurse keeps telling me I should not fast unless the doctor orders it....also fgot to mention when I'm talking sometimes it's like I've been on helium my voice is weird and I've been having pulsing pains in my throat... When I rang my endos secretary last week even she noted my voice....,, 🤔
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