Hi everyone,
I have been hypothyroid and on Levothyroxine for 18 years. I have been taking 100 mcg for quite a long time.
4 weeks ago I started having palpitations (my pulse went over 100 beats per minute), muscle twitches, I am losing weight and muscle mass, I have been anxious, not sleeping well, hair loss.
My NHS blood test on 15.7.2020 was:
TSH 0.29 (0.35-4.78), FT4 22.6 (10-20) No FT3 tested
I lowered my meds to 50 mcg, however my symptoms persisted
Last Tuesday 21.7., I had an episode, where my heart was racing, I was dizzy, shaky, blurred vision and nearly fainted. I felt so rough! I was taken to A&E. ECG was fine. My blood test from that day was:
TSH 0.05, FT4 20.5 No FT3
I was advised to lower meds to 25 mcg. I have not taken them for 3 days and feel much better. Heart calmed down, no palpitations, I feel stronger, less muscle fatigue, although still get muscle twitches here and there. I took 25 mcg this morning and so far feel fine, although noticed slight palpitations and more muscle twitching.
I have no idea what is going on at the moment and why is this happening.
Few other things to point out:
5 weeks ago I changed from 100 mcg North Star to Mercury Pharma but changed back to North Star after 2 weeks due to my symptoms developing.
I had negative test for Hashimoto's antibodies a month ago from Thriva, FT3 was 3.62 (3.1-6.8)
I am having a full thyroid NHS blood test next week including FT3 and antibodies TPOAb and TGAb. Apparently only endocrinologist can order TSAb and TBAb.
I am seeing an NHS endocrinologist on 21 August - anything I need to know and ask to be prepared for the appointment?
Any insight into this and advice would be much appreciated.
Thank you.