Private endo results: Evening got my blood... - Thyroid UK

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Private endo results

Lillygirl66 profile image
8 Replies

Evening got my blood results back and thyroid fine. Have some abnormals with other results.

So looks like I'm fighting an infection endo said.

Also said I might has sleep apnea because I wake slot.. don't think I've ever thought that and surely hubby would notice of

Call with gp Tuesday to go through why I'm still feeling so poorly.

Thanks

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Lillygirl66 profile image
Lillygirl66
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8 Replies
Lillygirl66 profile image
Lillygirl66

He just said I've got an infection I'm fighting.

SlowDragon profile image
SlowDragonAdministrator

Previous results from 6 months ago

healthunlocked.com/thyroidu...

Vitamin D is too low and dropped a lot since last test

Are you supplementing vitamin D?

Aiming to improve vitamin D to at least around 80nmol and around 100nmol maybe better

No folate or ferritin results?

Ft3 is low in range. No Ft4?

Are you on B12 injections?

Do you have PA or just low B12?

Vegetarian or vegan?

Ever had ultrasound scan of thyroid?

If not, request one

Lillygirl66 profile image
Lillygirl66 in reply to SlowDragon

Yes taking shop bought vitamin D

Ferritin 96-ug-l. 12-250

Folate 3.8. Ug/l. 4-20

B12 injections yes

Don't know if PA

Not veggie or vegan

Never had scan

Thanks Slow Dragon

SlowDragon profile image
SlowDragonAdministrator in reply to Lillygirl66

So your vitamins are highly likely low because you are hypothyroid

Improving all four vitamins to optimal levels should increase TSH so that you can get this recognised and treated

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

How much vitamin D have you been taking?

Obviously need to increase dose

improving vitamin D to around 80nmol or 100nmol by self supplementing

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

Restless legs often improves with magnesium supplements

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Importance of vitamin D for fighting Covid

moxafrica.org/post/the-vita...

Are you on prescription folic acid to improve low folate?

Rather than just folic acid

Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be more beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Lillygirl66 profile image
Lillygirl66 in reply to SlowDragon

Thanks SlowDragon i will print that off & have a good read on everything you have recommended.

endomad profile image
endomad

If those were my results I wouldn't be feeling well. T4 under range, T3 low, TSH is ok but if it starts creeping up it won't be . Vit D low. If you are taking biotin and your t4&t3 are falsely elevated then they are seriously low.

It is unlikely your gp will do anything until you are really ill and your TSH around 10 so if you are feeling unwell, now is the time to start doing something about it. My experience is that most gp's know very little about thyroids and are not really interested. I'm not sure why gp thinks t4&t3 so low due to infection, I would want that explained properly in writing in case I needed to refer back to it at a later date.

Lillygirl66 profile image
Lillygirl66 in reply to endomad

Thank you endomad i have a phone consultation tomorrow. I feel awful.

endomad profile image
endomad in reply to Lillygirl66

I had a good Endo who I saw private first time £175.00 for an hour. He put me on his nhs list straight away. I am a bit concerned if you are paying a similar amount for not very much in return. I would want a more professional response than 'infection' causing low t4&t3 and the reason you feel unwell, not value for money. On a previous post you say your pituitary gland works fine, I had normal TSH and I have no thyroid, it never went over 6 even with no meds, we don't all fit in (normal range). Tests do not always match up with how you feel. Get some questions ready, ask for everything in a follow up email or letter. Ask if you should be referred to another specialist. It's all very well Drs saying nope you are fine when some of us quite obviously are not. X

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