I’m collecting weird medically unrecognised conditions. Three months after having Covid 19 I’m still breathless weak and more of a wreck than usual. I now have a diagnosis of chronic fatigue. As I can’t work I have decided to apply for early retirement. So needed a letter of support from endocrinology. Here’s the mad conversation with the new endo.
Endo - We can’t write you a letter because no one can be still ill once TSH is normal.
Me- So why did I get a year of T3 and specialist endo input?
Endo - Because it help some people.
Me - Yes, like the kind of people who don’t recover on T4 only?
Endo - No, there’s no evidence people’s thyroid cause symptoms when TSH is normal.
Me - So why was I prescribed T3 ?
Endo - You said you didn’t feel fully well and it sometimes helps.
Me - So some people with normal TSH feel unwell and can be helped?
Endo - No, no one can have thyroid symptoms once TSH is normal.
Long silent internal scream. So I was prescribed me an expensive drug for a year on the basis that their couldn’t possibly be anything wrong with me 🤪🤪🤪🤪😱😱😱 one of us isn’t thinking straight.
I went on to ask, ok so if I can’t have symptoms could you at least write that at least 15% of levo only patients complain of symptoms and this is robustly established in the medical literature and referred to by NICE and the BTA?
Endo -No I can’t write that.
Me - Why?
Endo - just can’t.
Worse of all I used to have a lovely endo that specialised in post partum thyroiditis and new all the science inside out. Oh well suppose it’s a dose of what most people get.