Latest results : Previous to my last post this is... - Thyroid UK

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Latest results

Cade83 profile image
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Previous to my last post this is my latest results, my CRP is now in normal range. I’m waiting to get results back for celiac. Because of bloating and pain I also had amylase and H pylori, however the doctor didn’t tell me that if I’d been on antibiotics 2 weeks prior to the test that this could give a false negative so may have to do this again. My stomach has calmed down a bit but but still not quite right. Does anyone think I should still up my dose of levothyroxine, I’m currently on 75mcg.

TIA

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Cade83 profile image
Cade83
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SeasideSusie profile image
SeasideSusieRemembering

Cade83

The aim of a Hypo patient on Levo only, generally, is for TSH to be 1 or below with FT4 and FT3 in the upper part of their reference ranges, if that is where you feel well.

Your TSH is on the high-ish side for someone on Levo and your FT4 is only 42% through range. This suggests you may benefit from an increase in your Levo, 25mcg now, retest in 6-8 weeks.

Do you do your tests as always advised here:

* No later than 9am

* Nothing to eat or drink before test except water

* Last dose of Levo 24 hours before test

* If you take a B Complex or Biotin this should be left off for 7 days before any blood test

Cade83 profile image
Cade83

Hi SeasideSusie, This test was Medichecks and I think I did it like 5 in the morning cause I couldn’t sleep and it was fasted and before taking my levothyroxine. However I do take a vitamin B complex, does this have a huge effect on the results?

I’m always afraid to ask a doctor to up my dose cause they think your nuts cause they see your in range and they think that’s fine. Last time I asked to up it to 75mcg the doctor warned me that if I’m on too much levothyroxine it can cause stomach cancer 😕

SeasideSusie profile image
SeasideSusieRemembering in reply toCade83

Cade83

However I do take a vitamin B complex, does this have a huge effect on the results?

Because B Complex contains Biotin, and Biotin is used in the testing procedure (Medichecks have confirmed this) then it could cause false results. However, nobody knows which way the results could be false.

Last time I asked to up it to 75mcg the doctor warned me that if I’m on too much levothyroxine it can cause stomach cancer

Oh for goodness sake! Ask the stupid moo for a link to the study which shows this. I've never heard such utter poppycock, talk about putting the fear of god into a patient.

I’m always afraid to ask a doctor to up my dose cause they think your nuts cause they see your in range and they think that’s fine.

You might want to show the following to your doctor:

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine (the magazine for doctors):

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l. In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l. This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l).*"

*He recently confirmed, during a public meeting, that this applies to Free T3 as well as Total T3.

You can obtain a copy of the article by emailing Dionne at

tukadmin@thyroiduk.org

print it and highlight question 6 to show your doctor.

Cade83 profile image
Cade83 in reply toSeasideSusie

Ah ok ugh so I need to do it again really 🤦🏻‍♂️

It certainly scared the crap out of me when she said that. Especially now that my stomach has been so bloated and getting pains on and off.

That’s really interesting. I’ll email Dionne about the article or I’ll look it up.

Thank you

SlowDragon profile image
SlowDragonAdministrator in reply toCade83

Bloating is typical of being under medicated

Thousands of posts on here about low stomach acid

healthunlocked.com/search/p...

SlowDragon profile image
SlowDragonAdministrator

Vitamin D was too low in previous post

Folate, ferritin and B12 need testing

Cade83 profile image
Cade83 in reply toSlowDragon

I’m upping my dose of vitamin D from 1000IU to 4000IU and I’ll test again after 4-6 weeks. As for folate ferritin and B12 I haven’t had them tested since my last results I posted. Things get expensive when privately testing all the time but I will test them again.

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