Hair loss continues

[Dolphin40]

Hi there,

I have posted this before but it was 2 months ago and honestly im so concerned and not sure what else to do.....

My daughter is now 3 months into her Levothyroxine having been diagnosed with autoimmune Thyroiditis. Her hair loss is still happening ...... she has lost about half 😞 its down to thinning/breaking whereby you see her scalp and the front/back and sides. I have had differing opinions on the hair loss from possibly stress a few months ago, not having the correct levels yet (its just her TSH that is high), vitamin deficiencies (all necessary ones tested and in range). When is this likely to stop (silly question!?!) Does thinning hair regrow or just hair that falls out completely? What else could it be? Many thanks

[Lora7again]

I'm afraid the hair cycle is quite long and until your daughter's levels are stabilized her hair will continue to fall out. At one time I thought I would go bald because I was losing hundreds a day but I didn't and now my hair has been growing back for about a year. Hair is quick to fall out but it takes ages to grow back. Just to add having low ferritin and low vitamin D can also make your hair drop out so check that her levels are optimal. I was told on a hair loss site that ferritin has to be over 80 for hair growth. Hopefully once her levels are right for her the hair loss will stop but it will be a gradual process.

[Dolphin40 in reply to Lora7again]

Her ferritin is 52 but her functional dr said this was fine? Im not so sure 🤷🏻‍♀️

[Lora7again in reply to Dolphin40]

That seems a bit low. You could try getting her to eat liver or if she won't eat that you could try pate twice a week. I actually love pate but not everybody does.

[Dolphin40 in reply to Lora7again]

Her Vit D was 81

(75-200)

[Lalatoot]

3 months in thyroid terms is a very short time. Every dose change takes at least 8 weeks and for me 12 weeks to take full effect so 3 months on levothyroxine is just the start of the journey.

Vitamin levels being in range is no good. They have to be well over halfway through their ranges.

Her TSH being high indicates that she may be on too low a dose of levothyroxine.

Her FT4 and FT3 levels may be in range and you might have been told that they are normal but there is no normal for thyroid patients. The word has to be optimal - that is the best normal for the individual. For example one range for FT4 is 10 - 25. I would be normal if my result was 10 and I would be normal for any number up to 25. By slowly increasing levo and monitoring symptoms we need to find the normal number that is optimal for us.

It sounds like your daughter is not optimal. If you have any blood results and ranges to share we will give our thoughts.

[Dolphin40 in reply to Lalatoot]

Thank you

TSH - 31

T4 - 19.4 (10-20)

T3 - 6 (5.7-7)

[Lalatoot in reply to Dolphin40]

Oh gosh. I see what you mean. It sometimes takes the body a while to catch up with blood results so maybe your daughter's TSH will fall.

I am hoping someone else will come along with other ideas.

[Wetsuiter in reply to Dolphin40]

if she s 3 months in, is that the result of the retest?

if not she needs the retest

if yes then she needs a dose increase

[Dolphin40 in reply to Wetsuiter]

This is retest after 8 weeks in. TSH went from 12 to 31. Waiting for next results

[Wetsuiter in reply to Dolphin40]

Are the tests being dome as rec on here? Fasting, 1st thing, no Biotin etc?

Were her antibodies ever tested?

[Dolphin40 in reply to Wetsuiter]

11am. No biotin. She still took her Levo first thing and may have had toast.

TPOs 183

[Wetsuiter in reply to Dolphin40]

best not to do either of those things in future.

That said the variation in results may be explained by the thyroiditus, so perhaps no surprise there really.

I should have added that the others on here have given good advice already. (i just always loke to know the far end of a f**t).

[HealthyEmski in reply to Dolphin40]

Hi Dolphin 40. I couldn't believe my eyes: is the TSH a typo ? something isn't right if her TSH has nearly tripled, when the 'normal range is 0.5-5.0.

(I have had the same condition- Hashimotos- for years with cycles of hair growth and hair breaking.)

What is the dose of Levo?But more importantly what did your doctor say about the TSH?

[Dolphin40 in reply to HealthyEmski]

Yes its 31 😞

50mcg Levo now but was on 25mcg when it was 12.

He just said its high and need Levo