Hashimotos hair loss : What can I do to help my... - Thyroid UK

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Hashimotos hair loss

Feelingrubbish profile image
18 Replies

What can I do to help my hair loss and balding patches on my scalp?

I was diagnosed with Hashimotos about 3 to 4 years ago when my thyroid was swollen. Jan 2020 my blood tests were abnormal so I was put on 25mg Levothyroxine. Blood tests then came back better (TSH 2.5). Earlier this year my TSH has been up and down and in the last few months I have noticed my hair is significantly thinner with balding patches!!

I am having my bloods retested today but fear the doctor won’t know what to suggest for hair loss.

Anyone found a solution?

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Feelingrubbish profile image
Feelingrubbish
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SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

Approx how old are you, unless over 60 years old the standard STARTER dose levothyroxine is 50mcg

Dose levothyroxine is increased slowly upwards in 25mcg steps over 6-18 months

Are you saying you have been left on just 25mcg levothyroxine since Jan 2020?

ALWAYS test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Request/insist that GP also test vitamin D, folate, ferritin and B12

If been left very under medicated likely to have very low vitamin levels

Low iron and ferritin levels linked to hairloss

Optimal vitamin levels are

Vitamin D at least around 80nmol and around 100nmol maybe better

Serum B12 at least over 500

Active B12 at least over 70

Folate and ferritin at least half way through range

About 90% of primary hypothyroidism is autoimmune thyroid disease, also called Hashimoto’s, usually diagnosed by high thyroid antibodies

Low vitamin levels are extremely common with Hashimoto’s

smwdorset profile image
smwdorset in reply to SlowDragon

Slow dragon pleaseCould you give a reference for these recommended levels of vitamins

My

Vitamin d for example is 40 and my go just told me to take 1000mcg per day and this despite the fact I have just been diagnosed with osteoporosis !!!

SlowDragon profile image
SlowDragonAdministrator

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

Which brand of levothyroxine are you currently taking

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Unless extremely petite likely to eventually need to be on at least 100mcg levothyroxine per day…but we frequently have to start slowly (usually at 50mcg) and increase upwards in 25mcg steps……blood test 6-8 weeks after each increase

Most important results are ALWAYS Ft3 followed by Ft4. Looking for Ft3 at least 50-60% through range, Ft4 (levothyroxine level) usually a little higher. Frequently when adequately treated TSH will be around or below 1

All four vitamins need to be at GOOD levels

Feelingrubbish profile image
Feelingrubbish in reply to SlowDragon

Thank you for reply. I had my blood test this morning so not able to sort out vitamin check but I will definitely mention that to my doc when reviewing my blood results.

Yes, I’ve been on 25mg since Jan 2020 (I’m 55) with 6 monthly blood tests as recommended by the consultant who diagnosed my Hashimotos in 2018. My TSH have been coming back as about 2.5 but in Jan 22 it was 1.6 and April it was 3.8 (not sure why varying).

I normally take 25mg every morning, even before blood tests but I saw the advice on here not to, so didn’t this morning before my test. It was for a full Thyroid check which I haven’t had for a while, (the last few tests have been just TSH levels only).

I have just started taking hair and nails multivitamins. I was taking evening primrose oil but my doctor said to stop, not sure why.

Thank you for your advice. ☺️

SlowDragon profile image
SlowDragonAdministrator in reply to Feelingrubbish

Multivitamins are never recommended on here. Too little of what we do need, cheap poorly absorbed ingredients and most contain iodine not recommended for anyone on levothyroxine

Stop any supplements that contain biotin a week before all blood tests as biotin can falsely affect test results

If it’s a multivitamin for hair it will contain high dose biotin

So test will need redoing

Suggest you get FULL thyroid and vitamin testing done privately if GP won’t

Assuming you didn’t stop vitamin supplements, Tell GP you weren’t aware of biotin contamination of blood test

(There should be notice about biotin supplements in phlebotomy department)

Request you can get retested including vitamin D, folate, ferritin and B12 levels

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Feelingrubbish profile image
Feelingrubbish

Ok, thanks. I was taking the multivitamins to try and help my hair loss but I can see on the packet they also contain iodine along with lots of other things! I will talk to my doctor about the other checks. Fingers crossed she can help.

I am also on HRT since Jan 2022 (oestrogen patches and oral progesterone for 25 days then break for 3). I am suspicious that these additional hormones might be affecting my hair but also confused as know hair thinness is a menopause symptom so thought the HRT would help not make things worse.

SlowDragon profile image
SlowDragonAdministrator in reply to Feelingrubbish

So did you stop this multivitamin a week before test

How much biotin is in it

You may need to redo. Unlikely NHS will test more than TSH even if GP requests

Was test done early morning, ideally before 9am

HRT frequently means you need higher dose levothyroxine than guidelines

Guidelines on dose levothyroxine required

pathlabs.rlbuht.nhs.uk/tft_...

Guiding Treatment with Thyroxine:

In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.

The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).

The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.

……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.

The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.

Approx how much do you weigh in kilo

Your Weight in Kilo x 1.6mcg is likely eventual dose you would need 6-18months after starting on levothyroxine

Request/insist GP test vitamin D, folate, ferritin and B12

Low ferritin/iron is frequently the cause of hairloss

Being under medicated for thyroid will result in low vitamin levels, especially ferritin

Low vitamin levels tend to lower TSH…..therefore just testing TSH is completely inadequate

revitalise profile image
revitalise

Afternoon I have been taking Teva Levothyroxine since June 2021 for Hashimoto’s Underactive Thyroid mine was gradually increased upto 100mcg and then reduced. However, last blood tests showed I was being under medicated. I have noticed hair loss if I am not on the correct dose. However, it has also rectified itself as soon as I was on a higher dose. I have blood tests every 6-8 weeks for the last year and before any dose change. Please do let us know the results and your GP may increase the Levothyroxine after blood tests. I have never taken any supplements for hair loss as from my experience it stops once I have been properly medicated. Good Luck with everything!

Feelingrubbish profile image
Feelingrubbish in reply to revitalise

Hi! Thank you so much for commenting. It’s reassuring to hear your experience. I’ve been pretty upset seeing my hair disappear and wondering whether I’ll get it back to how it was about 6 months ago.

My poor mum (aged 85) has lost so much hair in the last 10 years she’s practically bald on top but her situation is slightly different. She had her thyroid removed in her late 40’s because the doctor said it was enlarged and she has been on 100mg Levothyroxine ever since. I suspect she probably had/has Hashimotos too but never diagnosed. She also takes medication for her heart, blood pressure and cholesterol and both of those have side effects of hair loss! I think I have inherited health issues from her as I also have raised BP and cholesterol but am not bad enough for medication thankfully!

I will definitely come back here and let you know how my tests go and what my doc says. I feel much more informed now about what my levels should be.

Thank you

smwdorset profile image
smwdorset

So sorry to hear that I am sure you will hear from others that it’s worth trying different brands

But I wonder if the dose isn’t enough as

TSh of 2.5 is still high for someone with Hashimotos

Good luck but you may need to push the gp as in my

Experience they know nothing about thyroid problems generally

And even less about Hashimotos !

Feelingrubbish profile image
Feelingrubbish in reply to smwdorset

Thank you for commenting. I agree that all the docs who have looked at my results over the years just seem happy that my TSH levels are within the ‘normal’ range and nit necessarily relating anything to my Hashimotos condition.

I definitely feeling less ‘normal’ at the moment. Apart from my hair loss, I am also feeling more tired and down and feel my thyroid is slightly lumpy.

I’m taking Teva Levothyroxine and when I asked if there was an alternative my doc said no. I’m in the UK so maybe it’s different in other countries?

Thank you so much for your support and advice.

smwdorset profile image
smwdorset in reply to Feelingrubbish

I am sorry but your GP is talking rubbish - there are lots of brands of Levo available in the NHS in the uk - I’ve had a t least four different ones depending on what’s cheapest for my local Pharmacy at the time and fortunately I am Not sensitive . But many people are sent over to what the Levo is combined with So

Demand to try a

Different brand

If your doctor prescribes a generic then ask your pharmacist as they are under a duty to try different formulations for sensitive patients unless the GP specifies a brand

But more important - go back and challenge the dose and ask for a referral regarding your lumpy thyroid. You have to push back ! Sorry to say this but many GPS are under pressure and ignorant and the combination of these is lethal to patients

smwdorset profile image
smwdorset in reply to smwdorset

Ps IAm in dorset in the UK so not abroad !

Feelingrubbish profile image
Feelingrubbish in reply to smwdorset

Yes, the clue is in the name - sorry, I should have noticed that!

Feelingrubbish profile image
Feelingrubbish in reply to smwdorset

Thank you - that's useful to know. I wonder whether my doctor misunderstood when I asked whether there was anything else I could take and thought I meant another medicine rather than levothyroxine. I will definitely ask to change.

smwdorset profile image
smwdorset

Quite possible but it might be worth chatting to the pharmacist first ?But seriously your main issue as others have said is likely to be under medication so see what they say about how best to educate your GP about this

Good luck

JackieVest profile image
JackieVest

I take levothyroxine but also take T3. You could investigate that?

Feelingrubbish profile image
Feelingrubbish in reply to JackieVest

Thank you, I didn’t know there was anything else I could take.

I must be lacking in something because, as well as my hair slowly disappearing, my nails seem to be breaking and flaking away! They were long and strong a few months ago 😔 Still waiting for my blood test results. I will chase them on Monday.

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