Support: I have just been informed that I have a... - Thyroid UK

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Summerage11 profile image
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I have just been informed that I have a low white cell blood count but not to worry. I also have an increase with my calcium and to increase my thyroid medication slightly. I did buy a private test and have sent this back. I will need to be retested for the white cell and calcium. Has any one got any advice as I am a front line worker so am I vulnerable.

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Summerage11
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8 Replies
Summerage11 profile image
Summerage11

Thank you for your reply I feel that I have had this for a while as I have experienced systoms related to a low blood count. I will retake my bloods the first week of June and take things from there. I wish your sister all the best on her recovery.

Summerage11 profile image
Summerage11

Xx

bantam12 profile image
bantam12

If you have raised calcium level you need that and parathyroid tested at the same time.

tattybogle profile image
tattybogle

I apparently had below range lymphocytes in2003/05/07/and 08 with a low heamatocrit too,

i,ve only recently found this in my notes, so i guess no one was worried by it.

Not that i find that reassuring given my knowledge of Gp,s limitations !

On News this morning, something about low T cells being associated with worst cases of covid ..........

might be wise to start finding out for ourselves about white blood cell biology as well as thyroid ?....

SlowDragon profile image
SlowDragonAdministrator

Previous post

healthunlocked.com/thyroidu...

You were getting your actual results and ranges from GP on recent test

Have you got them ?

Please add actual results and ranges

Were you still only on 50mcg levothyroxine?

Presumably now increased dose to 75mcg ?

Bloods should be retested 6-8 weeks after each dose increase

Summerage11 profile image
Summerage11 in reply toSlowDragon

I never received my results they refuse to send them. I hope to get my results soon after my private tests and will post them on the hub. The Doctor phoned me yestered and said I should only increase my dose to 75 every second day. She said was that what you were looking for. I replied no and said that the levothyroxine does not work for me. The doctor said that was all they have to offer. What chance have I got when limited to options.

SlowDragon profile image
SlowDragonAdministrator in reply toSummerage11

Well you won’t know if levothyroxine works for you until on higher dose and all four vitamins optimal

You are legally entitled to copies of your blood test results

You should insist practice manager sorts this out

Either online access to blood test results or printed copies of latest results and ranges

Even if we don’t start on full replacement dose, most people need to increase dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until on full replacement dose

NICE guidelines on full replacement dose

nice.org.uk/guidance/ng145/...

1.3.6

Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.

BMJ also clear on dose required

bmj.com/content/368/j

If you have Hashimoto’s, (high thyroid antibodies) often strictly gluten free diet helps or is essential

Frequently GP only tests TSH, which is completely inadequate

Come back with new post once you get results from private testing

SlowDragon profile image
SlowDragonAdministrator

Which brand of levothyroxine are you currently taking??

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Teva contains mannitol as a filler, which seems to be possible cause of problems. Teva is the only brand that makes 75mcg tablet. So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half

Teva and Aristo are the only lactose free tablets

healthunlocked.com/thyroidu...

Teva poll

healthunlocked.com/thyroidu...

No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.

Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away

(Time gap doesn't apply to Vitamin D mouth spray)

Did you get vitamins tested

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