Confused and not sure what to do : My last... - Thyroid UK

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Confused and not sure what to do

lilymac73 profile image
5 Replies

My last 2 blood results were as follows:

24 Feb 2020: TSH 1.67 mU/L, T4 9.8 pmol/L

04 Mar 2020: TSH 0.02 mU/L, T4 16.2 pmol/L

I have complete change in TSH and T4. Two months ago TSH was OK, T4 was low. Not it reversed- TSH is too low T4OK. I am on Novothyrol 100mcg weekend 50mcg. My period skipped twice and I feel really tired, non motivated, cannot focus etc.

I am on medication for last 6 years and have classic Hashimoto accordionists to my dr.

I take vitamins.

My meds have been “adjusted every few” months but seems they cannot get it and I just feel unwell! Feeling desperate now not sure what to do? GP wants to do my blood tests again in a month ...

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lilymac73
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SlowDragon profile image
SlowDragonAdministrator

Just testing TSH and Ft4 is completely inadequate

Please add ranges on these results (figures in brackets after each result)

TSH is often suppressed when adequately treated

Most important results are Ft3, followed by Ft4

All four vitamins need to be retested regularly

Are you on strictly gluten free diet?

lilymac73 profile image
lilymac73 in reply to SlowDragon

This is what dr refers me to. I can do all tests but need to fo privately.

I am not gluten free just started reading about it. Is there any research that proves benefits of going gluten gree? I love my bread ☺️

SlowDragon profile image
SlowDragonAdministrator in reply to lilymac73

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten intolerance. Second most common is lactose intolerance

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find strictly gluten free diet reduces symptoms, sometimes significantly. Either due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test, or buy test online BEFORE trying strictly gluten free diet

Assuming test is negative you can immediately go on strictly gluten free diet

If coeliac test is positive you will need to remain on high gluten diet until endoscopy, with maximum 6 weeks wait, officially

Trying strictly gluten free diet for 3-6 months

If no noticeable improvement, reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

There are some reasonable GF breads available - all are better as toast (in dedicated GF toaster)

B Free brown seeded. Warburtons sourdough

For sandwiches...M&S or Waitrose “Thins”

lilymac73 profile image
lilymac73 in reply to SlowDragon

Thank you 😊 will try with gluten free diet!

Stay safe! Lily 🍀

SlowDragon profile image
SlowDragonAdministrator in reply to lilymac73

Frequently with Hashimoto’s we need dose high enough to turn own thyroid off to stop these swings in levels

Maintaining optimal vitamin levels frequently helps too

What vitamin supplements are you currently taking?

Improving nutrients improves conversion

healthunlocked.com/thyroidu...

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