Test results. I feel worn out but am told all i... - Thyroid UK

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Test results. I feel worn out but am told all is okay.

TheOtherSpellman profile image
9 Replies

I found a lump on my neck a few months ago that was found to be a solid nodule on my thyroid (2.9cm). I’ve two more (1.1 and 1.2cm) on the other lobe. They did an FNA which was inconclusive so I went for the option of PT, which has been postponed until after Covid-19.

Bloods done through Medichecks at the time were:

TSH 2.16 (0.27-4.2)

FT3 3.84 (3.1-6.8)

FT4 15.2 (12-22)

TgAb 81.1 (<115)

These fell in the normal range so was told all was well. This didn’t marry up with how I was feeling and I mentioned it to my GP but was told it all looked fine and it was likely anxiety causing my symptoms.

I noticed increased swelling recently (I have a goitre) and was referred for more bloods at the GP surgery.

TSH came back at 4.9 (4.2 is top of the range apparently) and FT4 was 19. They said don’t routinely check FT3. Regardless they’ve said this is borderline and they’re not concerned. They’ll check again in 3 months.

I’ve ordered a more in depth look through medichecks but I would appreciate any guidance. Do these results look okay?

Should have my most recent medichecks results on Monday.

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9 Replies
SlowDragon profile image
SlowDragonAdministrator

Absolutely essential to also test vitamin levels

Your Ft3, which is most important result is very low

Low Ft3 affects gut function and frequently leads to low vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

TheOtherSpellman profile image
TheOtherSpellman in reply toSlowDragon

Hi,

Thanks for your reply. The bloods I did last week (at 8am) with Medichecks is the one you’ve suggested about so includes vits - I’ll post when I have those back.

shaws profile image
shawsAdministrator

All of the professionals seem to be lacking - very much - in the diagnosing of their hypo patients. Before blood tests superseded the knowledge of previous doctors who diagnosed upon our clinical symptoms alone and we got a trial of NDT or T4 or T3.

I wonder how much the NHS pays for blood tests? If doctors could assess their patients through their clinical symptoms (as they did before tests) the NHS would save a fortune and we could have the hormones that restore our health. Levo doesn't work for everyone. Those for whom levo works fine - will not be on the internet looking desperately for information.

TheOtherSpellman profile image
TheOtherSpellman in reply toshaws

Hiya,

My latest blood test results are below.

CRP HS: 3.3 ( <5)

Ferritin: 101 (15-150)

Folate - serum: 5.81 (>3.89)

Vit B12: 62.2 (>37.5)

Vit D 84.5 (50–175)

TSH 3.61 (0.27-4.2)

FT3 4.38 (3.1-6.8)

FT4 15.4 (12-22)

TgAb 162 (<115)

TPO <9 (<34)

I’m not on any meds.

The accompanying notes recommend I get tested for a B12 deficiency as it’s in the low side. They also recommend a repeat CRP HS in 6 weeks as that’s higher than they’d like.

Going to call my GP but would appreciate any advice on this. It’s been difficult to be taken seriously thus far.

shaws profile image
shawsAdministrator in reply toTheOtherSpellman

I will add in SlowDragon as she's more knowledgeable than myself with regard to blood test results. In the meantime, this link will be helpful.

thyroiduk.org.uk/tuk/testin...

TheOtherSpellman profile image
TheOtherSpellman in reply toshaws

Thank you :)

SlowDragon profile image
SlowDragonAdministrator in reply toTheOtherSpellman

Active B12 is considered as possibly too low if under 70

Folate under 10 is likely too low

GPis only obligated to treat deficiencies, so will be uninterested in levels

Do you supplement vitamin D, or is that a natural result?

Any other supplements?

What’s your diet like, vegetarian or vegan?

Do you have any Low B12 symptoms ?

If you do ask GP for testing for Pernicious Anaemia before starting on any B vitamins

b12deficiency.info/signs-an...

Otherwise.....suggest you consider Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

SlowDragon profile image
SlowDragonAdministrator in reply toTheOtherSpellman

Your TG antibodies are above range.

However NHS only considers this as confirmation of Hashimoto’s if TPO antibodies are also high

So you are very unlikely to get any NHS medic to agree that just high TG antibodies is Hashimoto’s

You can have high TG antibodies due to pernicious anaemia or type one diabetes, or possibly due to no known cause

healthline.com/health/antit...

However high TG antibodies can cause symptoms as listed here

ncbi.nlm.nih.gov/pubmed/303...

High antibodies combined with confirmed nodules suggests further investigation

TheOtherSpellman profile image
TheOtherSpellman in reply toSlowDragon

Hi SlowDragon, thanks for your replies.

These are natural results - I haven’t taken supplements in a few weeks. You wouldn’t believe it given the results but I have a varied diet that I feel is well balanced. I eat meat at lunch and dinner times and plenty of veggies.

I think I’m going to get the Gp to retest my B12. The last one they did a month ago shows significantly higher values for b12 but I was supplementing (contained biotin) without thinking of the impact on the blood results then 🙈

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