Hi would someone have any advice on my results from Medichecks? I checked them as I have PN and it’s flared up again 😔 I’ve been taking vitamin D since my last results in January and it’s gone down not increased 😔 also my Ferritin is high I have been taking vitamin C so maybe that’s why it’s high ??? Many thanks in advance xxxxx
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My ferritin is 293 ( 13-150)
Vitamin. D is 60.9(50-175)
Have you been tested for heamachromatosis? Or is it in your family?
No I haven’t been tested for that .. as far as I know not in my family 😔 xxx
Ferritin is unusually out of range - do you have periods?
I’d stop taking any form of iron. My aunt has heamachromatosis and has to avoid vit c too but I’d speak to your Gp about that result.
What is PN?
Thank you I will speak to my GP and stop the vitamin C .. no I’m 60 so through menopause now .. sorry PN is peripheral Neuropathy.. xxxxx
Ah ok thanks. I get that too sometimes; it’s very challenging. I’m not sure what it is but Im starting to think it’s linked to hormones and possibly stress too for me.
I would speak to your Gp about the ferritin and they may want to do another test to double check. There’s also a simple gene test to check for the heamachromatosis gene.
It’s possible the PN is linked to the ferritin, but speak to the Gp.
Oh crikey I didn’t think of that ? Never tested my ferritin before when I had a flare up of PN .. never crossed my mind about PN and high ferritin .. Thank you
I will run it past my GP .. I will ask for a gene test many thanks xxxxxx
Yes my GP says stress ? Some people say thyroid ? Sometimes it’s vitamin B12 deficiency it’s awful feeling xxxx
I don’t know re the PN and heam but it’s possible? Brief google says possibly?
Thank you yes just did the same asked google also still reading that vitamin C can increase ferritin levels ? Xxx
lynnwin
In my experience taking Vit C wont raise ferritin, I take at least 2000mg Vit C daily and struggle to keep my ferritin level decent even when regularly eating liver, etc.
How much Vit D are you taking, in what form (softgel, oral spray, tablet, capsule) and are you taking D3's important cofactors - magnesium and Vit K2-MK7? Magnesium is needed for the body to convert D3 into it's usable form.
What are B12 and folate results like?
Are you on Levo only? If so then your conversion of T4 to T3 could be better. FT4 is 95% through range but FT3 is only 40.81% through range.
Presumably you know you have Hashi's?
Hi seaside susie .. been taking solgar 2200 iug a day capsules .. ahh thought taking vitamin C may have increased saturation l looked it up and that was one of the things that said could increase Ferritin? But not in your case 😔 yes I know it’s Hashimotos .. my B12 is really high off the scale stopped B12 injections in 2015 and don’t take b12 supplements.. I do take B2 and sometimes B6 as always deficient as I’m a coeliac .. I can’t stomach magnesium tablets they upset my stomach I use magnesium transdermal Amazing organic oil from Australia and I know that works as I had a magnesium test a while back as my GP laughed and said that won’t raise you magnesium but it did .. I’m on 100mcg of Levo thyroxine.. I also take propanol and Amitriptlyne Thank you for your help xxxx
Taking Vit C aids absorption of iron tablets, it wont raise your iron or ferritin level as far as I am aware.
Do you take your Vit D with dietary fat? D3 needs fat to be absorbed.
Thank you seaside susie .. always take my vitaminD with main meal .. I’m going to try liquid to see if that helps ? I don’t take any iron tablets .. will retest in about 6 weeks think turmeric chelates iron ? Maybe I should try that ? Many thanks xxxxxxx
I've not tried liquid D3 but I have always done very well with Doctor's Best D3 softgels, there are just two ingredients - D3 and extra virgin olive oil.
A liquid you could take sublingually, I'd go for one with olive oil or maybe coconut oil such as Natures Answer, Seeking Health, Natures Aid, or Pure Encapsulations plus others.
Thank you x what should our vitamin D be to be optimal ? Xxxx
The Vit D Council recommends 125nmol/L and the Vit D Society and Grassroots Health both recommend 100-150nmol/L. There's also a lot of talk at the moment about having good Vit D levels to help where Covid-19 is concerned.
I like to keep mine as close to 150 as possible. I am doing a test next week and will be happy to go above that. However, above 220nmol/L and there's a danger of toxicity.
Oh ok .. yes I know it helps with covid
My job is a phlebotomist at the hospital I’ve been off sick with this PN but I really need to increase my vitamin D xxx
As you are coeliac you may find Better you vitamin D mouth spray is most easily absorbed as avoids poor gut function
Trial and error what dose is required, but with gluten intolerance frequently at least 3000iu as maintenance dose...higher if looking to increase levels
Thank you I’ve just found a bottle of my kind organic spray but it’s only 0.46 ml per spray so I best increase that ? Thank you xxx
It says
1 Spray (Approximately 0.46 mL)
Vitamin D (D3 as cholecalciferol) 25 μg 500%
25 μg = 1,000iu
Try 3 sprays per day ...you may need higher dose
Trial and error for each individual person
If you have heamachromatosis, vit c can raise your body’s natural ability to absorb iron from all food. But not in “normal” people. People with Heamachromatosis have to have a low iron and sometimes low vit c diet.
Thank you I will have to run it past my GP .. Haggisplant mentioned PN and high Ferritin maybe there’s a connection ? Thank you xxxx
Propranolol can significantly reduce conversion and uptake of levothyroxine
How much propranolol are you taking?
How long on it
Propranolol has to be reduced extremely slowly, especially when on levothyroxine....otherwise you might get dramatic change in thyroid levels
I found it best to only drop by 5mcg per day and hold at that for at least 2-3 weeks before dropping a further 5mcg etc etc. Last 5mcg extremely difficult to drop. Dropping one day per week, then two days etc
Hi slowdragon I’ve been taking it for 16 years .. was given it when I was HYPERTHYROID .. then once my thyroid came back into range I did decrease it I was on 10mg x3 day but now take 10mg twice a day .. sometimes I increase it if stressed .. I stayed on it because my migraines returned .. So been taking it longer than I have been taking Levo .. Bern on Levo about 5 years now xxxxx
Exactly .....propranolol is used to treat hyperthyroid patients as it slows uptake and conversion of levothyroxine
Migraine are hypothyroid symptom
Suggest you try reducing Propranolol extremely slowly
I was stuck on propranolol almost 20 years ....very difficult to get off. More on my profile
Yes I know ..But many take propranolol with Levo .. I might try and decrease ??
But worried too 😔 xxx
As long as you are aware propranolol is likely a significant reason for low Ft3
You might find my profile experience helpful
How long have you been diagnosed as coeliac?
TPO antibodies often slowly reduce on absolutely strictly gluten free diet
Hi I’ve been diagnosed for around 25 years so long before thyroid issues xxx
Are you lactose intolerant?
No not lactose intolerant xx
Wow read your profile you had neuropathy too ..,I have the book magnesium miracle it’s a brilliant book x
Vitamin B complex gave almost instant improvement
I can’t take B complex as my B12 is way over top of the range 😔 x
Are you supplementing B12?
If yes, try vitamin B complex instead
If no, then high B12 can be misleading.... functional deficiency due to other B vitamin deficiencies
We are frequently low in Thiamine (B1) and/or B6 , B9
I have thought about it but my GP said take nothing with B12 in as mine is so high and there seems to always be B12 in the complex .. my last B12 injection was in 2015 that was for my neuropathy and I was low as again not absorbing due to my coeliac disease 😔 I’m taking two sprays a day off VitaminD xxxx
My B12 was always too high (despite never taking any B vitamin supplements) before I started on vitamin B complex
That’s interesting ? I have to take B2 &B6 as being coeliac I’m always deficient I never supplement unless I test first .. my B12 was over 2000 top of range is 900 .. makes no sense ?
Your profile was really interesting sounded similar to me xxxx
I always thought it very odd that my B12 was always high ...when nearly everyone with Hashimoto’s has low B12 ...also I had masses of low B12 symptoms.....
Adding a daily good quality vitamin B complex was astonishingly quick improvement
Like many with Hashimoto’s I have MTHFR gene issues
So folate, not folic acid is important
thyroidpharmacist.com/artic...
Thank you slowdragon I think biolab tested the MTHFR ? I know I had Homocysteine done I will look back .. thanks for the link I will read it .. what B complex do you take ? Maybe I am deficient in B12 would explain this neuropathy? My B12 has never lowered at all in 5 years seems strange when I’m not supplementing ? Xxx
You can get full DNA test here
Or if you already have DNA results via 23 and me or Ancestry,...you can get these evaluated for £14.99
Thank you .. did I read you had trouble with vitamin D on your profile ? I seem worse when I take it 😔 thank you for the link .. I will look into it xx
If you are taking a vitamin B complex or any multivitamins these all usually have B12 in
I use Igennus vitamin B complex...just one a day, after breakfast
In Mag Miracle she explains Propranolol lowers magnesium...not good if already vitamin D deficient
labtestsonline.org.uk/tests...
Drugs that may decrease PTH include cimetidine and propranolol.
I’m going to read her book again thank you xxx
I have had high ferritin for a few years now and when I mentioned it to my GP he said when it reaches 800 we will do some tests. Mine is over double it should be and think it is caused by inflammation which is because I have a multi-nodular goitre. My CRP used to be about 9 but it has dropped to about 5 now but my anti-bodies are still 4000 and have been this high for many years. I don't feel ill at the moment and I feel very well and my hair has stopped falling out and my nails have re-attached to their beds. This disease is a mystery to me sometimes and I don't know what I did to make myself well again if I am being honest.
Thank you .. I am using a liquid now I will increase the dose need to get it up xxxx
Aww it’s crazy the labs won’t do the test 😡 if it is Hemochromatosis it can damage your organs 😔 it makes me angry that labs won’t do the test .. family members may not know they have it ? Makes me angry 😡 I’ve stopped my vitamin C Just incase as some info I’ve read on a Hemochromatosis website says cut red meat out and vitamin C .. so I’m giving that a try . Does your GP keep a check on your Ferritin now ? Xxx
Aww good luck .. spoke to my GP this morning I’m going back to work next week maybe get my colleagues to bleed me 🤦♀️ He says cut down red meat and stop vitamin C .. test full blood count and ferritin in 4 weeks
It’s all a nightmare .. do you test with Medichecks ? Xxx
I normally use biolab but they are so expensive I’ve used medichecks a few times now they have been good x
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