Advice: Thank you for your reply hugely... - Thyroid UK

Thyroid UK

141,189 members166,429 posts

Advice

Jamiekim profile image
9 Replies

Thank you for your reply hugely appreciate it

When I was taken t3 in November/December I was taken 25mg and my t4 at 100mg

But I stopped taken the t3 because it was making me sweat and I was so tired on it

However these are are all my recent tests was taken October 2019

My THS level was at 2.00 mu/L range (0.35-5.00)

T4 level 14.0 pmo/L (9.0-22.0)

T3 level 4.9 pmo/L (2.3-5.1)

Vitamin D 31 (50-200)

Folate level 7.6 ug/L (3.0-20.00)

B12 at 286 ng/L (200-910)

These are all the results since then and before nothing has change in my symptoms

Written by
Jamiekim profile image
Jamiekim
To view profiles and participate in discussions please or .
Read more about...
9 Replies
SeasideSusie profile image
SeasideSusieRemembering

Jamiekim

However these are are all my recent tests was taken October 2019

What thyroid meds were you taking at the time?

Vitamin D 31 (50-200)

Very low, not far off Vit D deficiency. What dose of D3 supplement are you currently taking? Are you also taking D3's important cofactors - Vit K2-MK7 and magnesium?

Folate level 7.6 ug/L (3.0-20.00)

Low, should be at least half way through range - 11.5+ with that range. Are you supplementing?

B12 at 286 ng/L (200-910)

Very low. Some people with a B12 level in the 300s have been found to need B12 injections.

Do you have any signs of B12 deficiency - check here:

b12deficiency.info/signs-an...

Are you supplementing?

You also need Ferritin testing.

You really need up to date results for all of these, I suggest you do a Medichecks ULTRAVIT test or a Blue Horizon PREMIUM GOLD. Medichecks have 25% discount until 3rd May using code SPRING25.

Jamiekim profile image
Jamiekim in reply toSeasideSusie

thank you for your reply really appreciate it

To your questions

I was taken 100mg levothyroxine

when I was given vitamin d3 it was the lowest does like 50 I believe maybe lower I can’t remember but it was the smallest amount I’m not currently taken any d3 or any other medication apart from levothyroxine

I feel weak and tried and out of breathe quite a bit but I’ve always thought that’s down to wearing myself out through the day

But think it might be a b12 problem

I’m due for another blood test but I know the doctors will say it’s normal again like they’ve done for 11 years just feel abit let down and so uneducated on this illness thank you for your reply though means a lot

SeasideSusie profile image
SeasideSusieRemembering in reply toJamiekim

If I were you Jamiekim I'd get a private test done - the full thyroid/vitamin panel (your GP wont do all of them), post the results (with reference ranges) on here and we can make suggestions.

You need up to date results, those from October are too old now, and if you're taking no supplements then your levels will possibly be even worse now.

The best value will be the Medichecks Ultravit with the 25% discount but you'd need to order before midnight on Sunday, 3rd May. It will have to be a fingerprick test or "arrange your own phlebotomy" as the home phlebotomy and clinic blood draw options are currently suspended.

Follow the advice we always give when doing thyroid tests:

* Book the first appointment of the morning, or with private tests at home no later than 9am. This is because TSH is highest early morning and lowers throughout the day. If we are looking for a diagnosis of hypothyroidism, or looking for an increase in dose or to avoid a reduction then we need TSH to be as high as possible.

* Fast overnight - have your evening meal/supper as normal the night before but delay breakfast on the day of the test and drink water only until after the blood draw. Eating may lower TSH, coffee affects TSH so it's possible that other caffeine containing drinks may also affect TSH.

* When taking thyroid hormone replacement, last dose of Levo should be 24 hours before blood draw, if taking NDT or T3 then last dose should be 8-12 hours before blood draw. Adjust timing the day before if necessary. This avoids measuring hormone levels at their peak after ingestion of hormone replacement. Take your thyroid meds after the blood draw. Taking your dose too close to the blood draw will give false high results, leaving any longer gap will give false low results.

* If you take Biotin or a B Complex containing Biotin (B7), leave this off for 7 days before any blood test. This is because if Biotin is used in the testing procedure it can give false results (most labs use Biotin in the assay).

These are patient to patient tips which we don't discuss with doctors or phlebotomists.

If you GP does do any tests then once they're back ask the receptionist for a print out of your results, we are legally entitled to them here in the UK, without charge or explanation. Don't accept verbal results or handwritten ones, mistakes happen, just get a print out.

Jamiekim profile image
Jamiekim in reply toSeasideSusie

Thank you for all your help/advice and support honestly I’m feeling overwhelmed

I’ve asked to have a blood test today but won’t know if I can have one done due to corona virus but will find out Monday

Im a student so the cost of private testing will be quite expensive but will be saving to get that done it’s important to get everything tested

And I will ask for a print out after I have bloods done and see if anything is low to get that supplements to make it increase abit more

Again Thank you so much for your help and support

greygoose profile image
greygoose

Is there any particular reason you've started a new thread? I replied to you on your thread of yesterday, asking for further details. It's a bit confusing when there are two posts asking the same questions.

Jamiekim profile image
Jamiekim in reply togreygoose

Sorry I’m new to this site not sure how it works

greygoose profile image
greygoose in reply toJamiekim

This link will take you to your profile page:

healthunlocked.com/user/Jam...

There, you can see your previous posts listed. Just click on the one you want to consult. If you wish to reply to anyone's comments, just click on the blue 'Reply' button under their comments. :)

People are replying on here, but they haven't read your last post, so don't know all the details.

Lalatoot profile image
Lalatoot

You are undermedicated and lacking in vitamins. The T3 was probably of little help as you need vitamin levels well over half way through their ranges before you will see the benefits of T3.

If these were my results I would start supplementing the vitamins and then see how my bloods were after that. Then think about residual symptoms and how much levo to take.

SlowDragon profile image
SlowDragonAdministrator

Ft4 too low for someone on just levothyroxine

Not what you're looking for?

You may also like...

New & still feel ill

Hi to everyone, I have recently found this site to help with thyroid problems. I am still feeling...

Help with results please?

After my last check (TSH 1.88 (0.30-4.70 mu7L) ) I told my GP I still had symptoms to which she...
infomaniac profile image

At last my results

Hi...TSH .....0. 01.......... (0. 30- 4.50)......T3...4.2 pmo 1/L. (3.1 - 6.8) T4. 17.3. pmo...
croc345 profile image

Should T3 be being taken?

Hi, can anyone advise please. My 20 year old daughter had her thyroid and 3 parathyroid glands...
claiream profile image

Antibody Panic - Advice please

Hi, sat here in full panic mode. History thus far: 2003 diagnosed hypothyroid TSH - 4.8mu/L....
debswelly11 profile image

Moderation team

See all
RedApple profile image
RedAppleAdministrator
helvella profile image
helvellaAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.